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~ Acquired Brain Injury (ABI): from the acute hospital to early rehabilitation – more on: www.CaringforPadraig.org and www.ansaol.ie

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Tag Archives: padraig

Spaghetti

03 Monday Aug 2015

Posted by ReinhardSchaler in Uncategorized

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Tags

Hamburg, padraig, Pforzheim, Spaghetti

Spaghetti with tomato sauce seems to be the food Pádraig likes best at the moment, not the stuff from a jar, but home made. Ok, we cut the spaghetti into small pieces, and mashed it just a little bit, but it’s spaghetti, the same we would have a few hours later. It’s slow eating, it’s small quantities, but it’s ‘normal’ food. Who would have thought!

We’re also just back from a long walk along the Wandse at 30oC. The summer smells, the crickets in the grass, it almost felt like the south of France or Spain.

Today, we told the carer and Pádraig’s physio and logo that we will go to Pforzheim in just under two weeks. It’ll be a six weeks stay. A change of environment, “Tapetenwechsel”. Also, a very intense and focussed time of therapy with up to five hours a day.

It’ll be a great opportunity not just for Pádraig, but also for myself to learn about how such a therapy centre works and the kind of therapy given. Usually, they would allocate two therapists to a client such as Pádraig, in our case I will be one of the two to keep the costs down.

It’s one of the most wonderful and beautiful nights in Hamburg. Warm, with a light wind. Perfect.

I’m afraid to leave this behind. Who would have thought that we were going to live almost two years in Hamburg. In Duhlsberg. In Tonndorf. It’s all moving so fast. So slow. So unpredictable. So scary. So Into the Wild.

I never want to leave here. I want to leave straight away. I know that all here would be working our for Pádraig, that there is a system that would always look out after him. I know that his friends are in Dublin that our friends and family are there being not a substitute for but far better than any system I could imagine.

We’ve less than two weeks to go to Pforzheim. Hamburg-time is coming to an end for the time being. What will the future hold?

Today’s German Music Tip
Westernhagen, Wieder hier, Ich rieche den Dreck, ich atme tief ein, und dann bin ich mir sicher wieder zuhause zu sein.
What’s hot
Tapetenwechsel
What’s cold
No music, no dance
The German word/phrase/verse of the day
Das krieg’n wir schon hin!

An  Saol 
Living your life with severe acquired brain injuryAn Saol

Ultraleicht

11 Saturday Jul 2015

Posted by ReinhardSchaler in Uncategorized

≈ 3 Comments

Tags

Lidl, padraig, Ultraleicht

German supermarkets really have he ear on the ground. They know exactly what consumers always wanted but hadn’t realised how much. Some ‘extra’ stuff. Real easy, ultraleicht. Remember that light that if you switched it on inside your living room made it look from the outside as if you were watching the telly?

We brought Pádraig’s friend who had arrived for a surprise visit to the train station today and went for a long walk afterwards.

As we passed by Lidl we decided to get a few things for the weekend. At the end, it was so much that we couldn’t possibly carry it. So we hang bags on different sides of Pádraig’s wheelchair, trying hard not to get it out of balance.

‘Stuff’ always appears first in Germany before it hits the Irish Lidl shelves. So here is a sneak preview of what to expect over the coming weeks. And yes, it’s bizarre, quiet breathtaking and even stranger than that light that imitates a telly.

First up is the most normal of the three items I wanted to share with you. It’s a waffle maker that makes waffles in the shape of different animals: from giraffes to elephants. Get one and make your kids happy.

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Next up is a set of gypsum bandages coming with a tub of vaseline. This ingenious set allows you to take an imprint of the upper front of your body to remember forever what it looked like when you were pregnant. I thought, here’s a real opportunity for Weight Watchers to do the ‘before’ and ‘after’ thing.’ What do you think?

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I kept the best for last. It’s the brand new EMS PO-TRAINER “SEM 70”. It comes with 4 electrodes together with self-adhesive gel-films. It has 15 different settings. It is really thin, so you can even wear it underneath your clothes! In in case you were worried, it automatically switches itself off!! No, I’m not making this up. No! Buy it and save 62%! You won’t get this chance again any time soon. A PO-TRAINER for just €12.99!!!

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I am thinking to get a slot at the Laughter Lounge and just read out of Lidl’s latest special offers’ brochure. I’d say people would be in stitches, wouldn’t you?

Some of you might remember the title of Der Spiegel from some months ago showing this young couple asking themselves “Wohin mit den Geld?”, what to do with all that money? Lidl management must have read that story. Most definitely. They must have. Ultraleicht.

We always started to eat something on the way back home from the supermarket – we were trying to make that a banana, or an apple. Of course, that didn’t always work out. We picked up on this ‘tradition’ today. So, while we were walking back towards the apartment, Pádraig started to eat some of the sweet stuff we had bought. We were doing real ‘normal’ things, I thought. Real normal, everyday things. How different that felt.

Here’s ultraleicht people stuff, instead of ultraleicht consumer stuff.

Today’s German Music Tip
Andreas Bourani, Ultraleicht. “Mit Dir fühl ich mich ultraleicht…”
What’s hot
Ultraleicht.
What’s cold
Blind consumerism
The German word/phrase/verse of the day
EMS-Technologie: elektronische Muskelstimulation der Gesäßmuskeln

An  Saol  Live your Life , An Saol eileAn Saol

Warhol

28 Sunday Jun 2015

Posted by ReinhardSchaler in Uncategorized

≈ Leave a comment

Tags

food friends, friends, padraig

What a work of Art!

From the poster to the food to the raffle and painting to the music and the magic in the air. Pure Pop Art!

Well, I’m still not quite sure what happened over the past few days….

I went over to Dublin for the NCT (which the car failed because of a badly fitted bulb). There was an extra day and a half I had which, for a change, had not been ‘verplant’. Then I met neighbours, builders, friends and before I knew it the few days were over.

Graphic by Eoin 'Warhol' Mac Giolla

Graphic by Eoin ‘Warhol’ Mac Giolla

For the first time, I was fortunate enough to be in Dublin for one of the great events Pádraig’s friends had organised. FeileSchaler was a fantastic night – and I had to leave around midnight when the music was about to kick-off. The work, the preparation, the enthusiasm and creativity that went into this was incredible: from the contribution by several supermarkets (hundreds of burgers, sausages, and meat), to the fabulous food friends brought along, to items for the raffle (still think that the raffle itself was a bit of a fix:), the paintings for Pádraig, and the music. There were amazing stories of random acts of kindness and support from people who don’t even know Pádraig.

Thanks to Niamh Ní Chróinín for this fantastic picture!
Thanks to Niamh Ní Chróinín for this fantastic picture!
Message in a bottle at the Conradh
Message in a bottle at the Conradh
Sausages and burger en masse
Sausages and burger en masse
The sign from the opening of the Dreamboater video
The sign from the opening of the Dreamboater video

What was particularly nice was that I met friends I had been in touch with via the blog but had never met in person, as well as so many of Pádraig’s brilliant young friends who have been in touch with us either via notices, mail, letters, or in person.

It was a fantastic way to start the holiday season, to meet up before people start to disappear into the four corners of the world. How Pádraig would have liked to have been there. Thank you to all involved in the organisation, all who contributed, and who came on the night!

Back in Hamburg today where temperatures will rise about 30o in the coming week. (Germans do believe in the accuracy of weather reports:) We went our for walk down to the Wandse. While I had been away, his wheelchair had been adjusted and a few parts had been replaced to make the chair fit better – it worked out so well and the chair fit Pádraig so much better now that going for a walk is a pleasure.

The good news is: the autumn is not really that far away (alright,… don’t think about it if you’re just about to go on holidays…)  and time will fly. It’ll be no time until Pádraig will be back in town. On his pop art Dreamboat:)

Unbekannt

28 Saturday Mar 2015

Posted by ReinhardSchaler in Uncategorized

≈ 1 Comment

Tags

Cathal Murray, padraig

Unknown. Unbekannt.

No one here in Hamburg knows Pádraig from before the accident. People here are meeting him for the very first time and in the state he is in. They have no idea who they are dealing with. Therefor, each time we come across a new person, I make an effort explaining to them who Pádraig is, what happened to him, and why he will recover from his catastrophic injuries.

There’s no place like hospital, where we meet so many new people every day that telling Pádraig’s story has almost become a reflex.

Imagine that there are people who wonder whether Pádraig has always been ‘like this’.

On the other hand, there are the visitors from Ireland hoping to find the Pádraig they know from before the accident.

I think that neither of the two manages to fully enjoy the company of the ‘real’ Pádraig yet, the person that has suffered and is now recovering from the consequences of this enormous hit against his head. – 

This morning, Pádraig and I woke up to the terrific music shared by Cathal Murray on his weekly Irish Radio programme, The Weekend on One. And guess what?

Just after 6am Irish time, Cathal dedicated a terrific new song by Sufjan Stevens “Should Have Known Better” to Pádraig – and made his day!

https://hospi-tales.com/wp-content/uploads/2015/03/150328-weekend-on-one.wav

Screen Shot 2015-03-28 at 20.41.42

 

Spuds

23 Monday Feb 2015

Posted by ReinhardSchaler in Uncategorized

≈ 4 Comments

Tags

mashed potato, padraig, potato blight

What do you think, when you hear that word: spuds?

Childhood dinners with potatoes, vegetables and meat in the pre-pasta and pre-jasmine-rice days?

The potato blight, famine, emigration?

Home??

We decided to start experimenting with ordinary food and see how Pádraig would take it. Today was potato day. For the first time, and this was really exciting, Pádraig did what the speech therapist has been practising with him, but he did it in a ‘real-life’ situation: he moved his tongue around his mouth to look for this sticky bit of mashed potato, mixed with some fresh broccoli. He did this really really well. Yoghurt is easy. Mashed apple (Apfelmus) is easy. Mashed potato is difficult. And he managed really well. It’s still a bit boring and simple, the menu – but if we keep going like this, we’ll get to more interesting stuff soon. Food is so important, not just for nutrition, but also for taste, texture, awareness.


I said ‘good-bye’ to the old apartment in Forbacherstraße over the weekend, cleaning up the remainder of what we had left behind and getting it ready for the hand-over and the Wohnungsgenossenschaftsübergabeprotokoll which we will have to fill in. It was a sad ‘good-bye’. It made me think of the time, in December of 2013, 2013!, when we were wondering whether it was worthwhile renting an apartment near the Schön-Klinik. When we thought, well, a couple of months and all will be different. When we thought of a fast recovery, with the right treatment and care.

The hope is still there. There has been, in the grand scheme of things, significant progress. But it also has been a lesson in humility, in learning to accept life in all of its different shades and colours.

Pádraig now lives with us. There are a number of things that will need to be sorted and for which he will need to go on short hospital visits. He is getting stronger, much more alert, he is communicating better, there haven’t been any significant infections. And the tracheostomy is gone! I am imagining our life together once the ‘dust’ has settled. And sometimes, some times I feel we’ll have unbelievable fun together, with him, with you: dreamboaters, wanderers, explorers, friends.

PS: Anymore people spotted running anywhere aimlessly? Just a bit more than two months to go to the Hamburg Marathon!

 

Days

16 Friday Jan 2015

Posted by ReinhardSchaler in ABI and early intensive neuro rehab

≈ 7 Comments

Tags

Aer Lingus, exciting day, Hamburg Airport, padraig

UnknownDays are different. Some are good, some are bad. Some are sunny, some are rainy. Some are busy, some are relaxed. Some are exciting, some are boring. (All are dangerous.)

Today I had a good, sunny, busy, and exciting day.

One of Pádraig’s friends who is here to visit was happy to give us a hand to move our stuff from the old apartment to the new apartment, while the other friend also on visit stayed with Pádraig and read out stories for him. At the end, we were running through Terminal 1 in Hamburg Airport to find the Aer Lingus check-in desk, just 5 minutes before closing time. We had not planned it that way, but we are so grateful they were here and were so kind to offer their help!

imagesWhen we arrived in Hamburg 14 months ago we had a bag each. Today, our stuff just about fitted into this van we had rented for the move. It brought back memories of IKEA flat packs (Lebst Du schon oder schraubst Du noch?) in the tiny Picanto and hours of trying to make millions of screws, dowels, and pieces of wood fit together.

“Noch dreimal Schlafen” my mother would have told me when I was small (the older you get the better your memory of the time you were young becomes).

Noch dreimal Schlafen and live will take another big turn. For Pádraig.

It will be a good, sunny, busy, and exciting day. For Pádraig and for all of us.

(I’m sitting beside Pádraig, with Pat on the other side of the bed, the window is wide open, and we’re relaxing and listening to the beautiful CD his friends brought for Pádraig, “Paper Clips”.)

Raus

08 Thursday Jan 2015

Posted by ReinhardSchaler in Uncategorized

≈ 6 Comments

Tags

padraig, plastic bags

In a Dream. Boat.

Pádraig is still going strong. With the hole in his neck closed.

When I went to pack Pádraig’s stuff today, I went to his room. I opened the door and found the room empty.

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IMG_0061

I asked and no-one knew. Then I found his wheelchair covered by a large plastic sheet. On the chair were, in plastic bags, held together by some ties, his possessions. What an end to so many months. There was no good-byes, except with one nurse. I did get an opportunity to say thank you and good bye to the people that helped and supported us and Pádraig for more than a year. It felt a bit like an eviction

Tonight, we’re back in the UKE, bunking in Pádraig’s room. It’s quiet.

Tomorrow morning, we’ll have a meeting with doctors to plan Pádraig’s release from hospital.

Oh – thank you, Colm and KILA for sending what looks like an excellent CD. Couldn’t listen to it yet, but it looks fantastic!

561

05 Monday Jan 2015

Posted by ReinhardSchaler in Uncategorized

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Tags

padraig, Pushing Pádraig

UnknownYou wouldn’t believe how confused I feel at times. For all sorts of different reasons.

Imagine. For more than a year spending the best part of the day under a blue-ish apron, behind a large face mask that just about allows you to breathe, and putting on semi-sterile gloves on several times a day. Almost all of the time in one single room with one or two, on occasions some more, other people. Not allowed to go for a walk, except down this ginormous corridor towards the tiny roof garden with its thirteen steps in each direction. Pushing Pádraig in his wheelchair up and down, changing the direction of the ‘turn’ at the end of the thirteen steps so that neither him nor yourself gets dizzy from turning and turning and turning around in the same direction.

Unknown1Imagine. Being in Hamburg. Working with people around the world. Listening to Irish news. Having to think about which language to talk in to people.

Imagine. Making choices so hard, they make you cry. When you ask yourself: what am I doing? Why am I not doing only and absolutely definitely nothing else than the important ‘stuff’ and in a moment getting all mixed about about what is important.

561 was the headline figure on tonight’s Irish news. It’s the record number of people on trolleys today, a day that nurses threaten to go on strike because hospitals have become so unsafe that 70 year olds spent nights on trolleys with some of the patients just falling off their trolleys.

Turns out that Dr Tony O’Connell, director of acute hospitals with direct responsibility for trolley waits, has resigned his post after less than nine months and is planning to return to his native Australia, apparently because his wife got a good job there. Hhhmmm.

561 in a country with a population the size of a large city in the developed world.

If that wasn’t bad enough. The next piece of news was the Minister of Finance saying that he is planning to lower tax.

I don’t get it. Something somewhere here is fundamentally wrong.

Pádraig’s discharge from the Schön-Klinik is taking shape. There will be a number of meetings this week to plan the details.

imagesWednesday, of course, will be the day of his trip to the UKE’s outpatient’s department to assess his tracheostomy or better: to assess the chances of success of a removal of his tracheostomy. In the meantime, we keep practicing. In the mean time, Pádraig is making huge efforts to convert each ‘first’, each ‘personal best’ or ‘PB’, from the exceptional to the every-day achievement.

We’re playing the Dreamboat to him. We’re travelling down this stream together with the other Dreamboaters. We’ll get there. This boat will swim!

Heiligabend

24 Wednesday Dec 2014

Posted by ReinhardSchaler in Uncategorized

≈ 6 Comments

Tags

Christmas Eve, Hamburg, padraig, Pope Francis

Who would ever have thought? A second Christmas Eve in our apartment in Hamburg. A second Christmas Eve with Pádraig in the Schön-Klinik. That certainly was not the plan a year ago…

Do you make plans?

Did you hear about Pope Francis’ list of 15 Ailments of the Curia delivered in his Christmas address? I had a look at them and have promised myself to read it again with more time. This is a list not just for the curia, this is a list for us normal mortals too.

Number 4 caught my attention:

Planning too much. “Preparing things well is necessary, but don’t fall into the temptation of trying to close or direct the freedom of the Holy Spirit, which is bigger and more generous than any human plan.”

It’s another way of expressing what many people on earth, of different beliefs, believe: that our plans never take us very far.

At the same time, an inability to plan, for whatever reason, is probably one of the biggest stress factors, one that is so stressful, that it can be torture-like.

IMG_9872From mid-day today to Saturday, Germany will close down. They will briefly open on Saturday morning, and then close again for Sunday. A lot of Irish people on panic stations on Christmas Day because some essentials are missing (“What do you mean? – There were no batteries with it???!!”), running out of food on Stephen’s Day (although that is unlikely – usually the turkey and ham last for a week to finally end up on sandwiches), or nervous to exchange their unwanted gifts and get the best items on Stephen’s Day Sales, a lot of them would not understand this. I have heard of Irish people on motorways trying to find the next airport or open garage to buy bread and milk on Sundays, never mind Christmas.

IMG_9873We will have a few days together here in Hamburg. Apart from not sitting in front of an open fire with the Christmas tree and crib in the corner. Apart from not being with our our Irish family, and so far away from all of Pádraig’s friends. Apart from this, we are lucky. Lucky to be together, with Pádraig. Of course, there is much we hope for – and Christmas is the time when we are full of hope for things to come. Amazing things. Things we would never have anticipated.

Padraig is doing well, he has improved so much over the past year, there is nothing stopping him now. And we, you, all of us, will support him every step of the way.

Despite of what Pope Francis’ #4 says, I’m making a plan. And I’m making it for Pádraig too. Let’s get onto the Dreamboat!

Island

14 Sunday Dec 2014

Posted by ReinhardSchaler in Uncategorized

≈ 5 Comments

Tags

John Donne, Kieran Hanrahan, No man is an island, padraig

photoTwo eyes open and a big smile. Pádraig enjoyed that phone call from his aunt and sister today. The bit with the second eye open doesn’t happen that often; it hadn’t happen for a while…

I suppose John Donne wrote ‘No man is an island’ because, at least at some stage, that’s what he felt like. It became such a famous poem and even a saying because there are so many people who can identify with it. Have you ever felt like an island, entire of yourself, and not part of a continent?

Life is such a strange thing. On one hand: at the end of the day, it’s always just you. On the other hand: we only exist in community. And we swing back and forth between these two extremes. Love is like that. Family is like that. Friends are like that.

Pádraig had a good day today. We started to try out lunch. Ok, it was vegetables and a bit of chicken, pureed, though not like mash, with small bits and pieces. I was worried because when we had tried that before, some weeks ago, it didn’t really worked. Today, Pádraig almost finished the content of a small jar. It was really, really good. He was eating it well, ‘chewing’ it a bit, and swallowing really well. We went out onto the roof terrace. Twelve steps. In each direction. Up and down. Today, with a bit of day light, as the sun was disappearing on the horizon. You can see the horizon from the 5th floor. You can hear the train in the distance. A dog barking somewhere down below, amongst the trees.

Not that I knew, but this must be like what prison feels. Twelve steps up. Twelve steps down. For about 30 minutes. Listening to sounds somewhere in the distance that, for whatever reason, you can’t get closer to you. When was the last time that he was close to a dog, a train, a child, …?

No man is an island.

I hope you were listening to Céili House on RTÉ Radio 1 last night, with Kieran Hanrahan! It was listeners’ choice last night and Kieran played ‘Dreamboat’ from ‘Amhrán do Pádraig’, reminding his listeners that ‘Schaler’ had been on the programme some years ago. (They actually found that programme in the archives and are sending it over to us! – Thank you so much!)

We have been listening to Céili House for years on Saturday nights in a small cottage in Leitrim, in what Pádraig called ‘the middle of nowhere’. It’s the kind of programme that really and absolutely completely relaxes you, makes you feel at home straight away, and requires an open fireplace, with wood and turf glowing and slowly burning away.

No man is an island.

In case you missed it last night, here is the link to the full programme. And here is the link, if you just wanted to listen to Kieran’s lovely introduction at the beginning, the song itself, and then Kieran’s really nice remarks after he had played the song.

https://hospi-tales.com/wp-content/uploads/2014/12/audio-10.wav

In the end, we’re all involved in mankind. We are in this together. Which is what gives us the strength to get through the difficult times. Which is what gives us this immense happiness in good times. Whatever happens, and no matter to whom it happens, it always happens to us. That is why we care. No playing politics. No return on investment. No profits. No country for profit. No giant tax free zone for multinationals. No tax cuts to buy votes. No man is an island.

We care. Because we never send to know for whom the bell tolls; it tolls for me, for you, for your brother and for your sister, for your mother and for your father, for your partner and for your friend. Dreamboaters. Together. For each other.

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