NoDoddle

Sleep in. Trip into town. Nice weather. Roasted chicken for dinner. A spin on the MOTOMed. Sounds like an ordinary Sunday? For Pádraig it was pretty extraordinary because most of what he did today was not something he was ever supposed to do. – I know it might get a bit tired and repetitive saying this all the time. But it is worth reminding myself (and whoever reads this) that what sounds so ordinary and almost boring is nothing but.

I got up early this morning and found out when people say ‘hello’ or ‘good morning’ to you when they jog by. Or who says it. There are definitely more people greeting you with a friendly smile, the earlier you are out for your early morning run. Especially on weekends. That’s when people are in good humour, they feel happy and privileged running along the seafront into (or out of) the rising sun. And there is a tendency of older males being more communicative than younger females – but, that can be just me attracting encouragement from people who know what I’m going through:) It was 32k today, the last of the really long runs before the Hamburg marathon at the end of this month. And I can’t say it was a doddle.

A bit like life.

Ridiculous

It was one of these really scary moments when we decided just to go for it. So we packed the back, got Pádraig and half of the family in to the car and went off to the swimming pool. Not the one on the South side of Dublin, but one on the North side that had been closed up to recently. Pádraig had learned to swim here. But he had never been there after the accident. We had rang ahead of our visit, but we hadn’t really checked it out.

The usual happened. There was no stretcher for Pádraig to change in the men’s changing rooms, but there was one in each of the women’s. Don’t ask me how, but with the incredible understanding and support of the staff, we managed.

And Pádraig had his second swim this week.

I didn’t say it to anybody because it sounds so ludicrous – but what I thought was that if he continues like that, he’ll be back in the water at 5 in the morning 5 days a week. Sounds ridiculous? – Well, had someone told me that he would go twice a week to two different pools a few months ago, I had told them not to be ridiculous.

 

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Medals

There are days that are just uplifting. Today was such a day.

In the morning, we had a really good therapy session with Pádraig standing in his standing frame, with no back, just hip support, pushing his upper body forward and pulling it backward a few times over a giant ‘peanut’ all by himself – he took his time and the movements were very slow, but he did it. No once but a few times.

At lunch time I went out to swim in the grand final of the Corporate Swim a Mile Challenge organised by Swim Ireland. Our team didn’t quite know how we made it into the final but – we reached it and spent hours and hours getting ready for it: from a complete body wax of one of our team members, to an underwater Zen session of another, to top professional equipment (towel, shampoo, togs, goggles and all) of a third. Our forth team member didn’t need any of that and did it all in her sleep. In the end, we came in second (last) but were honoured with a special commemorative medal! My very first ever swimming medal!

Later in the afternoon, I met a truly exceptional woman who had recently lost her husband having looked after him for many years and who shared with me the ups and downs of her struggle. She is a true hero, though I know she wouldn’t see herself as one.

The day ended with the visit by two exceptional friends who joined us for dinner: tapas, paella, and brilliant company, with Pádraig on the table, really happy for having some nice food and loads of laughs.

All this: medals, food, company and laughter is what life is all about. – It never lasts, but stays with us forever.

And is something to be truly grateful for. Every day.

Bray

We are working with Pádraig on spelling words. We ask him things and encourage him to respond with words he spells by pointing out letters of the alphabet organised in quadrants.

Today, for example, we asked him how he was feeling. He pointed out a ‘G’, followed by an ‘O’, and another ‘O’, which is when we guessed the last letter.

It seemed as if what we were teaching Pádraig was working.

Just being back from Blanes, we then showed Pádraig the holiday snap below and asked him whether he knew where that place was.

He said ‘yes’ and started to spell ‘B’ — ‘R’ — which is when we were about to stop the exercise, but decided to let him finish. He continued: ‘A’ — ‘Y’.

While we had thought he had got lost in the chart, he was, of course, perfectly right. The beach on that picture looks exactly like the beach in Bray, just outside of Dublin.

Turned out that we were not teaching anything to anybody here. We were being taught a really important lesson by Pádraig about how we are approaching things, about our assumptions, about our perceptions. Pádraig had no idea that we had taken that picture. We knew we had taken it, we had shown it to friends, we had commented on it. But never with him. And in this situation, and from his perspective, what we were doing when we asked him whether he knew where that place was — was playing the “Which place is shown on this picture”-game that he was happy to join.

He was right. We were wrong. — And he taught us, and we learned from him a really important lesson. Think twice when making any assumptions based on your very own frame of mind during your communications with others.

I took a break from running today and joined a brilliant swim team taking on Swim Ireland’s corporate challenge to swim a (relay) mile with some friends. I hadn’t been in the water for months and was so proud that I didn’t drown during the swim. While we didn’t quite win, we believe that we made it into the final and have been monitoring our email all night as we expect an urgent communication from Swim Ireland inviting us to compete in the grand finale of this highlight in the official Irish Swimming calendar. In the meantime: thank you to my friends-in-swimming who didn’t show any sign of embarrassment for having a lame duck in their team. Fair play!

Finally: Ba mhaith linn ár mbuíochas a ghábháil le clann ó Choláiste Eoin as ucht an bhronntanais fhláthúil a bhronn siad ar Phádraig inné. Cuirfidh sé go mór lena shaol.

Hustle

We got up at 4am Irish time, had a 2 1/2 hour bus journey to Barcelona Airport, and were stopped in our tracks by a lady at the check-in who decided we had to pay for Pádraig’s case containing his supplies – something that had never ever happened ever before. While I stood back, having got very close to a melt down, we established via the sales desk that if we could supply a doctor’s letter stating that Pádraig required special supplies, they would carry his bag free of charge.

For a moment I thought we were in Germany. Usually, it is Germans who need a letter stating the obvious. (No offence intended to my German country fellows:) (And no offence intended either to any Spanish reader:) We have such a letter but didn’t carry it as we never had to show it – even in Germany!!

So we paid 50 euro for Pádraig’s bag. And this afternoon, following a tweet I posted about this, Aer Lingus kindly agreed to refund the 50 euro but reminded me to carry that letter next time! – Fair play to Aer Lingus who, it must be said, have always gone out of their way to make Pádraig’s travels as easy and pleasant as possible.

Having boarded the plane, we stood on the tarmac for over an hour waiting for the rain in Dublin to clear. The easiest part of the journey was the flight. Having arrived in Dublin, we waited for another hour to get off the plane. The special assistance crew at Dublin Airport must have been incredibly busy this lunch time! Very tired, very stressed and very much later than planned, we grabbed our bags from the belt, got into the car and drove home. Only to discover, that one of the bags we had grabbed was not ours.

So I brought it back hoping we could do a straight swap. Unfortunately, however, the owner of the bag we had picked up, had not picked up our bag. So while they were happy to get their bag back, ours is currently filed as missing.

Are we happy to be back home? We are. While travel is good and full of adventures, it’s good to be back home again (don’t klick on this link unless you are ready for some country and western from John Denver:).

Are we missing the sun, the soft warm wind on our faces, the walks, the mediterranean, the tapas, the people filling the walk along the sea, the noise of the sea at night….? Of course.

I must be honest. I don’t understand people and organisations who promise funding, who promise signatures on agreements, who promise to get back to you  – and than have to be reminded again and again and again, have to be asked about what is going on and sometimes get back and sometimes don’t. I was thinking: I have some dignity and self-respect left. I don’t need to get down on my knees and be grateful to be dealt with at least business-like by people and organisations that are being financed by me and my family. I was thinking: It’s ok to deal with hustle, I know maybe better than others that life is not hustle-free. But there is hustle that could and should be easily avoided. We all have enough of it as it is.

Retorno

It felt like just another day in paradise today with blue skies, almost perfect temperatures and not a bother around.

Even the ‘hole in the wall’ looked like the flight deck of an A380. It offered withdrawals in 16 languages, worked contact-less, and had a build-in video camera to record who was taking the money.

We found out that Blanes is part of the Republic of Catalunya. And above all, Pádraig was really really happy. Being outside most of the day, eating all this wonderful food and trying out different kinds of drinks – we’ll miss it.

Because today was our last day. We’ll have to get up again in the middle of the night to catch a very early bus that will carry us over more than two hours to the airport. We’ll be part of what they call in Spain, following Semana Santa, ‘operación retorno’.

Reality

This is the day when the most unlikely things become reality. A bit more than 2,000 years ago, Jesus had disappeared from his tomb and, as his followers found out later, risen from the dead. Love will never die. It can suffer, cause incredible pain, make you despair. But just when you think it has died and you’re alone, it turns into the biggest miracle and makes you realise that it will always be with you. No matter what.

I know, this sounds cheesy… but there you are. I haven’t grasped the whole story of the passion and resurrection, I’m working on it because in my mind it is the most amazing, most inspiring ‘story’ around.

Today being Easter Sunday, we went to see yet more processions. In Blanes, there was just one. And it was pretty short. BUT – it had a surprise in store for us.

First the typical cofradía, all men, some in socks (used to be bare feet in the old days), all suffering under the weight of the statue of the risen Christ.

 

And then – mother Mary, carried not by another typical cofradía, but by one that had only women members.

 

Not sure whether these really short videos capture that incredible difference between how the two groups handled their task. Watching it from close by was quite something!

We discovered more stuff about Blanes. A shop closed for days now owned by someone called Puigdemont. A statue of Carl Faust, a German who lived in Blanes in the last century and founded the towns botanic gardens. And arroz negre, black rice, with strange creatures on top of it.

Pádraig is really having a great time. Enjoying the food, especially the gigantic and relaxed breakfasts, the walks, the sounds, the fresh air, the tiny shops in the town, the walks along the seafront.

And I ran 28k this morning. Heading off at 6am. Because it was still pitch black outside, my only option was to ran along the Blanes seafront which is well lit. 4 times. I really had doubts about whether I would be able to convince myself to get up that early and complete that long run. Maybe it was the day that’s in it that made the unlikely thing possible!

Suede

Remember that elderly lady in the street the other night when we were waiting for the procession commenting on Pádraig’s “big feet” — and his big feet only? Did I mention she told us about this fabulous shoe shop in the Carrer L’Hospital in Barcelona, selling comfortable shoes in all sizes?

Guess what! Today we went to Barcelona on a day trip and, by accident, found ourselves in the Carrer de l’Hospital. We asked in another shop for a shoe shop. And just a few metres down the road there it was: Calzados Gueisal.

We weren’t disappointed. Although the shop was really small, it had the most amazing selection of shoes – in all sizes. It didn’t take Pádraig very long to make up his mind about his favourites. Blue suede.

Isn’t it funny how, at times, things you never expected at all at all, all of a sudden start to happen?

Friends

This was the day of full scale disaster. The man who was to save the world died on the cross following a day of the most vicious torture. He had questioned the existing power structures and values. Those benefiting from these structure, those whose power was threatened, did the thing they do in those situations. No surprises here. Problem solved.

I am sure that none of them had ever envisaged that more than 2,000 years later, a “Holy Father”, head of a 1.2 billion people church, would preside over a solemn commemoration of this day of the passion that would be televised around the world. And that ‘cofradías’ in Spain would carry ‘pasos’ through the streets depicting the events of this day. (I took the pictures from the telly that was broadcasting the procession from Malaga.)

It was the man on the cross who changed the world. It is his words that survived the centuries. – I’ve been thinking today what his response would be to those pressing questions we are dealing with today and how he would see the catholic church itself.

So what have we been up to on this day of high drama?

Following a glorious breakfast, more like a lunch, we went out to meet these roman soldiers again. Turned out they have kids that do the daytime job. Some even have nose rings, studs and long hair under those fancy helmets. Though still no sign of the man they’ve been looking for yet…

At lunch time we had a visit from two very good friends who had moved to Barcelona some years ago and who came over to Blanes for the afternoon for a chat. We had brilliant afternoon in great company.

We’ll be off to Barcelona for the day tomorrow morning, just for a walk down the Ramblas and memory lane…