• About
  • Proud

Hospi-Tales

~ Acquired Brain Injury (ABI): from the acute hospital to early rehabilitation – more on: www.CaringforPadraig.org and www.ansaol.ie

Hospi-Tales

Category Archives: Uncategorized

Island

14 Sunday Dec 2014

Posted by ReinhardSchaler in Uncategorized

≈ 5 Comments

Tags

John Donne, Kieran Hanrahan, No man is an island, padraig

photoTwo eyes open and a big smile. Pádraig enjoyed that phone call from his aunt and sister today. The bit with the second eye open doesn’t happen that often; it hadn’t happen for a while…

I suppose John Donne wrote ‘No man is an island’ because, at least at some stage, that’s what he felt like. It became such a famous poem and even a saying because there are so many people who can identify with it. Have you ever felt like an island, entire of yourself, and not part of a continent?

Life is such a strange thing. On one hand: at the end of the day, it’s always just you. On the other hand: we only exist in community. And we swing back and forth between these two extremes. Love is like that. Family is like that. Friends are like that.

Pádraig had a good day today. We started to try out lunch. Ok, it was vegetables and a bit of chicken, pureed, though not like mash, with small bits and pieces. I was worried because when we had tried that before, some weeks ago, it didn’t really worked. Today, Pádraig almost finished the content of a small jar. It was really, really good. He was eating it well, ‘chewing’ it a bit, and swallowing really well. We went out onto the roof terrace. Twelve steps. In each direction. Up and down. Today, with a bit of day light, as the sun was disappearing on the horizon. You can see the horizon from the 5th floor. You can hear the train in the distance. A dog barking somewhere down below, amongst the trees.

Not that I knew, but this must be like what prison feels. Twelve steps up. Twelve steps down. For about 30 minutes. Listening to sounds somewhere in the distance that, for whatever reason, you can’t get closer to you. When was the last time that he was close to a dog, a train, a child, …?

No man is an island.

I hope you were listening to Céili House on RTÉ Radio 1 last night, with Kieran Hanrahan! It was listeners’ choice last night and Kieran played ‘Dreamboat’ from ‘Amhrán do Pádraig’, reminding his listeners that ‘Schaler’ had been on the programme some years ago. (They actually found that programme in the archives and are sending it over to us! – Thank you so much!)

We have been listening to Céili House for years on Saturday nights in a small cottage in Leitrim, in what Pádraig called ‘the middle of nowhere’. It’s the kind of programme that really and absolutely completely relaxes you, makes you feel at home straight away, and requires an open fireplace, with wood and turf glowing and slowly burning away.

No man is an island.

In case you missed it last night, here is the link to the full programme. And here is the link, if you just wanted to listen to Kieran’s lovely introduction at the beginning, the song itself, and then Kieran’s really nice remarks after he had played the song.

https://hospi-tales.com/wp-content/uploads/2014/12/audio-10.wav

In the end, we’re all involved in mankind. We are in this together. Which is what gives us the strength to get through the difficult times. Which is what gives us this immense happiness in good times. Whatever happens, and no matter to whom it happens, it always happens to us. That is why we care. No playing politics. No return on investment. No profits. No country for profit. No giant tax free zone for multinationals. No tax cuts to buy votes. No man is an island.

We care. Because we never send to know for whom the bell tolls; it tolls for me, for you, for your brother and for your sister, for your mother and for your father, for your partner and for your friend. Dreamboaters. Together. For each other.

Really

13 Saturday Dec 2014

Posted by ReinhardSchaler in Uncategorized

≈ 9 Comments

Pádraig was good today. He was back in the wheelchair. He was back out on the roof terrace. He is back eating. But not just once. Twice. And this was just the first day of it. We’ll do that for some time. In no time, no time at all, he’ll be eating his three meals a day. Really.

No doubt about it.

Did you listen to the news today? Did you hear anything new? Let me guess.

Nothing, really.

And that is the really sad news.

Over the past few days, the Irish media were packed with news, comments, and statements from officials and politicians and journalists with appeals to the Taoiseach, our Irish prime minister, to “make this the best little country in the world for people with disabilities“, as Sara Burke did in The Independent last Thursday.

The papers and some commentators are having a go at Taoiseach Enda Kenny because they focus on a remark he made in the 2011 election campaign when he, as quoted by the Irish Times, asserted “to be making Ireland the best small country in the world in which to do business may not be total nonsense after all”. Recently, the Irish Times conceded that Enda Kenny is doing well delivering on his promise – “If you’re a multinational that is.”

They don’t really do Enda Kenny justice, because what he is saying and what he repeated in a speech at the Dublin Chamber of Commerce Annual Dinner on 9th October 2014 in the Dublin Convention Centre is:

“It’s not just about the pay-cheque; it’s about their sense of worth, their place in the world, their contribution to their family, community and country.

This has been the goal from day one of Government: to be the best small country in the world for business, to raise a family and to grow old with dignity.”

The pity is, that, overall, he is focussing on the multinationals, as rightly observed by the Irish Times.

Here is what makes me really mad: EVERYBODY KNOWS!

There was another Prime Time report some months ago about not the first, but the 5th case baby death at Portlaoise Hospital. It revealed that the parents of the baby worked day and night to find out what had happened. They assembled all the details they could find and sent them to the Health Authorities to make them aware that something had gone terribly wrong in that hospital – only to find out, eventually and after months of hard work into the early hours of the morning, that the hospital, the people working there, and the health authorities had known what had gone wrong all along.

EVERYBODY KNEW,  except the people most concerned, but everybody that could have done something about it. There were new recommendations and new guidelines.

This morning, I heard on the news that the staff of the ICU in Beaumont Hospital is planning to go on strike because they feel that the conditions there are unsafe.

How on earth can politicians and the people responsible talk about investigations, commissions of enquiry, and pretend to be surprised and shocked to hear about what is happening?

They know. EVERYBODY KNOWS.

Really.

This is the best country in the world to find help and support when you most need it – from your family and friends. Now, lets ask the government to join us. Today, it’s their choice. Tomorrow, it’ll be ours.

Really.

 

Otherness

12 Friday Dec 2014

Posted by ReinhardSchaler in Uncategorized

≈ Leave a comment

Tags

germany, ireland, Martin Sheen, Oh Tannenbaum

Totally confused.

It was obvious when I came to Ireland in the eighties. I was German and this was a different country with different customs, people had a different way to deal with each other, and they didn’t stop asking me whether I liked it in Ireland (sometimes, people still ask me, and how do you like it here?:). And back then, when I told my Irish family that in Germany police was wearing pistols and everybody had an ID that they had to carry with them all the time by law, they looked at each other and said something that sounded like ‘police state’. But I was in a new country and I was still learning English and didn’t stop wondering about my new country.

It was a bit less obvious when we brought Pádraig to Germany and (re-)discovered what it means, in Germany, to rent an apartment, to buy a mobile phone contract, to make sure that there is no condensation on the windows (‘lüften, lüften, lüften’). I thought I was German, but looked at what was going on with my Irish eyes (often smiling at the German way of doing things).

It was completely messed up, durcheinander,  when I was in Ireland this week. What is the ‘other’ and what is ‘mine’? I kept taking pictures: at the airport where Connect Ireland in an attempt to lure new foreign investment to the country was trying to connect JFK, Enda Kenny, and Martin Sheen; then, when I got to my Aer Lingus flight, it all felt and looked like as if it was Ryanair in the old days: every bag was measured and checked for the maximum 10kg weight; and on a German magazine they were making fun of Germany’s most treasured seasonal symbol, Oh Tannenbaum, the christmas tree…. Is it me who is durcheinander or is someone, some dark force, trying to mess with me. All of a sudden, all was foreign, all was the ‘other’.

IMG_9717
FullSizeRender
IMG_9720

 

To be back with Pádraig was good. And then: he finished a huge portion of pureed apple with chocolate yoghurt, no bother. It was so good that we’ll try some ‘normal’ pureed food at noon, and the pureed apple in the afternoon tomorrow. It would be brilliant to get him back eating more regularly and, eventually, to get rid of the tube feed, the PEG.

And, Pádraig managed to get into the wheelchair for the first time after his operation. For just for a bit more than two hours. It was great. He must have felt really good. And now, after the operation, he doesn’t need a helmet anymore either. A whole new feeling.

Today’s German Music Tip
O Tannenbaum without and O Tannenbaum with, subtitles
What’s hot
‘Otherness’
What’s cold
Confusion about the ‘otherness’
The German word/phrase/verse of the day
O Tannenbaum

Run

10 Wednesday Dec 2014

Posted by ReinhardSchaler in Uncategorized

≈ Leave a comment

Some, well: many, very many years ago, I decided to buy a CD with the movie Shrek in Germany. I thought it was so funny and entertaining that Pádraig and his sisters would like it so much that they wouldn’t mind that it was in German. It would be a great way for them to learn more German, in a fun way.

They were delighted.

Pádraig took the wrapper of, took out the CD, pushed it into the CD player connected to our telly, selected ‘English’ – and off they went having a great time, watching ‘Shrek’, laughing their heads off. Only that they movie was running in English. The tech guru that I am had not even thought about the possibility that CDs come in different language versions. Well, they do…

IMG_9673
IMG_9674

When I watched ‘Shrek’ in German (on my own:), I realised who badly translated all the nursery rhymes were. ‘Run, run, like the Gingerbread Man’, for example was translated literally, word by word. Good job, I thought, the kids had not watched it in German!

I had to think of that story yesterday, when Pat and I saw the German version of the Gingerbread Man, called ‘Stutenkerl’, with the typical pipe (the kind I had once used for my first smoking adventures).

Tonight, Pádraig’s big sister is with him. She’ll be there with him until Pat goes back tomorrow. Today was such a busy day that I can’t think clearly, my head aches, my eyes hurt.

Just before I switch off the light, a thought about the scandal ‘discovered’ at this home in Mayo. What I haven’t heard any commentator saying is that there was nothing to be ‘discovered’. Everybody working there, including the management, knew what was going on, and if they did not participate, they allowed it to continue. In the same way that everybody in the ‘system’ knows that long-term patients in hospitals and homes, patients with severe acquired brain injuries, people who cannot protest, get injured and suffer with dropped feet, dangerous bed sores, and injured shoulders. Everybody knows… “how the State treats the most vulnerable people” (RTÉ news at 9, tonight).

Today’s German Music Tip
Udo Lindenberg, Gegen die Strömung – As a song, it’s ok. As a title, it couldn’t be better. The world needs more people moving against the current, against the wind, being themselves, knowing what is right and what is wrong.
What’s hot
Skrek
What’s cold
Run, run, Gingerbread Man
The German word/phrase/verse of the day
Stutenkerl

Separation

09 Tuesday Dec 2014

Posted by ReinhardSchaler in Uncategorized

≈ Leave a comment

Tags

Hamburg, padraig

We separate for you! (So you don’t have to do it yourself.)

I am on my last trip away from Hamburg and Pádraig before Christmas. There will be a family visit tonight (probably over by the time I manage to send this), a very very very early drive across Ireland to the West, over to Limerick at lunch time, overnight stay there, back to Dublin in the evening, and back to Hamburg on Friday. (Just took a deep breadth when I finished writing this list. It’s longer than I had thought.)

We went to see Pádraig this morning before we left for the airport. He had been with a couple of therapists and they could not get over how alert he had been: movements and reactions all as per their requests. It was one of his really good days.

Handy: The Germans separate for you - at Bremen airport.

Handy: The Germans separate for you – at Bremen airport.

Tomorrow will be one of the very rare days when neither Pat nor I will be with Pádraig. We’ll be separated, in a way. But one of his sisters will be with him, and Pat will be back a day ahead of me.

It’s just after midnight now, time to go to bed. But before I go, I wanted to just mention that in between a hectic, long day, tonight I met with one of Pádraig’s great friends from whom I collected some of the CDs. When I write from Hamburg, I think about and feel the friendship and energy, and I know Pádraig does. However, being in the company of his friends is a completely different kind of thing. And I can probably not even just imagine, how that would be for Pádraig.

And two very last notes on what has been on the RTE +1 channel – we missed most of the report from that ‘home’ for people with disabilities, but watched the discussion. What the RTE investigative unit discovered was called by the reporters assault. – What would you call ‘treatment’ that leads to dislocated shoulders, haematoma, dropped feet, and spasms? I’ll stop here and go to sleep. It’ll be another day tomorrow.

Pull-up

08 Monday Dec 2014

Posted by ReinhardSchaler in Uncategorized

≈ 4 Comments

What do you think when someone mentions “pull-ups”? Seriously.

Body builders? People who want to pep up their muscles?

Unknown

 

 

 

 

 

 

To be honest, I don’t think I ever managed a pull-up in my life. I haven’t given up on it yet, but it’s still going to take some time before I’ll get there.

Well, I was thinking about that when I was doing those really mindless exercises with Pádraig. Fingers, hand, lower arm, upper arm. About ten times up and down. Not that they wouldn’t be good for him. They are. But it’s very passive. And boring. And sooo un-challenging.

So I thought: why not try some simple, easy ‘pull-ups’. Just starting with the arms.

And while doctors and physios are still discussing whether he is able to open and close, and close and open, his hands, or at least one hand, and which hand works better than the other… I put my hand into his. I lifted my hand up. And guess what? Pádraig held on. All by himself. He, by himself, held on to my hand (I did not hold on to his) and when I lifted my hand and arm up, his arm went up to.

There was no difference, absolutely none, between the left hand and the right hand. He held on to my hand (I did not hold on to his) when I lifted my arm up, and he basically pulled himself up (well his arm, at least) by holding on to my hand when I lifted it.

Today, we did it 20 times on each side. Another first!

Untitled 2

By Christmas, at least some of his muscles will be back (and I’ll have built up some on my own too:).

Today, his doctor stopped one of the drugs Pádraig had been getting to control possible cramps. We don’t know, of course, whether this was just coincidence – but today, Pádraig ate really well, a full plate of chocolate pudding and mashed apples. No problems with swallowing at all. And he spent another few hours with the cannula blocked off. No problems with that either.

We had a short conversation today with his doctor on his tracheostomy and the different views we got from a speech therapist and two nose, throat and ear doctors in the UKE. We’ll keep exploring all the options and working on the best solution for Pádraig.

Today’s German Music Tip
Udo Lindenberg, Baltimore. – A German version of this great Randy Newman song, about the seagulls coming into town for survival in a city where you really don’t want to be – because its end is near. They steal a car and get away, far away. Take my hand.
What’s hot
Pull-ups
What’s cold
Pull-downs (is this a new word?)
The German word/phrase/verse of the day
Klimmzug

Nikolaus

06 Saturday Dec 2014

Posted by ReinhardSchaler in ABI and early intensive neuro rehab, EarlyNeuroRehab, Hamburg, Uncategorized

≈ 2 Comments

Tags

baby Jesus, Coca Cola, Heiliger Nikolaus, Martin Luther, Sant Claus, Santa Claus

It’s all Martin Luther’s fault. Really. He decided that we should live without saints. Imagine. So he decided to move away from the Heiliger Nikolaus as the one that brought the presents and make that the job of the “Christkind”, baby Jesus, instead. And, apparently, when the Dutch went to the newly discovered continent across the big water, they brought Sinterklaas with them. After a while, he became Santa Claus. And we all know how Coca-Cola transformed him into this big guy in a ridiculous red dress and a white beard.

Today, we used the ‘blue cap’ to close Pádraig’s tracheostomy/cannula completely. He managed really well over several hours. We only put the ‘speech valve’-type top back on before we left in the evening. The fact that he can breath sufficiently well despite the cannula in his trachea, when the cannula is closed off, in my mind doesn’t leave any doubt that he could breath without it in his throat – and probably much better, because he would not have this constant irritation and, in effect, narrowing of his respiratory tract. We’ll keep at it. At least it would be worthwhile to try and see how he would manage without the tracheostomy.

And, with the ‘blue cap’, he finished a full yoghurt.

In the spirit of Advent and Sant Claus, multi-culturalism, and the idea of ‘otherness’, here is an ad from a Hamburg mainstream newspaper advertising the “Große Adventsaktion” during the weekends in Advent.

FullSizeRender

 

 

 

 

 

 

 

 

Whatever it is, it’s not an add for your traditional German “Weihnachtsmarkt”!

Today’s German Music Tip
G. F. Händel, Tochter Zion – if you want to practice German Christmas songs, here is one, with subtitles:)
What’s hot
Nikolaus
What’s cold
Coca Cola’s Santa Claus
The German word/phrase/verse of the day
Wer gutes tun will, muss es verschwenderisch tun. (Martin Luther)

Head(s)Up

05 Friday Dec 2014

Posted by ReinhardSchaler in Uncategorized

≈ 4 Comments

Tags

Hamburg, padraig

I visited my mother this morning. She didn’t stop asking for Pádraig. How he is, whether he understood what we are saying to him, whether he can move, how strong his voice is… She stopped every nurse passing by (and there were a few of them) to tell them that I was her son and that my son was very sick in a hospital in Hamburg. We spent a few hours together and we talked about Pádraig. Going over the same questions again and again. Memory doesn’t get better with age.

Seeing your parents get old and fragile, not being able to help themselves anymore, when they had, all their lives, helped you with anything you had ever asked them for (and sometimes with things you hadn’t ask them for:), seeing your parents in such a situation is terribly sad and breaks your heart.

When I had to leave her to drive back up to Hamburg, I wasn’t myself. I couldn’t be because I would have been too upset. I switched off. For self-protection.

Back in Hamburg, Pádraig was doing well.

I know, I know, you have been waiting for this for a long time: there was another “first” today. During the physio session he managed to hold his head up for a minute or two, without any support. He was sitting in the bed, with a physio supporting his back, and another moving his legs when, all of a sudden, they noticed his head – and almost couldn’t believe what they saw!

A bit like Santa coming early this year. In fact, there were a few of them on their motorbikes coming down from the North pole riding South, with Mrs Santa on the back seat. I’d say they’ll take the ferry to Ireland from France, so they should be there in time for Christmas!

TheDayAfter

04 Thursday Dec 2014

Posted by ReinhardSchaler in Uncategorized

≈ 2 Comments

Tags

Dreamboat, winter tyres

Pádraig is recovering well from the operation. Today they took out the iv catheter and stopped the antibiotics. The swelling on his head is still there but it is going down. He can’t get into the wheelchair yet, but he has started his attempts to talk again. I only realised how much he is trying when he couldn’t anymore during the days around the operation, because they had put in a ‘safe’ canula (tracheostomy) that they could block for the operation.

I played the videos to him this afternoon and he was wide awake and alert listening to the music. I keep telling him how much you, his friends, are doing to support his recovery, and how lucky he is to have such a loyal crew on his Dreamboat.

Me – I just made it before the first snow. Back to the garage near my German family’s home that has kept the winter tyres (remember the winter tyres?). After one of these long drives on a superfast German autobahn (wir fahrn, fahrn, fahrn, auf der Autobahn… see below) in a super small Korean car, I’ll be leaving again tomorrow, with proper winter tyres.

0 PadraigBut before, there’ll be time tomorrow to visit my mother who is in a nursing home since she had a stroke that paralysed half of her body. She is always asking for Pádraig, always praying for him. One of the last pictures we have of Pádraig is from his last visit to my mother, just before he took off to Cape Cod – he knew he wouldn’t be home for her birthday, so he went to see her and wish her all the best.

I will show my mother the videos and play her the music, and I know she’ll be thrilled.

Andrew posted something on Facebook that I want to share with you.

 

(ENGLISH BELOW)…Bhuel a chairde. Bhí oíche aréir DOCHREIDTE. Slua ulmhór daoibh ann. Go raibh míle maith agaibh as ucht teacht. Níl figúr crinn againn ar cé mhéid a d’ardaíomar, ach beidh go luath. Rinneamar taifead ar an rud ar fad agus beidh físeáin thuas go luath. Déanagaí CINNTE rá le gach duine gur féidir leo brontannas álainn a fháil don Nollag – ordaithe ar líne agus seolta sa phost ag www.amhrandophadraig.com

…………………………………………..ENGLISH…………………………..

Well friends. Last was INCREDIBLE. So many of you turned out, It was fantastic. Thank you so much for coming. We don’t have an exact figure on how much has been raised, but we will soon. We recorded the whole thing so videos will be up soon for anyone who missed out. Remember to remind everyone that they can get a BEAUTIFUL Christmas present for a friend or colleague at www.songforpadraig.com. Order it online and it’ll be sent in the post to your address!


 

He is right, of course. Thank you for coming, thank you for singing, thank you for your great company!

And here are the short videos I managed to get from last night’s launch. You’ll enjoy them. There’s one in there from Brooklyn, sent by Gabriel Corcoran, with his own rendition of the Dreamboat.

The Brooklyn “Dreamboat”

Gabriel Corcoran Facebook_MOV

Gabriel Corcoran Facebook_MOV

“Raglan Road” by a young Luke Kelly re-incarnation

Colman Hanley | Facebook_MOV

Colman Hanley | Facebook_MOV

“The Dreamboat – live”

Dreamboat live short

Dreamboat live short

Sailing

03 Wednesday Dec 2014

Posted by ReinhardSchaler in Uncategorized

≈ 4 Comments

Tags

Dreamboat, padraig

Let’s sail and have some fun!

As the Dreamboat is being launched tonight, Pádraig is listening to the incredibly beautiful songs, the music, and the poetry his friends put together for him.

Tonight, he is back on the ‘old’ canula (so that we can hear his voice), he doesn’t need any more oxygen, tomorrow they’re going to take him off the antibiotics he got after the operation (just in case), the swelling on his skull is receding, and on Monday they’re going to remove the stitches.

Over the past days, there have been uncountable tweets about the #dreamboat and #AmhrándoPhádraig, song for Pádraig. People have been traveling from Europe and all over Ireland (even from Dublin’s South Side, I heard!) to get to the Grand Social on the River Liffey’s north bank for the mother of all album launches this side of Christmas.

The Irish Times reported about it.

Screen Shot 2014-12-03 at 20.07.53

 

 

 

 

 

 

 

 

The Herald reported about it.

Screen Shot 2014-12-03 at 20.10.58

 

 

 

 

 

 

 

 

It made it to the front page of Seachtain

Screen Shot 2014-12-03 at 20.12.35

 

 

 

 

 

 

 

 

And Newstalk had a special feature on it.

Screen Shot 2014-12-03 at 20.13.55

 

 

 

 

 

 

 

 

And there have been tweets, re-tweets, FBs, LinkedIns in their hundreds from people and friends from around the world who are with you, the Dreamboaters, tonight in the Grand Social.

To be honest, I have no idea what is going on here. Ich passe. Whatever it is, I’ve never seen anything like it ever before, even in my wildest dreams. (Maybe it’s because I doubt, even when I’m dreaming:)

Lights! Action! – Get onto the Dreamboat. We’re all Dreamboaters. We’ll keep going. And on the way, we will always care for each other, no-one will ever be on their own no matter what and no matter where, and – we will have some fun. Mar an fear a bheadh féin a bhí. Dreamboaters, ahoi!

← Older posts
Newer posts →

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 412 other subscribers
blog awards ireland

Blog at WordPress.com.

  • Subscribe Subscribed
    • Hospi-Tales
    • Join 238 other subscribers
    • Already have a WordPress.com account? Log in now.
    • Hospi-Tales
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
 

Loading Comments...