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~ Acquired Brain Injury (ABI): from the acute hospital to early rehabilitation – more on: www.CaringforPadraig.org and www.ansaol.ie

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Category Archives: ABI and early intensive neuro rehab

Absolutely Sweet Marie

19 Sunday Apr 2026

Posted by ReinhardSchaler in ABI and early intensive neuro rehab, EarlyNeuroRehab, NeuroRehab, Uncategorized

≈ 3 Comments

To live outside the law you must be honest.
Bob Dylan

A mother came to An Saol last week because her son in his early 20s had suffered a severe brain injury and she wanted him to attend our service.

Following his accident, he had spent time in Connolly Hospital, in Beaumont Hospital, in the National Rehabilitation Hospital, NRH, and Peamount. His mother wasn’t given much hope. The prognosis she was given for her son was bleak.

She came to An Saol because her father had heard from a friend about Pádraig’s story and the An Saol Foundation Centre – not because anybody in any of the almost half a dozen of hospitals her son had spent time in had told her about An Saol.

No doubt, the people she dealt with in those hospitals knew about An Saol. No doubt, there is no alternative service for him in the country – unless you wanted to go for a service focusing on disability management and palliative care.

You might think I made this story up. I didn’t. Honestly. It’s a true story. And not the first one of its kind.

Oh, where are you tonight, sweet Marie?


Bob started to record Absolutely Sweet Mary at 1am on 08 March 1966 in Nashville. There was a rehearsal, a complete Take 1, a false start, a complete Take 2, and the recording of part of the song (“insert”). He finished at 4am.

Take 1 of the song was published on The Bootleg Series Vol. 12: The Cutting Edge 1965–1966 in 2015. Take 2 was published on his seventh studio album Blonde on Blonde, on 20 June 1966.

Listening back to the recordings today you wonder how he came up with these lyrics. One critic called it “probably the most unconventional of the Blonde on Blonde songs”. Dylan himself said that “these aren’t contrived images. These are images which are just in there and have got to come out”.

Then again, he probably was in a very different place that night on the 8th of March. A place not many of us ever got to.

Six white horses that you did promise
Were fin’lly delivered down to the penitentiary

I got the fever down in my pockets
The Persian drunkard, he follows me

That a man can’t give his address out to bad company
And now I stand here lookin’ at your yellow railroad
In the ruins of your balcony

I waited for you inside of the frozen traffic

Riverboat captain, he knows my fate

And then he asks again and again: where are you tonight, sweet Marie?


One of the most famous, full of magic, lines of the song is: To live outside the law you must be honest.

A line that means different things to different people. Some try to take it almost literally. Some in a more transcendent way. For me, it’s biblical.

So I would go with a more transcendent interpretation. And I would apply the same to the question he asks throughout the song: Where are you tonight, sweet Marie?

Sometimes, governments, main stream society with its established believes, the righteous people, those inside the law – they are not necessarily always the honest ones, the keepers of the truth. Sometimes, it’s the “outlaws”, those on the margins of society, the rejected, the non-compliant, you can trust because they are the ones with integrity, they are the trustworthy, the honest, with no fear to tell the truth, to push boundaries. Not 2,000 years ago. And not now.


You cannot affect change if you continue in the old ways.

Pádraig continues to amaze and encourage those around him. He never gives up. He always makes an enormous effort. He always is kind. How he keeps his good humour in the midst of incredible challenges is a mystery to me.

While standing, he now manages to lift up his head, with very little or no help, and he turns it around.

He manages to wash his face and hands.

There is no clinical assessment I am aware of that would measure these kinds of mind-blowing improvements, which bring him incredibly encouraging levels of independence which he is constantly expanding.

They are a game changer. No just for him. Or us. But also for those who, within 72 hours, strongly suggest to, and in many cases do, take life or death decisions for people like Pádraig when they have suffered a severe brain injury. – This group of professionals just has to open up. Listen instead of talking. Observe instead of assuming. Learn instead of knowing everything already. Doubt at times instead of always being so certain.

Six white horses that you did promise
Were fin’lly delivered down to the penitentiary

I waited for you inside of the frozen traffic

Riverboat captain, he knows my fate

In the words of Katherine Hepburn, “if you obey all the rules, you miss all the fun.” 

In my own words: “if you follow existing rules, you and those you care for could miss out on opportunities. Worst case: people can, unnecessarily, die.”

To live outside the law you must be honest.

Oh, where are you tonight, sweet Marie?

PS 1: Listen back to Kevin Leonard, father of Hannah who suffered a sABI in Italy about §8 months ago, talking to the Today with David McCullagh programme on RTÉ Radio One last week, about how the DIY SOS team will help his family bring their daughter home two years after her devastating accident.

Correct. She will be able to go home because of a TV Show and its generous supporters.

PS 2: Watch Jacinta McElligott, clinical director at the National Rehabilitation Hospital, NRH, talking on RTÉ Prime Time on 14 April 2026 about the effects of Road Traffic Accidents.

Dr McElliggott treated many of the clients of the An Saol Foundation. She is now the Clinical Director of the NRH, following the retirement of Dr Mark Delargy.


Days

16 Friday Jan 2015

Posted by ReinhardSchaler in ABI and early intensive neuro rehab

≈ 7 Comments

Tags

Aer Lingus, exciting day, Hamburg Airport, padraig

UnknownDays are different. Some are good, some are bad. Some are sunny, some are rainy. Some are busy, some are relaxed. Some are exciting, some are boring. (All are dangerous.)

Today I had a good, sunny, busy, and exciting day.

One of Pádraig’s friends who is here to visit was happy to give us a hand to move our stuff from the old apartment to the new apartment, while the other friend also on visit stayed with Pádraig and read out stories for him. At the end, we were running through Terminal 1 in Hamburg Airport to find the Aer Lingus check-in desk, just 5 minutes before closing time. We had not planned it that way, but we are so grateful they were here and were so kind to offer their help!

imagesWhen we arrived in Hamburg 14 months ago we had a bag each. Today, our stuff just about fitted into this van we had rented for the move. It brought back memories of IKEA flat packs (Lebst Du schon oder schraubst Du noch?) in the tiny Picanto and hours of trying to make millions of screws, dowels, and pieces of wood fit together.

“Noch dreimal Schlafen” my mother would have told me when I was small (the older you get the better your memory of the time you were young becomes).

Noch dreimal Schlafen and live will take another big turn. For Pádraig.

It will be a good, sunny, busy, and exciting day. For Pádraig and for all of us.

(I’m sitting beside Pádraig, with Pat on the other side of the bed, the window is wide open, and we’re relaxing and listening to the beautiful CD his friends brought for Pádraig, “Paper Clips”.)

Nikolaus

06 Saturday Dec 2014

Posted by ReinhardSchaler in ABI and early intensive neuro rehab, EarlyNeuroRehab, Hamburg, Uncategorized

≈ 2 Comments

Tags

baby Jesus, Coca Cola, Heiliger Nikolaus, Martin Luther, Sant Claus, Santa Claus

It’s all Martin Luther’s fault. Really. He decided that we should live without saints. Imagine. So he decided to move away from the Heiliger Nikolaus as the one that brought the presents and make that the job of the “Christkind”, baby Jesus, instead. And, apparently, when the Dutch went to the newly discovered continent across the big water, they brought Sinterklaas with them. After a while, he became Santa Claus. And we all know how Coca-Cola transformed him into this big guy in a ridiculous red dress and a white beard.

Today, we used the ‘blue cap’ to close Pádraig’s tracheostomy/cannula completely. He managed really well over several hours. We only put the ‘speech valve’-type top back on before we left in the evening. The fact that he can breath sufficiently well despite the cannula in his trachea, when the cannula is closed off, in my mind doesn’t leave any doubt that he could breath without it in his throat – and probably much better, because he would not have this constant irritation and, in effect, narrowing of his respiratory tract. We’ll keep at it. At least it would be worthwhile to try and see how he would manage without the tracheostomy.

And, with the ‘blue cap’, he finished a full yoghurt.

In the spirit of Advent and Sant Claus, multi-culturalism, and the idea of ‘otherness’, here is an ad from a Hamburg mainstream newspaper advertising the “Große Adventsaktion” during the weekends in Advent.

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Whatever it is, it’s not an add for your traditional German “Weihnachtsmarkt”!

Today’s German Music Tip
G. F. Händel, Tochter Zion – if you want to practice German Christmas songs, here is one, with subtitles:)
What’s hot
Nikolaus
What’s cold
Coca Cola’s Santa Claus
The German word/phrase/verse of the day
Wer gutes tun will, muss es verschwenderisch tun. (Martin Luther)

TheGoodNews

18 Tuesday Nov 2014

Posted by ReinhardSchaler in ABI and early intensive neuro rehab, EarlyNeuroRehab, Hamburg

≈ Leave a comment

You know, sometimes someone asks me ‘what did you write about last night?’ The truth is, in most cases, that I don’t remember. I don’t think it’s old age, but can’t exactly say why it is that almost the moment I finish writing this, it’s gone, disappeared from my memory. It’s like a half dream (remember the early morning half dream?), but a late night half dream. They are even more difficult to hang on to and to remember.

A few things happened today. We got the papers ready to register An Saol as a nonprofit charity. With a bit of luck, the paperwork should be filed with the CRO this Friday. Didn’t hear about the apartment yet.

On the corridor today, Pádraig’s doctor told me that he will be transferred tomorrow week to the UKE and be operated on Thursday. It’s good to have a bit of notice. It’s also good to get this done before December. Hopefully, this will be his last big operation, and the New Year will truly be a year of new beginnings.

Just thought about the idea of ‘good news’. Although sometimes I wonder whether the world isn’t just one big disaster with seriously limited people on the helm – by how many trillion did the G20 announce will they grow the world economy, already functioning mostly on loans and borrowing? – I have realised that every day, there are good news all around us. It’s the stuff that those songs are all about, trying to give you hope, trying to keep you upbeat, trying to make you see the ordinary things every day that are so incredibly beautiful: nature, the sun and the moon, and, first and foremost, people.

And it does not matter whether they are healthy or whether they are sick. Whether they are independent or wether they need our help.

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http://www.amhrandophadraig.com

Fair

27 Saturday Sep 2014

Posted by ReinhardSchaler in ABI and early intensive neuro rehab, EarlyNeuroRehab, Hamburg, Uncategorized

≈ Leave a comment

Yesterday at lunch time, I thought I wouldn’t go. Last night I still had my doubts. But then, late at night, we decided that I would get up at 4:45 and get that train to Düsseldorf to visit REHAB-CARE, according to the organisers the world’s largest fair on rehabilitation. So I went, a bit reluctantly.

German trains being what they are, fast and reliable (mostly), I got there so early that the fair was still closed. You could see what was going on even at the central station, and certainly on the tram going out to the congress center where the fair was taking place. I had not see as many wheelchairs in one place in my life.

There were long queues at the entrance and when the gates opened hundreds of people poured into the six huge exhibition halls. It was incredible. Everything from electronic eye trackers to bathroom equipment, from architects and specialised builders, to car conversion engineers, from accounting software to rehab furniture, from facilities to interest groups, stand-up beds, stand-up wheelchairs, racing wheelchairs, holiday homes and boats for people who need special furniture and access – you name it.

Here is a short video of just one corner of one hall to give you an idea of what I am talking about.

IMG_9036

IMG_9036

In between, I was talking to Pat who had staid back with Pádraig. He has been doing ok and has almost recovered from whatever happened to him yesterday. He is still in the hospital’s main ICU, most likely because they don’t move people around the hospital over the weekend, unless they really have to. He’s ok in the ICU but it’s deja vu all over again. Staff don’t know him (so they suction him for no reason, just because they do), they don’t know us so some are quite officious, play it all by the book, don’t account for the fact that we have been there for the best part of a year. What can you do? – Hopefully, it’ll be back to 2L on Monday morning.

I’ve put together a few pictures from today. The first one has nothing got to do with the fair, it’s of the main door of Starbuck’s in Düsseldorf’s Central Train Station. It’s really funny: they don’t really open, except for one day a week (!) – but then really long hours, as one coffee-seeking by-passer remarked.

photo 1

Here is a small selection of the incredible amount and variety of stuff available. Cars, wheelchairs, gadgets. There doesn’t seem to be anything, good German engineering wouldn’t be able to make.

The star of the show
In case you prefer it limo-like
Something more along our line: a really nice camper van

An automatic wheelchair dock for a car,
A bed that turns into a seat.
A wheelchair that turns into a stand-up aid.

A wheelchair for the bathroom
A wheelchair for having fun, up in the air!
Feel what it’d be like with a prothesis.

Getting home really late. Tired. Loads of ideas and impressions. An Saol, here we come! Can’t wait to see Pádraig tomorrow!

Tanzfieber

19 Tuesday Nov 2013

Posted by ReinhardSchaler in ABI and early intensive neuro rehab

≈ 3 Comments

Tags

Tanzfieber

Today Maria and I left early for Hamburg. The senior doctor in the Schön-Klinik had made a special arrangement for her to see Pádraig at 1pm, two hours prior to the start of the official visiting time at 3pm, as she had to leave for the airport at 2pm. (Yes, it is and doesn’t just sound complicated.) For the first 45 minutes, traffic was like every other day: pretty light. Once we hit the A23 motorway at Heide, we thought we were doing fine. There are two long road works on this motorway, with an expected completion date of summer 2015! We had just driven into the first road works when traffic stopped. Completely. A car had broken down, apparently, blocking the one lane available to traffic. When we got going again, we knew we had to go directly to the airport. We had to skip Maria’s visit to the hospital. I told Pádraig about the traffic jam, and that Maria would be back soon. I am sure he understood.

Some more small details that make a hospital stay different here: we were used to bring in Pádraig’s own mouth cleaning ‘sticks’ (we bought them in our local pharmacy, and

It gets very dark very early in Hamburg - the Schön-Klinik in the afternoon.

It gets very dark very early in Hamburg – the Schön-Klinik in the afternoon.

the nurses told us they were brilliant); deodorant (remember: 6 very sick people in one relatively small room, not always well aired?); cream to keep his skin in good condition; and other sundry ‘stuff’. Here, they have their own mouth hygiene sets in the hospital (even with little ‘hovers’ attached to prevent liquids going down the throat); there are no aerosol sprays and there is not need to cover up bad odours (there are none); and they have sets of different creams for his lips and his skin. In the Irish hospital, the tube  carrying oxygen and going into his throat was protected by a blue-coloured open half-moon-shape-like semi-cover; here the tube is closed and covered by an air filter: dust and bacteria would have a hard time getting into his lungs through that filter. The senior doctor consulted with the hospital’s dentist to organize a tooth guard as he is still grinding his teeth at times. (This was looked at previously as just another potential ‘collateral’ damage that could be dealt with later.)

To keep Pádraig in touch with Ireland, I play (Irish) music to him – I am under strict instructions not to play my music. (What is wrong with my music?) So I played music from a CD a very good friend had brought in some months ago: Bí Ann by Kila, Tír na nÓg, A-Team, Hall of Fame,… by the time we reached Mexico (as Gaeilge) by Mundi he was sweating, his heart rate was up, …and something or someone had moved the gadget on his finger measuring his oxygen saturation – which made several alarm bells go off all over the place: the system thought Pádraig’s oxygen had suddenly gone down from 96% (normal) to less than 80% (not good). The nurse came running into his room in a panic – by which time I had corrected the ‘error’ (and switched off the music). She took it quite well, I thought, and checked his other markers, since she was there now anyway. When she said that she didn’t like his temperature (just over 35o), I confessed that we had been listening to some music, and that I thought it had been the music that had brought up his heart beat and also probably his temperature: She looked at us, smiled, and said: must be ‘Tanzfieber’ then.

What’s hot
German music tip: Herbert Grönemeyer, Männer (1984) [He of Wolfgang Petersen’s movie Das Boot. A bit like a response to Ina Deter:)].
The coffee offered today by Pádraig’s student nurse.
Kilometres we have driven to-date (since Wed., 13 Nov): 1,647
What’s cold
Petrol prices – they ‘swing’ by 10 cent within one day.
Stacks of letters from the insurance company.
Traffic jams on the A23.
The German word of the day
Tanzfieber

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