Oktoberfest

Neither the October Revolution nor the Oktoberfest take place in October, but I thought that May is a bit early for having what looks and feels and tastes to all intends and purposes like an Oktoberfest. But, as we already knew, everything is possible in Pforzheim.

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Taking advantages of the glorious sunshine and scorching temperatures, Pádraig and I made our way down into town to join the crowd for the Pforzheim Beer Festival – in May. To be honest, it felt a bit like an excuse to drink and eat a lot. But so what!? It was a great afternoon, seeing so many different people, smelling all the different foods on offer, feeling the warm sun and the cooling wind on our skin.

On the way back we passed by a Kaufhof Department Store where they were selling gift cards with really funny translations into English of German sayings, Sprichwörter.

Any idea of what this means???

=> Don’t forget to book your film ticket here and your An Saol Project Launch ticket here… AND to tell everybody in your ‘circles’ about it!!!

Drone

You’ve heard of them. I had. Mostly bad stuff.

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But yesterday, on father’s day, how appropriate!, I saw one in action for the first time. A flying camera, basically. Unbelievable. You can fly the drone 5km away from where you are and watch through the eye of a high resolution swivel camera on your iPad or on virtual reality glasses what the camera sees. Then you can press a button and it flies, by itself, back to where it took off. It avoids obstacles automatically and returns to you just before the batteries stall. Here is a 3:20 mins. clip to give you a taste (there’s no sound).

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Today marked the end of the last full week of us here in Pforzheim. And Pádraig marked it with a few ‘firsts’ during his speech and language therapy: he ate his first half of a Hanuta (a chocolate biscuit with nuts), he had his first drink with a straw and he enjoyed two full strawberries. Brilliant.

In the afternoon, the weather was so nice that we had ‘Abendbrot’ (‘dinner’ would not be the correct translation:) on the balcony. Really really nice, warm, relaxed with dozens of birds singing into the evening.

This weekend, the Pforzheim beer festival is taking place and some of the people here went into town to check it out. We’ve kept that adventure for the weekend:)

Vatertag

Again, it’s much later than I wanted it to be. It’s not really a good time to write. But the days are so busy that I feel very much like as if I was running out of time. It’s Vatertag (father’s day) today which is the day when males, fathers or not, take out a ‘Bollerwagen’ and several crates of beer and head for the parks or woods to have a good time! What could be better than spending a long afternoon in male companionship and beer somewhere in the middle of nature? – At least that’s what I thought when I was around twenty.

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No ‘Bollerwagen’ nor beer for me today – but a wonderful afternoon out in the most amazing home of the couple running the therapy centre here for ‘Kaffeetrinken’ with Pádraig who had a great time eating ice-cream in the sun. I don’t think we had spent as much time out doors as today. It was a brilliant day and it felt like a short holiday. A completely different world, just 3km up the road.

Pádraig’s ankle is still swollen but it’s looking better. We toned down the therapy today a bit to give the ankle a chance to recover.

Our new friend I so far only met over ‘hangout’ has booked his flights from Los Angeles to Germany and Ireland. He’ll be filming and interviewing here in Pforzheim and hopefully in Burgau, and then in Dublin, putting together material that will promote the An Saol Project. I still don’t believe that this will be happening. What a difference visual material will make to our efforts!

Another good bit of news is that both Headway and ABI Ireland will participate and contribute to our events on 18 June. Check out the ticket information here and pass it on to all you know. Get your tickets as soon as possible – there is only a limited number of them available!

Telephone

It’s such an old, 20th century concept. Which makes me feel even older than I really am. Imagine – I remember the day we got our very first telephone and a line we shared with a neighbour. It was either us or them – never at the same time. Today, although theoretically I still have a telephone, it is not connected to any wire and I mostly use is for apps, browsing the web, and to take pictures – not to make phone calls.

Telephone

Over the last couple of days, I ‘hang out’ (the Google word for Skype), on my “phone”, with the cousin of a very close friend of mine. This cousin is a film and film music maker. Myself trying to stay awake in the evening, him ‘hanging out’ in sunny California. The result of all this is that he will be coming to Pforzheim on Monday or Tuesday to shoot some footage of the centre here and of Pádraig. With a bit of luck, we’ll also be able to interview some of our German supporters of the An Saol project. And a week later, we’ll be doing some filming in Dublin trying to interview others affected by sABI. The idea is to create a video to promote the An Saol Project and our fundraising efforts on the web. – My head is spinning.

Seems like Pádraig twisted his ankle in the bootcamp. It’s swollen and sore. I tried ice today and an anti-inflammatory but this hasn’t shown any relief yet. Hopefully, after a good night’s rest it’ll all be better in the morning.

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The duck came back today. Amazing how she had changed in just over a week! And amazing how Pádraig connected with the duck. Again.

This is just a very short, but very nice video featuring the duck and Pádraig! Watch it.

Much more serious stuff went on as well, for example the exercises with the cubes (are they cubes or what would you call them?): stacking and un-stacking them. It’s really interesting to see how something that has some purpose generates interest and justifies an effort. Have a look:

 

On a different note: we sold our first tickets for both the film, “Would you rather be dead”, and the launch of the An Saol Project with our national and international experts. Please tell all your family and friends to book their tickets soon to avoid disappointment – the number of ticket is limited and we want you all to be there!!! Tweet, email, Facebook, talk, ring, visit – and tell everybody you know about the exciting stuff that’ll happen on 18 June in Dublin. Tell them that they will have to be there, no matter what!

Tickets

18 June 2016 will be An Saol – Day. We’ve organised the Irish premiere of the German award-winning documentary “What you rather be dead?” in Dublin’s Lighthouse Cinema in the morning and launch “The An Saol Project” in the afternoon in the Distillery Building (Bar Council) in the afternoon. Read on…


At 10:30, the Lighthouse Cinema in Dublin will be the venue for the Irish premiere of the German award-winning movie “Would you rather be dead?, organised by An Saol, following the life of six severely disabled people who have lived for many years in a care home in Hamburg. They give surprising answers to sometimes unanswerable questions. An endearing, humorous film debut that does not sugar coat, but lets the true beauty of life shine through. The screening will be followed by a discussion.

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Get your movie ticket today online here.  Pass on the link, http://bit.ly/AnSaolFilm, to your family and friends. We want to fill this cinema!!!


After lunch, at 14:30, we will launch the An Saol Project in the Distillery Building (Bar Council), Dublin, connecting the practice of neurological rehabilitation with recent research. We will be joined by international experts on neurological rehabilitation and representatives of national and international institutions and organisations working with survivors of severe acquired brain injury (sABI), as well a by survivors of sABI and their families. We will invite Irish politicians to express their support for the project.

The An Saol Project will work with a small number of survivors of sABI and their families, initially over a period of 3 years, to demonstrate how intensive mental and physical activity, as demonstrated by recent research, can significantly improve social integration and quality of life, as well as an improvement in function. The project will be guided by a panel of international experts who will monitor and document progress. International collaborators will ensure that the project will be informed by current best international practice in neurological rehabilitation.

We have invited politicians so that they can hear first hand about the project and express their support. The current list of speakers and participating organisations include:

  • Professor Andreas Bender, University of Munich and Therapiezentrum Burgau
  • Lebenszentrum Königsborn, Germany
  • Headway Ireland
  • Families of survivors of sABI

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This is also a ticketed event and a limited number of tickets are available here with a donation requested in support of the An Saol Project. Pass on the link, http://bit.ly/AnSaolProject, to your family and friends!

Mayday

One of my favourite Mayday videos is actually a commercial featuring the German coast guard.

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When I was Pádraig’s age, Mayday, was the day I went to the Westfalenpark, Dortmund’s nudge to the workers in the steel factories and coal mines, a big, beautiful, out-of-this-world park. In the afternoon, when the demonstrations and ‘Kundgebungen’ were finished, the unions and cultural groups set up stands with food and music. It always was the first day to spend outdoors – no matter the weather.

Today, we borrowed the car of the Centre and went to Maulbronn, the best-preserved medieval Cistercian monastery complex in Europe and a UNESCO world-heritage site. Though Cistercian historically, it’s now mostly a museum site and used as a protestant secondary school (Gymnasium) and seminary.

It was a really nice afternoon out and about with Pádraig’s friend who had come over from France for the weekend. We walked around the site, discovered that the Cistercians has not anticipated visitors in wheelchairs (neither had UNESCO:), and sat down for a few beers, Weißwurst, Flammkuchen, Maultaschen and all sorts of other ‘strange’ food. A few things caught our attention, like the ashtrays on the tables (don’t think you’d see that in Ireland); a plaque saying that this ancient part of the complex was built in the 19th century (which is when the legislation was enacted in Ireland that regulates decision-making for persons with an injury like Pádraig’s – putting it all into perspective); and the lovely white and brown beer mats for ‘white’ and ‘brown’ beers: only in Germany:)

It was a really great Mayday – no demonstrations, no music, but great ‘ethnic’ food!

Gorgeous

This afternoon two really good friends came to visit us, and they brought along their 6 week old son. We hadn’t seen a baby for a long long time and especially not such a gorgeous young boy. Neither had Pádraig.

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The two of them got on really well together. Pádraig was absolutely delighted to meet his youngest new friend and couldn’t believe how small, lovely, and cute the little boy was (neither could I:). Look at his face! No sure what the little boy was thinking, but they seemed to like each other:)


Back in Germany, it’s tempting to compare how neuro rehab works in Germany and in Ireland. Is it tempting to say all is great in Germany, all is bad in Ireland? Well…

There are aspects that are definitely more up-to-date in Germany. For example, Germany has signed the UN Declaration of the Rights of Persons with Disability. There are no lunacy acts from the 19th century still in place. I haven’t found a therapy centre like the one in Pforzheim in Ireland. – At the same time, I haven’t found a therapy centre like the one in Pforzheim in other parts of Germany….

And thinking about Ireland… there are loads of aspects that could be improved, to put it mildly, but there are also professionals in Ireland who have contributed very, very significantly to Pádraig’s recovery. Take the therapist who got Pádraig to use the switch. Take the professionals who prepared the meals for Pádraig really consolidating his oral food intake. Or the professionals working now on his communications using technology, or even music. These are just examples of help that enabled Pádraig to make huge progress. And they happened in Ireland.

At the end of the day there are ‘systems’ – for which we are responsible collectively. And there are people who we will not change. Some are enthusiastic, full of energy, extremely professional, completely trustworthy and transparent – others are ‘just’ doing their jobs. People are people and there are brilliant people and average people in any country. What is important is that the right people are put into the right position, and removed from positions that do not suit them.

So, although it might be tempting, painting the world in black and white doesn’t work. It’s more complicated than that.

Zen

“Zen emphasizes rigorous meditation-practice, insight into Buddha-nature, and the personal expression of this insight in daily life, especially for the benefit of others.” says Wikipedia. Makes a lot of sense to me. No reason to get angry. No reason to worry. No reason to be stressed out. Much better to take things as they are and to ‘be good’ rather than to fight. People are people.

Talking about people.

Pat met some on the train today on her way from Frankfurt Airport to Pforzheim and took a picture of them, complete with table cloth, salt and pepper cellar, and a large selection of home-made food.

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They were Zen. Oblivious of time passed, coffee trolleys and WhatsUp. You live your life. Whatever.

Last night some of Pádraig’s friends had invited us to a big night out in the UCD Smurfit Business School to present us with a cheque for Pádraig. It was amazing: one of Pádraig’s old friends from school, but also new friends from the US, Vietnam and China. Wonderful people, dreamboaters!

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Thank you!