If you think about it: there is the scandal of utter neglect of young persons with severe brain injury. There is no question about the fact. There is no question about the scandal.
But an existing scandal only becomes a public scandal when it touches and penetrates the public mind.
How can we make that happen?
We will cross the rubicon when families speak out and say it the way it is. Nothing more and nothing less. In public.
Only then will public outrage prevent professionals from pressing families to accept the ‘reality’ and ‘get on with it’. Only then will they stop putting families under pressure, driving them to tears.
It’s a public matter and we need to make it public. Res Publica Res Populi. Right?
Hospi-Tales 
100%. We need to lead the way as a collective of open, informed, experienced, and loving human families and survivors where there is no need for any distinction. We can redirect the strength of our endurance to disrupt the destructive, harmful, and incomprehensible insularism that delegates the ultimate feat of survival, into nothing more than a hopeless socio economic banality. We can use the tapestry of our collective experience depict actuality. By depicting actuality, their bizarre socio economic bureaucratic ‘reality’ will demonstrate itself quite quickly as nothing more than a naively constructed and overly habituated island view, that is operating quite evidently, without a grounded world view.
Pax.
100%. We need to lead the way as a collective of open, informed, experienced, and loving human families and survivors where there is no need for any distinction. We can redirect the strength of our endurance to disrupt the destructive, harmful, and incomprehensible insularism that delegates the ultimate feat of survival, into nothing more than a hopeless socio economic banality. We can use the tapestry of our collective experience depict actuality. By depicting actuality, their bizarre socio economic bureaucratic ‘reality’ will demonstrate itself quite quickly as nothing more than a naively constructed and overly habituated island view, that is operating quite evidently, without a grounded world view.
Absolutely right Reinhard. An avalanche of people/families are needed to come forward-be outspoken—lets keep shouting-in the hope somebody is listening-We can learn from someone speaking and also learn when listening.
We need to speak up without fear and with all the clarity and firmness we can gather. Loud and clearly.
All this is easier said than done though, because the moment you speak up you become a problem that large institutions will find ways to deal with.