Of course, it’s raining, back home, home is where your feet are, tonight, and for the next couple of nights, my feet will be in Ireland.

Before I left today, Pat and I were planning the next few days. It got so complex that, in the end, we ran out of time and I had to run to get the train to get the S-Bahn to get to the airport to get the plane, back to Dublin. This week, between the two of us traveling and a family member standing in for us with Pádraig for a day and a night, and organising some extra hours with the carers, I hope the week is going to work out without any major hiccups.

It’s the first time in a long time that I have left Pádraig recently. It is a very strange sensation, being away, doing things that are normal to others, but, now, very different to me.  On the plane I thought that we need to come to a point where this life, this new life, becomes every day life. Not a series of exhausting sleepless time warps or a succession of crises points. But – how, how can this ever become routine, ‘normal’, every-day? For him, for us, his family, his friends? What will be there, then.

Better take one step at a time…

AdobePhotoshopExpress_2014_10_07_202000There is some movement on the An Saol ‘front’. Some friends have ideas about how to get the land we need for An Saol. Some have ideas about planning and building it. There are also therapists who have expressed an interest. – Recently, I thought that An Saol could start with the provision of some services, even before the An Saol house has been built, such as physio, speech, occupational, and music therapy, or professional development courses for therapists, carers, and carers in the family.