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~ Acquired Brain Injury (ABI): from the acute hospital to early rehabilitation – more on: www.CaringforPadraig.org and www.ansaol.ie

Hospi-Tales

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Trees

12 Friday Jun 2015

Posted by ReinhardSchaler in Uncategorized

≈ 2 Comments

What do you think, when you think of trees? – Really now. Think!

If you were not in the Generator in Dublin last night, you lost out on a brilliant night with absolutely brilliant music by some of Ireland’s finest. Here is a taste of what you missed.

Here is the launch of “Pádraig”:

150611 Padraig

150611 Padraig


And here are the Dreamboaters going stronger and stronger:

150611 Dreamboat

150611 Dreamboat


 

Finally, here is Maitiú with a few words:

150611 Matiu

150611 Matiu


 

A huge big Thank You to all of Pádraig’s friends who sang the songs and shared their love for him. You all have no idea how much this means to him, and to us – it simply keeps him, and us, going, trying, living.

Here is something you could do: Tell all your friends about the song and send them to http://www.amhrandophadraig.com to download it.

In the meantime: have you thought about what comes to your mind when you think about trees?

You know, Germans have a deep, historical, mythical connection with trees. There are poems, songs, and tales about the German trees – and they literally turn up at every corner in Germany.

When I arrived in Ireland, the first thing I did was to plant a tree. When we moved to our new house in Iona, again: I put a tree into the front garden, and several others into the back garden. I love trees, but discovered that the Irish have a different relationship with them than a German would. They almost hate them: because during the summer they block off the sunlight and during the winter they shed their leaves and destroy the garden.

We were lucky that planted all those trees in our back garden – where else would Pádraig have put up his hammocks?

Today’s German Music Tip
Alexandra, Mein Freund der Baum (1968). Here is Alexandra talking to a dead tree. Compare that with Joni Mitchell’s Big Yellow Taxi (1970) and the tree museum she’s singing about. Would be a nice topic for an essay on alterity…
What’s hot
Trees
What’s cold
Shade
The German word/phrase/verse of the day
Da siehst Du vor lauter Bäumen den Wald nicht mehr.

Eating

11 Thursday Jun 2015

Posted by ReinhardSchaler in Uncategorized

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I wish I could be there with you in Smithfield tonight, with Pádraig, enjoying the friendship, the laughs, the music. And neither myself nor Pádraig would mind having a pint (and himself making sure we wouldn’t be sitting too close to each other:).

There will be a night, and then many to follow.

Pádraig keeps going. When I think just a few weeks back and look at what he is doing these days, it’s truly remarkable. We went for a walk today, down the road to the the park. It seems that them famous German engineers weren’t interested in constructing footpaths. Proper footpaths without potholes. For Pádraig going down this road to the park is like a roller-coaster. Each time we walk that way, he is getting better in controlling his body. Visibly.

I checked out two websites today. They turned out to be offered by the same company but offer an amazing variety of good food for people with different kinds of handicaps.

Screen Shot 2015-06-11 at 08.06.30

(with thanks to a good friend who passed on the link!)

Biozoon is a German company based in Bremerhaven. It was founded just nine years ago and had tremendous success with their first product. It’s now based in a 600m2 facility and also just opened a second factory in the south of Germany to provide a better service to the southern folk.

Screen Shot 2015-06-11 at 08.11.22

There is such a range of topics in which to become an expert, it’s amazing.

An Saol definitely needs good music, but also a restaurant and the best food we can get for everybody living, working, and being there. Right?

Today’s German Music Tip
Duo Ohrenschmaus, Geht en Mann durch de Wald.
You’ll need a bit more than 15 minutes to watch this. But this is worth it. This is so absurd it’s unreal. Imagine a show like this in any other country. Impossible.
What’s hot
Music and Food
What’s cold
Tasteless anything
The German word/phrase/verse of the day
Schirri (think: FIFA)

Verein

10 Wednesday Jun 2015

Posted by ReinhardSchaler in Uncategorized

≈ 2 Comments

Make sure that you won’t miss the launch of “Pádraig” tomorrow night, 8pm, at the Dublin Generator Hostel, Smithfield:

https://www.facebook.com/events/374935589377452

Screen Shot 2015-06-10 at 14.29.42

Screen Shot 2015-06-10 at 21.16.32There was an interview with Cian Mac Cárthaigh of IMLÉ and Marcus Mac Conghail on Raidió na Life tonight at 8pm, on Fios Feasa presented by Siobhán Seoighe, with a performance of Pádraig, the song. I managed to record the interview ok, but messed up the first minute or so of recording of the song for some reason – which, I guess, makes it a collectors item!

Pat interpreted for me, so I was able to follow, more or less, what was said. There were two things that stood out for me: one was that this is a song, an anthem, to all people with a good heart; the other was that Pádraig has friends that are legend.

The interview: https://hospi-tales.com/wp-content/uploads/2015/06/padraig-interview.m4a

The song: https://hospi-tales.com/wp-content/uploads/2015/06/padraig-song.m4a


This is summer. Holidays. Early morning runs. Long, warm, summer evenings in the back garden with family and friends.

Next year.

This year, I’m becoming an expert in ceiling lifts, hoisting systems, stair platform lifts, all sorts of bath tubs and other gadgets. Today, I found out that there is a “Verein” in Hamburg that has not just experts on communication, bathroom solutions, mobility, a barrier free construction, they also have a 200m2 show room where they show and demonstrate solutions from different manufacturers.

Of course, the “Verein” is financed by the Freie-und Hansestadt Hamburg and its services are free. We’ll go there tomorrow morning to get some ideas on how to make life for Pádraig a bit better.

There’s a “Verein” for everything in Germany. I should have know!

Pádraig is doing well. We’re trying to get the three meals a day going. Today was the first day with the changed schedule. T’wasn’t perfect (yet:) but a good try. It’ll be better tomorrow.

Today’s German Music Tip
BVB (100,000 Freunde, ein Verein) – It’s a different kind of “Verein”, but – in Germany, there one for everybody in the audience… and Pádraig really likes BVB!
What’s hot
BVB
What’s cold
The wind high up on a roof terrace, even on a hot day.
The German word/phrase/verse of the day
Dat kannse dia vonne Backe putzen.

PS: Just found this on Raidió na Life’s website

Screen Shot 2015-06-10 at 21.26.35

Mobile

09 Tuesday Jun 2015

Posted by ReinhardSchaler in Uncategorized

≈ 2 Comments

imagesThere is no doubt that Pádraig is moving a little bit more every day. And that he is eating better and more every day. Being more himself.

Today, as on most days, his aunt rang to talk to him. Routine. Except that, today, he was holding his arm up (no support underneath) and he was holding the mobile (or ‘cell’ as our american friends would call it), he was images1holding the mobile in his left hand, holding it close to his ear.

We changed our arrangement with the carer slightly because were are going to introduce three meals a day for which he will need time. We will also go out more often and more regularly. It’s summer, after all!

And we’ll be getting more mobile by the day!!!

Today’s German Music Tip
Helene Fischer, Atemlos. This has been the song in Germany over the past year or two, and I never ever thought I would recommend it to anyone. But his version is like a lesson in German culture: Helene sings her summer hit at the celebrations of the German soccer team, the new world champions, at the Brandenburg Gate last summer. It’s iconic in a special sense.
What’s hot
Phone home
What’s cold
Helene Fischer
The German word/phrase/verse of the day
Tortenarsch, Bratbär, Pflaumenaugust, Muffkopp, Kappskopp, und Dreckschüppengesicht – all words you should remember when you want to really insult somebody.

Infinity

08 Monday Jun 2015

Posted by ReinhardSchaler in Uncategorized

≈ 2 Comments

Tags

Lourdes

Over the last two weeks or so there were a few occasions when my eyes just closed and I dipped off into half a day sleep and half a day dream. During those moments I didn’t know where I was. Dublin, Hamburg, Tating, Lourdes, the Train, Cape Cod all places were kinda mixed up. It gave me an idea what sleep deprivation can do to your mind.


All through this there was a realisation that Pádraig was moving, supporting himself, eating and drinking, communicating. Of course, he is not quite there yet, but the feeling was so real. It felt like that we just had to keep going, moving, and all will turn out alright. Maybe not as before, but as our new life with great moments, great road trips, great music, films, books, poetry, nights staying up not because we are afraid but because we enjoyed our time together that much that we never wanted it to end.

imagesI am catching up, slowly, with a huge stack of letters from all sorts of different offices looking for payments, information, confirmation, and certifications. I also sent off the Maltesers I had bought in Dublin a few days ago to those beautiful people who had made our journey to Lourdes a collection of miracles. For some reason, Maltesers, those crunchy, sweet chocolate bites haven’t reached Germany yet.

Just listened to An Tagen wie diesen. The theme is a bit like Those were the Days but the German song has sooo much energy that you can’t but dance and sing and shout! I have this feeling that there will be heaps of days when we’ll be singing the Dreamboat, An Tagen wie diesen!

Today’s German Music Tip
Die Toten Hosen, An Tagen wie diesen. Ich wart’ seit Wochen auf diesen Tag… – I’ve been waiting for weeks for this day! – I’ve never really been a fan of Die Toten Hosen, but this song is just great. An Tagen wie diesen wünsch ich mir Unendlichkeit! – Ar laethanta mar seo Is mian liom Infinity.
What’s hot
The Future
What’s cold
Knowing everything
The German word/phrase/verse of the day
Plörre (for example: bad wine or beer)

Beach

07 Sunday Jun 2015

Posted by ReinhardSchaler in Uncategorized

≈ 7 Comments

IMG_1180Today was s fabulous day outside. A bit windy, maybe, but a great blue sky with sunshine and temperatures that were just right. So we went out for a long walk. Two, maybe three hours. I showed Pádraig and Pat the route where I go ‘running’. Pat didn’t want to walk back the way we came, which is what I always do, so we walked up a side street and discovered – that Tonndorf actually has a beach and an open air swimming pool in a natural lake! Tonndorfer Strand!

IMG_1179

Zigarettenautomat – ad for and sale of cigarettes from machines on Tonndorfer Strand!

It was a great walk and Pádraig really enjoyed it, I think. On a day like this, why would you stay in the house when it is so beautiful outside? Maybe the only downside to all of this was that we were not the only people thinking that way, of course, so there were just a tiny bit too many cyclists, walkers, runners, and dogs around. But having people around is great and makes you feel alive!

Last night, I watched the last half an hour of Bladerunner, the movie Philip refers to about a dozen times in his book, It’s not dark yet, as one of his favourite films of all times. It’s a science fiction movie, now several decades old, and still a masterpiece. Turns out that the last sentence of the movie (in the final cut) is key: “It’s a shame she won’t live – but then again, who does?” says a voice referring to a female robot and now his friend, as Deckard discovers a paper unicorn and the crushing realisation that he, too, is a replicant (but has been programmed to believe he is human). Deckard is the Bladerunner, charged with killing (or ‘decommissioning’) human robots, slaves, that are running out of control.

There must be some deep meaning. Robots looking like humans. ‘Humans’ not realising they are robots and have a limited lifespan.

The one thing that distinguish robots from humans is that humans have emotions. They could love. They can be Dreamboaters. Robots, slaves just following orders, can not be Dreamboaters. Ever.

Today’s German Music Tip
Walter Mossmann, Sieben Fragen eines Schülers.
Good idea to check out the lyrics. Neither Walter Mossmann nor this song would be ‘cool’ these days. He was one of the German singer song-writers who had convictions, a sense of justice, and a believe that artists had a role in changing society (for the better). He died on 29 May, on Pádraig’s birthday, 73 years old. Loads of his songs are on youtube and other online sources. They are not just works or art and testimony to a certain time in Germany’s history, they make you think. Think that there’s no need for a sell out. That economy is different from society. That people always come first.
What’s hot
Protest
What’s cold
The water on Tonndorfer Strand
The German word/phrase/verse of the day
Zichten

Can

06 Saturday Jun 2015

Posted by ReinhardSchaler in Uncategorized

≈ 3 Comments

imagesSome years ago, I was driving for the hospice in Raheny as a volunteer. Once a week, I picked up someone from home, brought them to the hospice, and brought them back home later n the afternoon. I will never forget my first impression of the hospice: it was one, if not the most beautiful places I had seen in my lift. Then, I wondered why one had to die in order to be looked after so well.

Today, I saw someone asking that question again: Why do you have to be dying to be looked after that well?

If you think about it: the hospice movement is doing exactly the opposite of what the medical profession would argue for: they are spending all their money and all their energy on people who very likely will die soon. They do that in the best way they can and what they can do is really impressive.

I think: you can be looked after that well, even when you are not dying, when people care.

Today, Pádraig is doing all the things many ‘professionals’ believed he would never be able for: he just finished a bowl of soup, he is breathing by himself, the only tube going into him is the PEG for liquids and food, he goes out into parks, supermarkets, cafés – and 28-hour train journeys. Just 5 months ago, doctors wouldn’t even let him go out for a walk in the hospital yard with us.

He can do all those things he couldn’t do just a few months ago because people care.

When people care, things can be done, even when you’re not about to die.

 

Care

05 Friday Jun 2015

Posted by ReinhardSchaler in Uncategorized

≈ Leave a comment

Pádraig’s physio tried out the therapy table with Pádraig today. There is a bit of setting up time required but once the transfer was done he really enjoyed it. There is so much more space on that table than in the bed and, in addition, it’s a bit harder, providing more support and body feeling. One nice aspect of this was that his therapist was focusing completely on what he was doing and not on the time at all.

Guess what this is: a hotel for insects! Only in Germany...

Guess what this is: a hotel for insects! Only in Germany…

Later on in the morning, Pádraig, apparently, had encouraged his carer to read him out of an English book a friend had sent him but then changed his mind and ‘told’ him to read out of a German book for him. They both were delighted: the carer because he did something Pádraig had asked him to do (using his tongue), and Pádraig because the carer had entertained him a bit.

It made me think that we should try and play audio books for Pádraig. And, as it happens, one of his four friends visiting him yesterday and today had brought an audio book for him! So, we’ll try out how he’ll like that. They had also brought a brand new guidebook for Pádraig: a guide book to Alaska! No question, we’ll have to go there now!! And before the guidebook gets dated!

The full moon over Hamburg
The full moon over Hamburg
...and our back garden in Dublin.
…and our back garden in Dublin.

Today was the hottest day of the year: 30oC. It was the first time we could really take advantage of the terrace and sit outside in the sun. We also went for a long walk to the park with Pádraig’s friends taking care of him and the wheelchair which was really nice!

These were great days, yesterday and today, for Pádraig: being with his friends, listening to the chat, being with them.

There’s a full moon rising. The same that lit up the sky in Dublin earlier this week on an amazingly clear sky over our back garden – waiting to be transformed for Pádraig.

Unexpected

04 Thursday Jun 2015

Posted by ReinhardSchaler in Uncategorized

≈ Leave a comment

Twitter is brimming with the news of the launch of the song “Pádraig” in Dublin’s Generator on Thursday, 11 June. Be there and be assured of a phantastic night of music.

Pádraig had a great day today. Four of his friends from Dublin are over and we had a great afternoon sitting on the balcony in glorious sunshine. It was the first time that the weather was good enough to have “Kaffee und Kuchen” and a barbecue outside. You could see the smile on Pádraig’s face when his friends arrived and started to share their news from Dublin.

Tonight and over the coming weeks, however, my thoughts and prayers are and will be with a young person who we met in a hospital some time ago, with their family. Things have taken an unexpected turn and are not looking good.

Start

03 Wednesday Jun 2015

Posted by ReinhardSchaler in Uncategorized

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So today work was supposed to start on Pádraig’s new room, but that got delayed for another 2-3 weeks. Instead, I met up with the people who have been helping us to put plans together and who will complete the extension. Two hours passed by in no time. And we still need to clarify loads of details – some bigger than others. The reality is that I can’t wait for these rooms to get ready, at least to start with the conversion.  It’ll be so nice for Pádraig to come back and, who knows, it might just give him a boost.

Tonight, after two long drives (Limerick) and loads of meetings, no boost will manage to keep my eyes open.

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