Even Sensational Achievements Are Made One Step at a Time

A journey of a thousand miles begins with a single step.
Lao Tzu, Tao Te Ching, Chapter 64

When we were talking in An Saol last week about the recent news that Harry and Meghan are moving back to the U.K., together with their two kids, Archie and Lilibet, we were wondering how old Harry and Meghan are. So we asked around. Pádraig was one of the very few who knew. For Harry: 4 bleeps for the tens, one bleep for the single. For Meghan: 4 bleeps for the tens, 5 bleeps for the single years.

A week ago, he also gave us the exact day, month, and year of the birth of his two baby nephews.

Nobody had told him. Nobody had asked him to remember. He just did when he heard it in conversations.


We heard about the Dublin City Fleadh in Smithfield by chance yesterday morning. The weather was good and we had nothing better to do. So – instead of the usual walk in the park or down the canal, we went to Smithfield.

It was a thousand times better than what we had expected. It truly was a fantastic event! Free and accessible because of both location and time. Yesterday afternoon, Wran, Altan, Dervish, and Sharon Shannon were playing. Today, Sunday, it’ll be The Scratch, Madra Salach and Kíla.

Altan introduced their first song saying that it was in our first language, Irish. And if someone didn’t understand it, it was never too late to learn the country’s first language. However, they said, they had decided to be nice and sing every second verse in English. And off they went. This was music full of longing, full of hope and energy.

A few people stopped by as they recognised Pádraig. Whoever has any doubts that Pádraig is fully clued in or might have problems with his memory, should have been there with us this morning. The joy on his face when he saw people, some of whom he had not seen in a while, was contagious and incredibly moving.


While Smithfield brought us the magic of music and company, An Saol’s practitioners, again, walked with Pádraig in the large physical exercise space.

This is something we first did with Pádraig in Pforzheim. It is part of their treatment approach and their philosophy that their clients stand and walk at least an hour every day.

It took several years and a visit to Pforzheim with our senior practitioner but then it clicked and, for the first time in Ireland, they offered to walk with Pádraig as long as I balanced him from the back. There is, of course, still significant room to improve through practice. But this is phenomenal progress on all sides.

One step at a time.

Blinding Lights

The sun does not stop shining just because, for a moment, we cannot see it.

Like so many people last Wednesday, I took just a short peep at the sun during the 95% eclipse – and was blinded by its light for a while.

I can see the sun light up the sky
So I hit the road in overdrive
I’m blinded by the lights

At 5% of its power, the sun still knocked out my eyesight. I had expected near darkness and while it became a bit darker, it was still bright all the time.

We went to the Phoenix Park to experience this most spectacular event in company. And there weee thousands of people who enjoyed this, perhaps, once-in-a-lifetime event together.

While the sun never disappeared completely, it did get darker. We were lucky to have those special glasses which allowed us to look straight into the sun and see the moon slowly moving right across it, nearly covering it completely.

Over the past days, Pádraig also went to a wedding of one of his best friends, the groom, together with his sister whose best friend was the bride. Judging by the pictures they shared afterwards, they had a fantastic time – in the company of dozens of great friends celebrating one of the happiest moments in their lives.

As Leonhard said in London some years ago
Thank you, my friends.
We‘re so privileged to gather in moments like this
when so much of the world is plunged in darkness and in chaos:

Ring the bells that still can ring
Forget your perfect offering
There is a crack, a crack in everything
That’s how the light gets in

Remember

The sun does not stop shining just because, for a moment, we cannot see it.

Tapetenwechsel

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New views, new vibes.
Anon.

A change of scenery, a Tapetenwechsel, gives you distance and allows you to look at life from a different perspective, From A Distance.

One of my long runs, when I do them, is from home to Réalt na Mara, or: Star of the Sea, at the end of North Bull Wall on Bull Island. By the time I get there, I am usually out of breath. Passing it on the ferry is a very different story. What is there hasn’t changed. It’s my perspective that makes all the difference.

That’s why holidays are so important. They allow you to look at your life in a different way.

And they always let you experience something new, different, interesting, and even funny.

Like the “Irish Ferries” flagship Ulysses being registered in Limassol on Cyprus. Spotting the iconic Poolbeg Stacks sticking out between the ferry’s chimneys. Or learning (and tasting) the difference between a “burrata” and a “burrito”. Having a bit of Currywurst on a stick at the Eidersperrwerk. Or just feeling the hot sand under your feet and running down between your toes.

I cannot remember when I came back from my holidays relaxed, rested, and recharged. There is always too much going on and there are too many physical and mental demands.

But the change of scenery, the Tapetenwechsel, different and at times new experiences or even tastes, always open my eyes and my mind. They allow me to see what is important in life.

Perhaps the most important lesson is: I need to keep going. Not because it’s easy or because I knew the destiny or even the direction. But because standing by is not enough.

Keep going.

Never assume that this is where the story ends.

Move On

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Why are you crying out to me? Tell the Israelites to move on.
Exodus 14:15

There they were: Whitney Houston and Mariah Carey singing When You Believe from the Prince of Egypt, the animated movie telling the story of the Book of Exodus in which Moses, a prince of Egypt, becomes the prophet that leads the Hebrews out of Egypt.

We were flicking through the German TV channels one night last week when we hit a programme showing clips of the best female singers.

We are not afraid although we know there’s much to fear. We were moving mountains long before we knew we could.

I had tears in my eyes listening to Whitney and Mariah. What a cheesy song. But it couldn’t be more powerful. Nor more beautiful.


This is our last week here. On Tuesday, we’ll start driving back: three days on the road and on the sea.

Yesterday, we went to Husum and sat beside the old port with a moving pedestrian bridge that opens from time to time to allow for the passage of boats from the harbour to the sea.

Earlier in the week, we rocked at our last Tuesday night in Garding with “Germany’s best Neil Young”, Stefan — really! Apparently, Neil knows of Stefan, who has been, with his wife Una, at countless Neil Young concerts. It was uncanny. Stefan had this all down to a “t”. Neil’s voice, his movements, his haircut. Even Neil’s often endless electric guitar solos which he enjoys infinitely more than his audience. Stefan sang Keep On Rocking In The Free World like Neil 2009 in Glastonbury: Here’s one more kid….that will never go to school….never get to fall in love…never get to be cool. How powerful is that?!

At Pádraig’s OT session, we tried out a new device called Pneumatron 200, a medical massage device that combines aspects of massage and cupping. It is used to loosen tense muscles and connective tissue, stimulate local circulation and lymphatic drainage, reduce swelling, and support pain relief and joint mobility. Interesting but requiring more than a once-off use to see how well it works.


Remaining passive is not an option. We have to move forward, even when the barriers appear insurmountable. We have to turn hope into action.

Move. Walk. Don’t be a bystander.

Currywurst

Feeling really down? Need something to chow down? Have a currywurst.
Herbert Grönemeyer

Currywurst isn’t just food. It’s a way of life. And it is so German.

You can see this in the clip with Herbert Grönemeyer singing the currywurst song. Oh Mein Gott!

Some people say that life is like currywurst. It’s all about the sauce—and you never quite know what you’re going to get.

Last week, we had plenty of it. In Garding during the Musikantenfest. On the Arche Noah.

We also got Brötchen.

I was reminded that asking for a bread roll in a German bakery is as complicated as ordering a coffee in Seattle. Too many options. And in both situations I feel like an idiot amongst all those over-confident customers in the know who, without hesitation, get their orders straight out.The truth is: you haven’t really lived until you’ve experienced both.

This is what life is all about: Currywurst. Brötchen. Schnitzel. Great walks out to the sea. Musik in Germany’s second smallest city. Wiener Schnitzel, Pfefferrahm Schnitzel, Champignon Schnitzel, Paprika Schnitzel. Currywurst 10 feet above the sandbank on the Arche Noah.

Together. In company. Alive and kicking.

What more could you ask for?

Everything has an end—only a currywurst has two.

Überfordert

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I tried to drown my sorrows, but the bastards learned how to swim, and now I am overwhelmed by this decent and good feeling.
Frida Kahlo

Sorrows generally don’t disappear. They learn how to swim when you try to drown them. They survive.

But then, somehow, and alongside those ever-lasting sorrows, something decent, good, and beautiful can emerge. Nobody better to tell us about it than Frida Kahlo. She had a very difficult life with great pain, periods of deep depression, and a passionate but complicated relationship with Diego Rivera.

She did not overcome pain by making it disappear; she confronted it, painted it and incorporated it into her identity. Her art repeatedly transforms the injured body into something vivid, beautiful, humorous and defiant. It’s when we stop trying to escape but learn how to live with sorrows, that we realise: life continues – with all its beauty, decency, and moments of happiness.

We’re back in Tating.

And back in Garding on Tuesday evenings at the Musikantenfest – though a more appropriate name would probably be Rockfest. There are always three parallel stages. Last Tuesday, on two of them the bands were playing a song by Rio Reiser’s “Ton Steine Scherben”, one of the defining German rock bands from the 70s. One was playing Junimond, the other Keine Macht für Niemand. It was a time when Germany and the Germans had not really dealt with their past. When children found it hard to understand that the older generations had allowed this most horrible period in German history, perhaps in history – and the older generation just went quiet, out of guilt, perhaps shame – or both.

In any case, last Tuesday felt like time travel.

And there was this “Gang” again. I have a feeling that I took a picture of Germany’s narrowest road a million times.

I like this one as, to me, the two ladies with the nordic walking sticks seem to wonder whether they should venture a walk through the Pannmeistergang or whether it would be safer not too.

The sign says: Only for Pedestrians, Nur für Fußgänger – presumably to stop drivers trying to give it a go!?

When we are not at a rock concert in Garding, we go for walks, try to eat well, sleep, and spend time together. A couple of times a week, an OT Pádraig has been working with for several summers joins us. We have time to support Pádraig using communication tools, going beyond choosing from a pre-defined set of answers, but spelling them out.

We also met our local GP, just to check in. He gave us a few tips this year, and he explained why, in his view, some clinicians and providers have trouble providing an adequate service to people like Pádraig.

He said that they are just “überfordert”. Overwhelmed, out of their depth, not able to cope, or out of their league. How well I know that feeling! Do you?

It makes perfect sense. Simple. I will remember it – instead of becoming desperate in the face of that lack of understanding, I will remember that, most likely, nobody ever prepared those whose profession is to care, to care for people like Pádraig. (I won’t speculate here about the reasons why they weren’t prepared.)

I like Rio Reiser’s approach: Let’s tear down the walls that divide us. Come together, people—get to know one another. (Reißen wir die Mauern ein, die uns trennen. Kommt zusammen, Leute, lernt euch kennen.)

When we stop trying to drown our sorrows and, instead. learn to live with them. In community. Together. And care for one another.

Then we’ll realise that life goes on – with all its challenges and with all its beauty.

Wie Auch Immer – There Is Always More Than One Way

Today is the good old days of tomorrow.
Karl Valentin

We are on our way again, as every year, from Ireland to the North of Germany.

The sign on the postcard (yes, a postcard:) says: “Your adventure starts here.”

Maybe.

By now, this journey is familiar: the ferry, the sea, the long road ahead. And still, every year, it is different.

Slightly paraphrasing Karl Valentin: “I enjoy the rain. Because if I don’t, it rains anyway.”

That is probably true for many things. The weather does not ask. Life does not always ask either. So we go.

Do you have your own “Wie auch immer”? Something that happens anyway — and where the only real choice is how you travel with it?

Wie auch immer.

Move Like Jagger

Just shoot for the stars, if it feels right.
Maroon 5

It had rained the whole day. And it didn’t look good for that Maroon 5 concert in the grounds of Malahide Castle.

At around 6pm, the rain stopped. The sky cleared up. The sun came out.

According to Pádraig’s sister, this was the concert of concerts. Here’s to the ones we love. Memories.

Perhaps we’re living the dream. Perhaps we’re the lucky ones. Perhaps this is the good life. Perhaps this is as good as it gets.

Perhaps we just need to open our eyes and see.

Just shoot for the stars, if it feels right.

And move like Jagger.

Skyfall 13

Let the sky fall. When it crumbles. We will stand tall. Face it all together.
Adele, Skyfall

At around 3pm Dublin time yesterday, 13 years ago, I had given a successful invited presentation to the guests of one of China’s biggest localisation service providers, following a visit to the Chinese opera, a dinner in the French restaurant overlooking Tiananmen Square, and a flight to Sanya on Hainan Island in the South China Sea.

The presentation followed the story line of Adele’s song about the worst thing that could possibly happen to you. And how you have to react to it. The theme was topical at the time as the position of localisation service providers was fundamentally challenged by what was known as Community Localisation.

Together with a friend, I had won a poolside competition.

I was about to go to bed in the early hours of the morning, Sanya time, when I received the phone call that changed life forever.

Skyfall became real.

In the middle of the night, I left it all behind, and flew to Boston via Shanghai and Detroit.

In my head I was now singing Forever Young. Thinking of Pádraig in Cape Cod Hospital, in Hyannis.

May God bless and keep you always
May your wishes all come true
May you always do for others
And let others do for you
May you build a ladder to the stars
And climb on every rung
May you stay forever young
May you stay forever young



This year, we went to Carlingford to celebrate life.

I don’t know anyone who has adapted to such a profound change in their life as Pádraig has. Of the many qualities I admire in him, this is perhaps the greatest.

Rainer Maria Rilke’s words best describe my own experience: Perhaps somewhere, someplace deep inside your being, you have undergone important changes while you were sad.

Love Will Set You Free – Take 02

If you’re ever feeling lonely, if you’re ever feeling down. You should know you’re not the only one Because I feel it with you now. When the world is on your shoulders and you’re falling to your knees, oh please. You know love will set you free.
Kodaline

There are a million songs about love. All You Need Is Love, Love Like This, Can’t Help Falling in Love, Make You Feel My Love, Endless Love, You Are the Sunshine of My Life, How Deep Is Your Love, To Love Somebody, The Power of Love, One Love, Love Is All Around, …

You will have your own, favourite love song, right?

When Pádraig had his accident, the lads from Kodaline sent him a get-well-soon message, together with The Heathers, The Coronas, Bell X1, and many others.

When he came back from Germany in 2015, they invited him to their December gig in The Point.

He (and us) were there for the soundcheck and experienced the magic of one of the best of their many great songs being sung in a humongeous empty concert venue.

Last night, we went, together to see Kodaline in the grounds of Malahide Castle for the kick-of concert of their Farewell Tour. It was a magic night. Brilliant songs, fantastic audience, beautiful people. Including a couple of young women who had not discovered the front camera of their phone for taking selfies. Out of this world.


A few other things happened last week.

Pádraig met the Tánaiste and Minister of Finance, Simon Harris, in An Saol, visiting together with the Minister for Disability, Emer Higgins on Thursday, accompanied by Councillor Gayle Ralph.

On Friday, he went to the Mansion House, where the Lord Mayor of Dublin, Councillor Ray McAdam, hosted the An Saol Community’s event: A Decade On. From Pilot to a National Centre for severe Acquired Brain Injury (sABI)

The best thing last week? Pádraig became an uncle, for the second time. This time to a wonderful baby girl. He, and us, couldn’t bet much happier and much prouder. The future is catching up with us. The next generation is arriving. Soon, they will be ready with their idealism and young energy to make this world a better place.

This is a sign of things to come.

Love will set you free