It was one of those days, one of those moments I’ll never forget. One of those incidents I won’t want to talk about. One of those that really struck right into my heart. Yet it passed as the most normal thing in the world, no attention given, by anyone, it just came and went. And made, and makes, me cry, hurt so much, beyond comprehension.
A friend of Pádraig’s had left the new CD by IMLÉ, which they had launched recently. It’s really absolute brilliant music. I played the CD for one of Pádraig’s carers this morning. When “Pádraig” came up, the song Marcus had written for Pádraig, I got my laptop, went to YouTube and showed the video and song to the carer.
At the beginning of the video is this picture of Pádraig. When the carer saw the picture he asked: “Who is that”?
Diane Rose said:
My heart breaks for you.
It’s a world of broken hearts, Diane. Such a waste.
IT IS PADRAIG !! IT STILL IS PADRAIG 💙
Of course it is, Eileen. And one day, he’ll tell that carer to pay attention!
I am sorry that throwaway comment from a virtual stranger caused you so much pain. It is challenging having carers coming in and out. It turns a home into a railway station. Many carers are wonderful. This person may well do a great job and just ‘was not at the races’ yesterday that they didn’t realize at that moment that this was a photo of your wonderful son. Have a good day today. How far you have all come since the extended hospital stays for Padraig; restricted to one room, tied up to all those machines. Now he is home, can savour his food and is living a life, with visits from friends, attend family events, get out and about to places like the Botanic Gardens and to gigs. With his tenacity and experience of being an athlete Padraig is achieving so many physical milestones and with technology communication will become better and better. That will add so much to your lives …and there is always Alaska! Though at moments like the one your write about in this post are tough, Padraig and yourselves are triumphing over adversity.
There’s always Alaska – where comments like that just shrink into insignificance!!!
Ana Teresa said:
Ainsssssssss , besos y abrazos
I feel them – the besos y abrazos and their comfort, Ana!