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~ Acquired Brain Injury (ABI): from the acute hospital to early rehabilitation – more on: www.CaringforPadraig.org and www.ansaol.ie

Hospi-Tales

Author Archives: ReinhardSchaler

Way

27 Saturday Dec 2014

Posted by ReinhardSchaler in Uncategorized

≈ 2 Comments

UnknownHe has lost his way.

pope-francis-criticizedCardinal Raymond Burke and Philadelphia Archbishop Charles Chaput are quoted in the Christian Times that they believe he is not providing leadership.  The Australian Cardinal George Pell is raising the possibility that Francis might be a “false pope”.

This is a certainly a Pope with opinions. The kind that doesn’t go down that well with the establishment. – Look at these ailments he identified in the curia. I thought that either there must be loads of Irish Builder-Boomers in the curia, or powerful people in large institutions just can have a lot of traits in common.

Where would you find people who are being “rivals or boastful”, when “one’s appearance, the color of one’s vestments or honorific titles become the primary objective of life”? Or those suffering from ‘existential schizophrenia’, “losing contact with reality and concrete people”, “a sickness that academic degrees cannot fill”? Do you know people committing the ‘terrorism of gossip’? There are certainly loads of people around who “glorify one’s bosses”, who “court their superiors”, those who are “victims of careerism and opportunism”.

If you want to help people, take responsibility for their welfare, support a caring health system, then you cannot do this with people who have primarily either votes or money on their mind. It’s not a competition. It’s not about who is going to win at the cost of others.

Pádraig is continuing with his training. Regularly. Continuously. Getting better. Sitting up in the wheelchair, eating and drinking, breathing with a capped cannula, having a go on the viva la MOTOMed. And new ‘firsts’ at regular intervals. He is sailing down the stream on the Dreamboat, and he believes that things can change.

imagesIn the New Year, we will bring things together. People with integrity and an organisation with transparency, to offer persons with severe brain injuries adequate and affordable help and support.

I know that many of you will be part of this!

 

2. Weihnachtstag

26 Friday Dec 2014

Posted by ReinhardSchaler in Uncategorized

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Do you know people who feel immortal, immune or indispensable? People who work too hard, who are becoming spiritually and mentally hardened? People who plan too much yet work without coordination, like an orchestra that produces noise? And have you come across people who have ‘spiritual Alzheimer’s’?

To me, this sounds like the absolute perfect description of those bankers, builders, and property developers who ruined the country, well: in fact several countries, with the backing of their political masters. Those who defended “bare knuckles capitalism” when they were making an absolute fortune from a big bubble of hot air, and then introduced socialism for the rich when the deals went down by sharing out their debts with all of society, including you and me.

I cannot read this description of these ‘ailments’ often enough. It’s pure brilliance, I think.

The most brilliant thing about this description, however, is that it is part of the “15 Ailments of the Curia” referred to by Pope Francis in his Christmas Address this year.

Try to remember, when was it that you heard a Pope talk like this? I remember bishops, and bishops in Latin America especially, getting into big trouble with the Vatican (and the German Pope) for saying stuff like this some years ago. And now? Now, the Pope himself is from Latin America and is telling off the catholic churches’ officials. – Looks like there are interesting times to come!

imagesOver Christmas, Pádraig was as good as he can get these days. I remember that we used to check his vital signs (heart beat, oxygen) on the monitor first thing when we came in, but not anymore. When he is in the wheelchair, we even disconnect him from all these wires altogether, without any hesitation. Physically, he’s great, he been getting so much better and stronger, and I am sure that this also is affecting his level of alertness.

UnknownBut it is like training. Even if you have achieved a ‘personal best’, or a PB, like one of Pádraig’s ‘firsts’, you will have to work hard, and keep working hard, over quite some time, so that you repeat this PB again and again, until it becomes something that you then take for granted. You can never let go, you have to keep at it, every day. This is what is happening with Pádraig. He can drink. Next day, he tries again and this time it doesn’t work that well. But he keeps trying. Working through all of this frustration of failure. But he keeps trying and the next day it works again. And the next. And the following day he doesn’t take the water and the milk from a spoon but out of a cup.

All of this is like so many things in life. Good things don’t tend to fall into your lap. They are the result of hard, continuous, regular work

There was a great surprise today when a team of physios came in to work with Pádraig for a session. Something we hadn’t expected on the 2. Weihnachtstag – when staff is still on a skeleton level. It was brilliant.

Oh, I gave a copy of Amhrán do Phádraig and the Dreamboat yesterday to Udo Lindenberg 🙂

1. Weihnachtsfeiertag

25 Thursday Dec 2014

Posted by ReinhardSchaler in Uncategorized

≈ 2 Comments

Christmas Mass in Germany is different. Well, at least in a catholic church in protestant Hamburg. We went for the 9 o’clock mass. You know the one you go to because you want to go early, before you stick the turkey into the oven and put the ham into the biggest pot and onto the fire to cook both for hours. It’s all about timing. Getting the turkey, the ham, the potatoes (boiled and roasted), sprouts and carrots and broccoli, getting it all ready at the same time. Although – that’s the easy part. Much more difficult is it to get all the people around the table all at the same time and not too long before the dinner is ready.

The organ playing was impressive, the priest’s singing was quite good (he sang everything, from hymns to the Our Father). This was the short early mass, before the Hochamt later on, so it just took over an hour. Half an eternity by Irish standards.

Instead of turkey and ham, we had a big breakfast and went to the hospital to join Pádraig. He has received so many cards and present that there ain’t enough tables to hold all the cards. Thank you to all, on behalf of Pádraig, who sent him great cards, great presents, and really really nice messages. You know the song Ronnie Drew sang about Spanish being the loving tongue (or something like it). Well, I think that Irish must be the loving tongue because many of the good wishes that Pádraig received were in Irish. It is brilliant to have such a bond and to be able to express it in such a beautiful language. It means 1000 times more than just ‘words’.

Pádraig continues to do well. There hasn’t been a dramatic jump in how he is. But there have been slow and steady improvements. He has been eating twice for (I think it must be at least close to) a week now, and not just stewed apple but mashed carrots and potatoes and, for the first time today, bananas. When we left him this evening, I was sad, as I always am when we leave him, but we knew that he is getting better.

Udo

He is the guy with the hat looking towards me 🙂

To celebrate Christmas, we went to have a drink in our favourite bar in our favourite hotel – and guess who we saw and talked to: Udo Lindenberg, you know him if you had a look at some of the music links in previous blogs. He looks great, is extremely polite, and moves and talks very much like the Udo Lindenberg you would see on stage. He is who he is. And I hope he’ll continue for a long time!

Check out the Interview (in German) with Udo im Atlantic, the Highlights of MTV Unplugged recorded here, or the song “Mein Ding” featuring the hotel.

 

Heiligabend

24 Wednesday Dec 2014

Posted by ReinhardSchaler in Uncategorized

≈ 6 Comments

Tags

Christmas Eve, Hamburg, padraig, Pope Francis

Who would ever have thought? A second Christmas Eve in our apartment in Hamburg. A second Christmas Eve with Pádraig in the Schön-Klinik. That certainly was not the plan a year ago…

Do you make plans?

Did you hear about Pope Francis’ list of 15 Ailments of the Curia delivered in his Christmas address? I had a look at them and have promised myself to read it again with more time. This is a list not just for the curia, this is a list for us normal mortals too.

Number 4 caught my attention:

Planning too much. “Preparing things well is necessary, but don’t fall into the temptation of trying to close or direct the freedom of the Holy Spirit, which is bigger and more generous than any human plan.”

It’s another way of expressing what many people on earth, of different beliefs, believe: that our plans never take us very far.

At the same time, an inability to plan, for whatever reason, is probably one of the biggest stress factors, one that is so stressful, that it can be torture-like.

IMG_9872From mid-day today to Saturday, Germany will close down. They will briefly open on Saturday morning, and then close again for Sunday. A lot of Irish people on panic stations on Christmas Day because some essentials are missing (“What do you mean? – There were no batteries with it???!!”), running out of food on Stephen’s Day (although that is unlikely – usually the turkey and ham last for a week to finally end up on sandwiches), or nervous to exchange their unwanted gifts and get the best items on Stephen’s Day Sales, a lot of them would not understand this. I have heard of Irish people on motorways trying to find the next airport or open garage to buy bread and milk on Sundays, never mind Christmas.

IMG_9873We will have a few days together here in Hamburg. Apart from not sitting in front of an open fire with the Christmas tree and crib in the corner. Apart from not being with our our Irish family, and so far away from all of Pádraig’s friends. Apart from this, we are lucky. Lucky to be together, with Pádraig. Of course, there is much we hope for – and Christmas is the time when we are full of hope for things to come. Amazing things. Things we would never have anticipated.

Padraig is doing well, he has improved so much over the past year, there is nothing stopping him now. And we, you, all of us, will support him every step of the way.

Despite of what Pope Francis’ #4 says, I’m making a plan. And I’m making it for Pádraig too. Let’s get onto the Dreamboat!

Overrated

23 Tuesday Dec 2014

Posted by ReinhardSchaler in Uncategorized

≈ 2 Comments

Maria and I went down South. It sounds like a trip to the Rio Grande and the border to imagesMexico. In a way it was. After all, everything south of the river Elbe is foreign territory – at least that is what the people living north of the river say.

We left Hamburg towards the end of the day. Pádraig was in his wheelchair when we left and had eaten a full ‘Gläschen’ in record time: 45 minutes. He was managing ok on the capped tube, breathing in and out through his mouth. All of us were happy that he was doing ok. Doing ok. Was hat die Zeit mit uns gemacht?

I am staying with a really good friend tonight, one of the real ‘old’ ones, the night before Christmas Eve. I had planned to do this for the best part of the past year, and it never worked out. To be honest, I could have stayed up for the rest of the night to talk, about anything, no desire to sleep (sleep is over-rated anyways), no desire for it to end. We have known each other for a long long time. And the welcome, meeting his family, talking the night away, was just great. Was hat die Zeit mit uns gemacht?

Today’s German Music Tip
Udo Lindenberg, Was hat die Zeit mit uns gemacht? – Der Winter kommt, der erste Schnee der kommt…
What’s hot
Talk
What’s cold
Sleep
The German word/phrase/verse of the day
Nu komm endlich ma zu Potte!

Pictures

22 Monday Dec 2014

Posted by ReinhardSchaler in Uncategorized

≈ 2 Comments

I was looking through pictures I took since the end of June of last year. There are hundreds of them. One of them would have been enough. One of those roller coaster rides would have been enough.

The fact that we are in Germany and Pádraig is getting the care he is getting is a privilege. But it is a scandal, too. He is separated from his friends and his sisters and family.

When we listen to Irish radio and television these days, we hear about so many people coming home for Christmas. One of the songs that’s always aired is ‘Driving home for Christmas’.

Pádraig is keeping well these days. Slow and steady progress with eating and the capped tracheostomy tube. A few hours in the wheel chair, a short few stroll in the wheelchair on the roof terrace.

There is a lonely plastic tree on the ward.

It almost looks like another one of those hundreds of pictures I should never have taken, when one of them would have been plenty. More than enough for a lifetime.

Solstice

21 Sunday Dec 2014

Posted by ReinhardSchaler in Uncategorized

≈ 1 Comment

Think about it: what do the Dreamboat and today have in common?B2kmKV6CIAAxc1y

Last night we didn’t manage to get into Lütt Mattens in Garding. It was Christmas Song night and it turned out to be so popular that by the time we arrived, it was so packed that there was no way to get in and sit down. Last night was also an extremely stormy and rainy night and we thought that there was no way that, today, we could go for our early morning walk on the beach of the North Sea.

IMG_9812This morning, though, was very different. It was one of the most beautiful Sunday mornings we have seen here during the autumn/winter months. The sun was rising, the sky was blue, the sea roared because of last night’s storm, but the wind had quietened down, and it was just gorgeous.

The point? Probably no need to explain…

Pádraig was keeping well. There is a whole lot of things that he is not able to do, like walking, controlling his body, or walking, giving out, arguing, going out, debating. But he understands what we are telling him. He can eat. He can drink in sips. He can communicate with us, saying yes and no to things, using his tongue. He can, sometimes, lift his arm. He can squeeze our hands. He can hang on to my hand when I left it up. He can let go. He can breathe. He can cough.

We were devastated. Then we were full of hope. Now we are living a new life. An Saol. With you, with his friends, never on our own.

At 23:03 (GMT) today, this year’s winter solstice will take place. From now on, we’ll have longer, brighter days. Good for sailing. Down the stream. On the Dreamboat!

Solstice.

Today’s German Music Tip
Chakuza, Dieser eine Song 
What’s hot
The gorgeous morning after a dark night
What’s cold
Dark nights
The German word/phrase/verse of the day
Du alten Dussel!

Saturday

20 Saturday Dec 2014

Posted by ReinhardSchaler in Uncategorized

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UnknownSaturday. The last weekend before Christmas. This time last year, we had just moved in to the apartment close to the hospital. Smoke alarm testers arriving just after 7am; a ring at the door by the man from the Wohnungsbaugenossenschaft who had just passed by the house and had noted condensation on the window; building work going on in the apartment next door starting at 7am and never ending.

All this seems to be so far away.

In a month, we’ll be moving again. This time not into a ground floor apartment, but into the one on top of a newly built house – with a nice roof terrace of our own and, what’s even better, with a lift Pádraig will be able to use to go out for a walk, onto the street with other people, old and young, dogs, cars, traffic, noise – life.

Unknown1Pádraig has been using the ‘cap’ every day for more than four, almost five hours. If he can manage that for some time and manages ok, we hope that it’ll be easier to remove the tracheostomy at some stage. We also went out onto the roof terrace. It’s a long walk pushing Pádraig down the corridor in his wheelchair, picking up the key at the nurses’ desk on the way, and out into the cold, quite dark, and windy Hamburg afternoons, afternoons that look and feel like nights. It’s great that Pádraig manages to sit in the wheelchair for many hours every day without any bother. Sitting out and moving around a bit must be so much better than lying in bed. It’s not just better for circulation, it must also bring some diversion to these long days in his room.

Today’s German Music Tip
Clueso, Du bleibst (Did I post this ‘tip’ before? I hope I didn’t:)
   Du willst mehr von der Welt seh’n, leb’ deinen Traum. 
What’s hot
Moving
What’s cold
Being stuck anywhere
The German word/phrase/verse of the day
Jez höa mia abba ma gut zu, mein Freund!

Tea

19 Friday Dec 2014

Posted by ReinhardSchaler in Uncategorized

≈ 2 Comments

‘Tea’ is not ‘tea’.

It took me years to understand that.

So when Pádraig was having ‘tea’, he was not actually having ‘tea’ but what I would call ‘Abendessen’.

FullSizeRenderWe had ordered it and it promptly arrived for 6pm. I had never seen anything like it before. The nurse who brought it in said it was Vollkornbrot. Before I passed it on to Pádraig, I decided to taste it because it certainly did not look like anything near bread. Amazingly, it tasted exactly like bread although the texture was utterly different.

So, Pádraig had bread, and I added it to the long and longer becoming list of ‘firsts’!

IMG_9800We re-discovered Santa’s boot that someone sent to Pádraig last year. – Can you help us to find the person who sent it to him? Here’s a picture of it!

Today, Pádraig almost had two hours of music therapy. In the first hour, we sang German, English, and Irish Christmas songs. “Everybody can sing, but not everybody can not sing”, said the music therapist for encouragement. The second hour almost happened but we were on our way to the roof terrace, all rapped up, when the music therapist arrived and we decided that it would be too complicated to get back into Pádraig’s room and take off all the heavy clothing…

Today’s German Music Tip
Udo Lindenberg, Stark wie Zwei – Die rufen gleich an und sagen es war doch nicht wahr…
What’s hot
Bread
What’s cold
Tea 🙂
The German word/phrase/verse of the day
Vertrauen ist gut, Kontrolle ist besser. – Attributed to Lenin who apparently never said this – but something quite similar: “Nicht aufs Wort glauben, aufs strengste prüfen – das ist die Losung der marxistischen Arbeiter.” (Werke, Band 20. Dietz-Verlag Berlin 1971, S. 358)

Santa

18 Thursday Dec 2014

Posted by ReinhardSchaler in Uncategorized

≈ 4 Comments

Tags

hospital gowns, Santa, sweat shirts

Santa came early this year.

Actually, there must be a few Santas out there – sending cards and packages all the way to Hamburg!

IMG_9764One delivered an incredible package with a year’s supply of sweat shirts and t-shirts all really nicely and professionally prepared for wear in a hospital. Really easy in and out, with the back open, but held together at the back with velcro and a tie. It’s so well done, I thought this is something that could be offered as a really great product to people in hospital who are sick and tired of hospital gowns, but can’t yet quite manage to pull t-shirts or sweat shirts over their head and over both of their arms.

FullSizeRender2Another package arrived with the ugliest reindeer I’ve ever seen on a card and on it, it just mentions a K.K.!? Together with that card (judge for yourself, it just proves that you cannot argue about taste:), there were some nice little pressies together with the coolest pair of sunglasses on the block, ready for the white glare on North Pole’s ice cap.FullSizeRender

When we were leaving tonight, Pádraig had been ‘capped’ for around seven hours, not breathing through the tracheostomy at all, but breathing in and out through his mouth and nose – all that while he was eating, ‘drinking’ (using a spoon), cycling, and being transferred between bed and wheelchair. All that time, he was relaxed with all the ‘vital signs’ in great shape. We took the cap off before we left as a precautionary thing – but if someone had staid with him for the night, just to be sure, he would have had no problem staying on it.

So, in our mind – this tracheostomy should be removed, at least that should be tried, and we’ll be working towards that!

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