This has been one of those weeks that morph into one big time warp. No days, no nights, no hours, no beginning, no end. When I had to look at the phone to remind me of the day it was. When I was so tired that I just couldn’t go on. When I was so excited that I just couldn’t sleep but had to listen to the ocean outside our window. When I got so upset that I really had to breathe in deep, and out, and in, and out, and then talk. When I was so happy to be home that nothing else could have been more important. When I was struck by the kindness of family, friends and complete strangers.
When I met, for the first time, in person, Marcus Mac Conghail, and he met Pádraig, for the first time, having written the most beautiful poem and song for him. A meeting, though short, I’ll never forget, and hope we’ll meet again.
We went out for a walk on Dun Laoghaire pier.
It was windy, a bit ‘fresh’, but so so so full of life. I know, I know, the pier doesn’t look exactly packed on the picture, but there anglers, kids, dogs, runners, walkers, young and old – where would you see that in a hospital, never mind a nursing home?
Where it’s routine to be confronted with talk about persons with potential and persons without potential. And resources being allocated to those with potential. When I know that we all have potential. When I know you support those who need support badly. I know it’s not meant in a bad way.
But it makes me furious. Because life is for all.

It’s so so frustrating and so sad everything comes down to budgets . We have found more help from a charity them gov departments , every one has potential , are the words ‘equality , integration meaningless ? You will find the support for Padraig he is amazing and deserves all the help . Just remember how much he has achieved .
It all comes down to money in the end, Hilary, but it’s not as if there was no money, it’s just spend on the wrong things.These are all small roadblocks on the way we will overcome – as you are doing with Emma.