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~ Acquired Brain Injury (ABI): from the acute hospital to early rehabilitation – more on: www.CaringforPadraig.org and www.ansaol.ie

Hospi-Tales

Category Archives: ABI and early intensive neuro rehab

Days

16 Friday Jan 2015

Posted by ReinhardSchaler in ABI and early intensive neuro rehab

≈ 7 Comments

Tags

Aer Lingus, exciting day, Hamburg Airport, padraig

UnknownDays are different. Some are good, some are bad. Some are sunny, some are rainy. Some are busy, some are relaxed. Some are exciting, some are boring. (All are dangerous.)

Today I had a good, sunny, busy, and exciting day.

One of Pádraig’s friends who is here to visit was happy to give us a hand to move our stuff from the old apartment to the new apartment, while the other friend also on visit stayed with Pádraig and read out stories for him. At the end, we were running through Terminal 1 in Hamburg Airport to find the Aer Lingus check-in desk, just 5 minutes before closing time. We had not planned it that way, but we are so grateful they were here and were so kind to offer their help!

imagesWhen we arrived in Hamburg 14 months ago we had a bag each. Today, our stuff just about fitted into this van we had rented for the move. It brought back memories of IKEA flat packs (Lebst Du schon oder schraubst Du noch?) in the tiny Picanto and hours of trying to make millions of screws, dowels, and pieces of wood fit together.

“Noch dreimal Schlafen” my mother would have told me when I was small (the older you get the better your memory of the time you were young becomes).

Noch dreimal Schlafen and live will take another big turn. For Pádraig.

It will be a good, sunny, busy, and exciting day. For Pádraig and for all of us.

(I’m sitting beside Pádraig, with Pat on the other side of the bed, the window is wide open, and we’re relaxing and listening to the beautiful CD his friends brought for Pádraig, “Paper Clips”.)

Nikolaus

06 Saturday Dec 2014

Posted by ReinhardSchaler in ABI and early intensive neuro rehab, EarlyNeuroRehab, Hamburg, Uncategorized

≈ 2 Comments

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baby Jesus, Coca Cola, Heiliger Nikolaus, Martin Luther, Sant Claus, Santa Claus

It’s all Martin Luther’s fault. Really. He decided that we should live without saints. Imagine. So he decided to move away from the Heiliger Nikolaus as the one that brought the presents and make that the job of the “Christkind”, baby Jesus, instead. And, apparently, when the Dutch went to the newly discovered continent across the big water, they brought Sinterklaas with them. After a while, he became Santa Claus. And we all know how Coca-Cola transformed him into this big guy in a ridiculous red dress and a white beard.

Today, we used the ‘blue cap’ to close Pádraig’s tracheostomy/cannula completely. He managed really well over several hours. We only put the ‘speech valve’-type top back on before we left in the evening. The fact that he can breath sufficiently well despite the cannula in his trachea, when the cannula is closed off, in my mind doesn’t leave any doubt that he could breath without it in his throat – and probably much better, because he would not have this constant irritation and, in effect, narrowing of his respiratory tract. We’ll keep at it. At least it would be worthwhile to try and see how he would manage without the tracheostomy.

And, with the ‘blue cap’, he finished a full yoghurt.

In the spirit of Advent and Sant Claus, multi-culturalism, and the idea of ‘otherness’, here is an ad from a Hamburg mainstream newspaper advertising the “Große Adventsaktion” during the weekends in Advent.

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Whatever it is, it’s not an add for your traditional German “Weihnachtsmarkt”!

Today’s German Music Tip
G. F. Händel, Tochter Zion – if you want to practice German Christmas songs, here is one, with subtitles:)
What’s hot
Nikolaus
What’s cold
Coca Cola’s Santa Claus
The German word/phrase/verse of the day
Wer gutes tun will, muss es verschwenderisch tun. (Martin Luther)

TheGoodNews

18 Tuesday Nov 2014

Posted by ReinhardSchaler in ABI and early intensive neuro rehab, EarlyNeuroRehab, Hamburg

≈ Leave a comment

You know, sometimes someone asks me ‘what did you write about last night?’ The truth is, in most cases, that I don’t remember. I don’t think it’s old age, but can’t exactly say why it is that almost the moment I finish writing this, it’s gone, disappeared from my memory. It’s like a half dream (remember the early morning half dream?), but a late night half dream. They are even more difficult to hang on to and to remember.

A few things happened today. We got the papers ready to register An Saol as a nonprofit charity. With a bit of luck, the paperwork should be filed with the CRO this Friday. Didn’t hear about the apartment yet.

On the corridor today, Pádraig’s doctor told me that he will be transferred tomorrow week to the UKE and be operated on Thursday. It’s good to have a bit of notice. It’s also good to get this done before December. Hopefully, this will be his last big operation, and the New Year will truly be a year of new beginnings.

Just thought about the idea of ‘good news’. Although sometimes I wonder whether the world isn’t just one big disaster with seriously limited people on the helm – by how many trillion did the G20 announce will they grow the world economy, already functioning mostly on loans and borrowing? – I have realised that every day, there are good news all around us. It’s the stuff that those songs are all about, trying to give you hope, trying to keep you upbeat, trying to make you see the ordinary things every day that are so incredibly beautiful: nature, the sun and the moon, and, first and foremost, people.

And it does not matter whether they are healthy or whether they are sick. Whether they are independent or wether they need our help.

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http://www.amhrandophadraig.com

Fair

27 Saturday Sep 2014

Posted by ReinhardSchaler in ABI and early intensive neuro rehab, EarlyNeuroRehab, Hamburg, Uncategorized

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Yesterday at lunch time, I thought I wouldn’t go. Last night I still had my doubts. But then, late at night, we decided that I would get up at 4:45 and get that train to Düsseldorf to visit REHAB-CARE, according to the organisers the world’s largest fair on rehabilitation. So I went, a bit reluctantly.

German trains being what they are, fast and reliable (mostly), I got there so early that the fair was still closed. You could see what was going on even at the central station, and certainly on the tram going out to the congress center where the fair was taking place. I had not see as many wheelchairs in one place in my life.

There were long queues at the entrance and when the gates opened hundreds of people poured into the six huge exhibition halls. It was incredible. Everything from electronic eye trackers to bathroom equipment, from architects and specialised builders, to car conversion engineers, from accounting software to rehab furniture, from facilities to interest groups, stand-up beds, stand-up wheelchairs, racing wheelchairs, holiday homes and boats for people who need special furniture and access – you name it.

Here is a short video of just one corner of one hall to give you an idea of what I am talking about.

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In between, I was talking to Pat who had staid back with Pádraig. He has been doing ok and has almost recovered from whatever happened to him yesterday. He is still in the hospital’s main ICU, most likely because they don’t move people around the hospital over the weekend, unless they really have to. He’s ok in the ICU but it’s deja vu all over again. Staff don’t know him (so they suction him for no reason, just because they do), they don’t know us so some are quite officious, play it all by the book, don’t account for the fact that we have been there for the best part of a year. What can you do? – Hopefully, it’ll be back to 2L on Monday morning.

I’ve put together a few pictures from today. The first one has nothing got to do with the fair, it’s of the main door of Starbuck’s in Düsseldorf’s Central Train Station. It’s really funny: they don’t really open, except for one day a week (!) – but then really long hours, as one coffee-seeking by-passer remarked.

photo 1

Here is a small selection of the incredible amount and variety of stuff available. Cars, wheelchairs, gadgets. There doesn’t seem to be anything, good German engineering wouldn’t be able to make.

The star of the show
In case you prefer it limo-like
Something more along our line: a really nice camper van

An automatic wheelchair dock for a car,
A bed that turns into a seat.
A wheelchair that turns into a stand-up aid.

A wheelchair for the bathroom
A wheelchair for having fun, up in the air!
Feel what it’d be like with a prothesis.

Getting home really late. Tired. Loads of ideas and impressions. An Saol, here we come! Can’t wait to see Pádraig tomorrow!

Tanzfieber

19 Tuesday Nov 2013

Posted by ReinhardSchaler in ABI and early intensive neuro rehab

≈ 3 Comments

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Tanzfieber

Today Maria and I left early for Hamburg. The senior doctor in the Schön-Klinik had made a special arrangement for her to see Pádraig at 1pm, two hours prior to the start of the official visiting time at 3pm, as she had to leave for the airport at 2pm. (Yes, it is and doesn’t just sound complicated.) For the first 45 minutes, traffic was like every other day: pretty light. Once we hit the A23 motorway at Heide, we thought we were doing fine. There are two long road works on this motorway, with an expected completion date of summer 2015! We had just driven into the first road works when traffic stopped. Completely. A car had broken down, apparently, blocking the one lane available to traffic. When we got going again, we knew we had to go directly to the airport. We had to skip Maria’s visit to the hospital. I told Pádraig about the traffic jam, and that Maria would be back soon. I am sure he understood.

Some more small details that make a hospital stay different here: we were used to bring in Pádraig’s own mouth cleaning ‘sticks’ (we bought them in our local pharmacy, and

It gets very dark very early in Hamburg - the Schön-Klinik in the afternoon.

It gets very dark very early in Hamburg – the Schön-Klinik in the afternoon.

the nurses told us they were brilliant); deodorant (remember: 6 very sick people in one relatively small room, not always well aired?); cream to keep his skin in good condition; and other sundry ‘stuff’. Here, they have their own mouth hygiene sets in the hospital (even with little ‘hovers’ attached to prevent liquids going down the throat); there are no aerosol sprays and there is not need to cover up bad odours (there are none); and they have sets of different creams for his lips and his skin. In the Irish hospital, the tube  carrying oxygen and going into his throat was protected by a blue-coloured open half-moon-shape-like semi-cover; here the tube is closed and covered by an air filter: dust and bacteria would have a hard time getting into his lungs through that filter. The senior doctor consulted with the hospital’s dentist to organize a tooth guard as he is still grinding his teeth at times. (This was looked at previously as just another potential ‘collateral’ damage that could be dealt with later.)

To keep Pádraig in touch with Ireland, I play (Irish) music to him – I am under strict instructions not to play my music. (What is wrong with my music?) So I played music from a CD a very good friend had brought in some months ago: Bí Ann by Kila, Tír na nÓg, A-Team, Hall of Fame,… by the time we reached Mexico (as Gaeilge) by Mundi he was sweating, his heart rate was up, …and something or someone had moved the gadget on his finger measuring his oxygen saturation – which made several alarm bells go off all over the place: the system thought Pádraig’s oxygen had suddenly gone down from 96% (normal) to less than 80% (not good). The nurse came running into his room in a panic – by which time I had corrected the ‘error’ (and switched off the music). She took it quite well, I thought, and checked his other markers, since she was there now anyway. When she said that she didn’t like his temperature (just over 35o), I confessed that we had been listening to some music, and that I thought it had been the music that had brought up his heart beat and also probably his temperature: She looked at us, smiled, and said: must be ‘Tanzfieber’ then.

What’s hot
German music tip: Herbert Grönemeyer, Männer (1984) [He of Wolfgang Petersen’s movie Das Boot. A bit like a response to Ina Deter:)].
The coffee offered today by Pádraig’s student nurse.
Kilometres we have driven to-date (since Wed., 13 Nov): 1,647
What’s cold
Petrol prices – they ‘swing’ by 10 cent within one day.
Stacks of letters from the insurance company.
Traffic jams on the A23.
The German word of the day
Tanzfieber

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