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~ Acquired Brain Injury (ABI): from the acute hospital to early rehabilitation – more on: www.CaringforPadraig.org and www.ansaol.ie

Hospi-Tales

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Stamina

30 Friday Jun 2017

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One of those evenings, when I can’t really find the concentration and stamina to write. My eyes are closing and there’s zero concentration left.

This evening, we had dinner in one of the restaurants we used to go to. Close to the lighthouse in Westerhever. One of the ladies working there has a daughter who went to primary school with Pádraig’s younger sister.

Crisps

29 Thursday Jun 2017

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Pádraig smiled this afternoon. Not because something was funny but because he was happy. The weather was good, the company was good and we went for a walk in Heide’s downtown. It’s one really nice street with a few shops. And with a small stand in front of the butcher’s selling Bratwurst. We shared one. Pádraig eating Bratwurst. On the way back home, he had a few Bugles, crisps. Those flavours must have exploded in his mouth. And the texture!

Life was good this afternoon. In Heide!

Comprehension

28 Wednesday Jun 2017

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I was still travelling. Four years ago. Trying to get to Cape Cod Hospital in Hyannis. Trying to learn Forever Young by heart. What was it that had happened?

Truth is: I still don’t know. Truth is: I probably won’t ever know, won’t ever comprehend. Truth is: I don’t need to.

I don’t want to know what time it is. I don’t want to know what day it is or where I am. None of that matters.”
― Jon Krakauer, Into the Wild
 

4Years

27 Tuesday Jun 2017

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Four years today. We celebrated it.

“It is the experiences, the memories, the great triumphant joy of living to the fullest extent in which real meaning is found. God it’s great to be alive! Thank you. Thank you.”
― Jon Krakauer, Into the Wild

Connections

26 Monday Jun 2017

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Some time ago, someone I’d never met sent me the name of an occupational therapist specialised in neurological rehabilitation in Garding (!), just a few kilometres from here. Pádraig had an appointment there today and it was fabulous. We agreed two long sessions per week for the next few weeks.

There was me, writing about Pádraig’s journey. About our visits to Rainer and his pub in Garding with the live music sessions on weekends all year ’round. Someone, with family in Tating, and having worked in Garding, reads this and makes the connections.

You can say what you will, this would not have happened without the internet, the web, and people ‘talking’ to each other – even if they never meet in person.

We are planning to celebrate tomorrow. We’re not quite sure yet how, but we’re getting ready for it. Who’d ever have thought we’d get this far?

“The trip was to be an odyssey in the fullest sense of the word, an epic journey that would change everything.”
― Jon Krakauer, Into the Wild

Fit

25 Sunday Jun 2017

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There was an article in the Sunday Independent newspaper apparently today (talked about on the radio) describing how residents in nursing homes who were continent became incontinent because there were no carers who would bring them to the toilet when they needed to be brought. That fits in with our experience of the use of medication to regulate bowl movements of persons in care so that they fit into the time table of homes and the turns of the carers.

It beggars believe, but this is how institutions work: the military, convents, prisons, nursing homes and hospitals. Even home care. People in these institutions and dependent on that care have to adapt to the rules and procedures and routines of the institutions and the carers.

It beggars believe.

We had a brilliant Sunday today. Slept in. Late breakfast. Kaffeetrinken beside the sea. Early dinner. A short movie. Early night. The way we wanted it. It’s hard to believe that something as ‘normal’ as this is not a given for all, and wasn’t for Pádraig, for a long time in his life…

“That’s what was great about him. He tried. Not many do.”
― Jon Krakauer, Into the Wild

 

Project

24 Saturday Jun 2017

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Everybody needs a project. No doubt about it. The question is: what kind of project it should be. One that really excites you? One that really challenges you? One that will change the world a little? One that supports your family? One that realises a dream you’ve always had? One that realises someone else’s dream?

Whatever it is, it has to be one that keeps you going and interested, it has to make sense to you.

This year, Pádraig and us arrived in Santiago, finishing the Camino we started many years ago.

Next year, we’ll go on a roadtrip himself and a friend had planned, or at least part of that journey, through the USA and Canada up to Alaska. One of his friends gave him a guidebook to Alaska when we were still in Hamburg.

After the summer, this journey will become our new project. It’ll keep us going.

Don’t settle down and sit in one place. Move around, be nomadic, make each day a new horizon. You are still going to live a long time, Ron, and it would be a shame if you did not take the opportunity to revolutionize your life and move into an entirely new realm of experience.

Sanya

23 Friday Jun 2017

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It must have been today, four years ago, that I went to China. I was going to change planes in Amsterdam. At check-in at Dublin Airport, the person behind the desk took some time checking my passport and my ticket, enough time for me to think “there must be something wrong, what is it?” And then he said, “Sir, the names on your passport and the ticket don’t match.”

Not good news when you have less than an hour to departure. I had booked the flights and I was pretty sure that I had booked them in my name. What was the check-in person on about?

He gave the passport and the tickets back to me to check.

I had taken Pádraig’s passport instead of my own. I had grabbed the first German passport from my desk at home without checking that it was actually mine.

The funny thing was that what had called the attention of the check-in person was not that the person on the passport did (1) not look like myself and (2) was more than 30 years younger.

Using some magic, that day Pat managed to get home, find my passport and bring it up to the airport, all in time for me to get on to that plane to Amsterdam and then to Beijing.

I was terribly excited. I was going to get a front row ticket to the Beijing Opera, a great day in a great city, and another flight to Sanya on Hainan Island in the South China Sea where I was going to give a presentation using Skyfall and Adele’s title song the same name of this brilliant James Bond movie as a theme for a keynote on the future of the localisation industry. Let the sky fall. When it crumbles. We will stand tall. Face it all together.

SteifeBrise

22 Thursday Jun 2017

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Germany never stops to amaze me. And I should know better! Looking for batteries in a supermarket I saw a machine where the shop offered to its customers to peel asparagus, never saw anything like it in my life – though it’s important to note here that Germans go MAD about asparagus! Then, when we went for a walk on the ‘beach’ of Vollerwiek, I was reminded that there is such a thing as a beach for dogs, a ‘Hundestrand’! Of course, both the ‘Badestrand’ and the ‘Hundestrand’ are ‘kostenpflichtig’, i.e. you have to pay to go to the beach.

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Not today, though. Earlier, we had the Donnerwetter of all Donnerwetters with rolling thunder and lightning combined with torrential rain. This afternoon, it was still so windy, there was still what they call here a “Steife Brise”, that if almost blew Pádraig out of his wheelchair.

You wouldn’t believe it but he days here are extremely busy. Busy in such a way that at the end of the day I’m asking myself what happened with that day? It just disappeared into nowhere. It’s a bit like life feels at times. You wonder where all the years went, what happened to them. That’s why it’s good to take time out and do things you remember. I’m mixing old memories with new ones these days. Not always easy, but I have that feeling it’s worthwhile doing.

Holiday

21 Wednesday Jun 2017

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Everybody expects something slightly different from their holidays: some just want to hang out on the beach; others read and chill out; or visit museums, go on cycle tours, walk, do nothing. Ultimately, it has to be different from what we do otherwise.

In our case, this year feels like the first year that we are on an actual holiday. We are in complete control and can do what takes our fancy.

It’s like it used to be. But then it couldn’t be more different.

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