Delicate (T)Issues

The most amazing event in the most amazing venue organised by the most amazing people, tonight brought together people affected by suicide, acquired brain injury and both. For the first time ever in Ireland.

To me, it was like the beginning of a new era, a new movement that would shake things up. And it came from people who had decided that something needed to be done and they did it. That simple. There were no committees, no big inter-organisational meetings, no board, no signed agreements. They just did what they felt needed to be done. It was like a breadth of really really fresh air.

Thank you to the Breslin Family and their Friends who organised this incredible night in support of Pieta House, ABI Ireland, and the An Saol Foundation! Thank you to all who joined us tonight and made this a night to remember!

 

InSafeHands

Thursdays are fun days when Pádraig’s friends come to the house to share with him what is going on in their lives, to have some fun, and packets of biscuits.

So maybe, it wasn’t such a bad idea after all, to service his ceiling hoist – a service that included the super-weight test: having a box full of really heavy weights, making up more than 140kg, being lifted up by the hoist.

Today, the kitchen was packed with his friends for almost four hours, a time full of laughter, jokes, and biscuit eating. You could see, hear and feel the delight of these hours.These were the dreamboaters, the future, the energy and the tomorrow. All in safe hands.

Zapp

If it’s worthwhile, do it slowly; simple; and in style.

This is what Mr Zapp’s grandfather told his grandson. And this is what Mr Zapp and his wife have been doing over the past 17 years as they have been traveling the world in a 90 year old car. Mr Zapp says, there is no way you could drive that car at speed. The mechanics of the car are so simple you could get it fixed literally anywhere in the world; and, he said, look at it – could you imagine anything more stylish than this beautiful old car? – They had four kids in the process who are now traveling with them and who they school as they travel along.

We haven’t been traveling the world.

But there is an elegance and a style, a very personal ‘stamp’ Pádraig has been putting on his recovery. His very slow recovery. In a simple, uncomplicated, straight forward way. Yesterday, he stood up, with a bit of help, and held his head up high, without any help. Even though he managed to do this for only a few seconds. Today, when we went swimming, he stood up high and tall in the water, holding on to the side bar of the pool with his hands, and pushing his heels firmly down into the bottom of the pool – and he did this not just once but three times. Elegantly, slowly, and simply just standing up.

Zapp!

ThisMoment

We finally chose to walk like giants
and hold the world in arms grown strong with love.

In those days_ we finally chose to walk...

A friend sent this image to me this afternoon. I find it hard to think of anything more beautiful tonight: that we hold the world in arms grown strong with love.

And that is something we will never forget.

This moment.

MovingThrough

Moving through. Whatever barrier there is. Don’t let it stop you. Just keep going. Look at this sculpture. Isn’t it amazing?

I hadn’t expected to find this in the Botanic Gardens. It must be sculpture week because there’s almost more sculptures than trees in the Botanics this week. It’s fantastic. And it’s free.

There was another sculpture that really caught my eye and it is one that consists of a row of bottles that are being used to feed people directly into their stomach. I immediately recognised the shape and the colour of the top. We went over, looked at it and read the explanation by the artist explaining that each of these bottle represents a day of struggle and hope that things would get better for her baby who was born prematurely.

Eventually, we got soaked. The rain was torrential. Both Pádraig and myself smiled. What a great feeling: the rain on your skin, the wind blowing into your face so hard that you just about manage to breathe, the smell, the noise, the feel…. Isn’t life great!

2.2k

That’s the distance. It’s unique in Europe and one of the most famous in the world. It’s 97 years old this year. No other capital has a swimming race through the middle of the city. When Bernard Fagan started it, he wanted to show off the good quality of the Liffey water.

Today, Maria brought a couple of Coca-Colas with her because she had been told last year by a friend that a Coke would kill all the germs in the Liffey water she swallowed. She did really well today and had great fun.

After the start of the race, Pádraig popped into Heather’s on the quays on their last day of trading after 150 years. It was the one and only shoe shop in Dublin that sold shoes for people with really large feet. Pádraig picked up a pair of original clogs. The closure of the shoe shop which originally had been a drapery store after decades and decades was such a big event that it made the main news today.

It was a good, relaxed day today, when we left our troubles behind and didn’t worry about tomorrow (too much). It’ll come. Anyways. And, of course, we haven’t got the faintest of what it’ll bring.

Biscuit

Who wants to be a millionaire? Honestly?! Two nights in a row, Pádraig had a brilliant time making choices, asking the audience, ringing a friend, asking for a 50:50. The thing is: there was no need to ring a friend, because it was his friends who played the iconic game with him, always with the most tasty biscuits and a straight cupotea….

Try to see it my way.

Talking about friends. I spend the evening, a Friday evening, with a friend who is helping me to plan and cost (and, hopefully, implement) the premises for the An Saol Project. I promise you: if this works out, there will be the biggest party ever in premises that would be unaffordable if they were in NY or in the London docklands. Simply breath-taking!

We can work it out. Life is very short, and there’s no time for fussing and fighting, my friend.

Gates

This is people power. In a really imaginative way. Not confrontational. But determined. We don’t have them in Germany. But in Ireland, there are parks that are locked at night. So, what do you do if you want to go for a walk in the park after sunset? Do you break the lock? Do you cut the chain?

No. You do exactly the opposite. You put on plenty of locks and chains to keep the gate open. Ingenious! Who would have thought about this approach? It’s like a double lock and chain …

Pádraig’s friends started what will hopefully become a weekly Thursday evening quiz and fun session with Pádraig. Plenty of tea and biscuits. And an interactive quiz show. From what I heard, it wasn’t really the questions, nor the answers that mattered. But the interaction. The fun. And the biscuits. (Yes, I confess, I just finished them up:)

The approach of the people who kept the gates open, rather than opening the closed gates, doesn’t get out of my head.

Because it’s exactly what we need to do with rehabilitation, therapy, integration, participation and all those things that sABI survivors need. Rather than trying to reverse what the ‘system’ is not doing by trying to cut through their red tape and chains, we just need to put up our own tape and chains and keep the gate open for what our loved ones need. Keep it coming. Never allow any gates, any access to be closed.

WorldPeace

Pádraig changed his mind. He had been telling us that the most difficult aspect of his injury is that it is difficult from him to communicate, that it is difficult for us to understand what he is telling us. Today he said that not being able to go out and hanging out with his friends is even more difficult. And who wouldn’t understand that. Just stop for a moment and try to imagine what having to handle this gigantic change must be like. Imagining it is almost unbearable. The reality must be unreal.

We are making progress with An Saol. Plans are being drawn up by a friend which will allow us to reach a decision point on whether we will be able to go ahead with the refurbishment of premises that are available for rent, premises that would be super cool. At the same time we are still with the Charity Regulator trying to get charity status for An Saol. All the scandals in the charity sector over the past months and years have made that process infinitely more difficult. Another reality that seems unreal. Imagine, we have a project approved, the money has been allocated, and we are waiting for what to me looks and sounds like a formality. Unreal.

There are other aspects of my life that are unreal. So unreal, in fact, that I don’t want to think about them too much. That I’m blocking them out. Because, as horrid as they might be, I won’t be able to change them. So I acknowledge them and then focus on aspects of my life and the life of the ones I care for which I can influence and make better. World peace, yes. But not in far away countries. At home. At work. At leisure time.