I’m on my own with Pádraig this weekend. No carers (none available).
Panic stations?
To the contrary.
Here is Pádraig moving a snake across the screen using his left eye.
Maybe inspired by that colourful snake, I’ve been dreaming for the first time in a long time.
Could Pádraig and I finish the camino we started over a few years before the accident? The last, say 100km? Would the ground be ok for a ‘standard’ wheelchair?
Should we go to the Fleadh Cheoil in Ennis?
What would it be like to be in Leitrim for a while? Darkness in the night. Incredible sounds and smells during the day. And the nothingness of land around the cottage lost in time.
What if our day was not structured by the arrival and the departure of carers we cannot leave alone with Pádraig, therapists costing a small fortune (the HSE have stopped physio for Pádraig), and deliveries of supplies?
What if we were on the road to somewhere? Moving to different places? Staying for a couple of days and then moving on? Exploring the world?
Leaving the panic stations where we’re looking for something that ain’t available. Instead floating down the stream. On the Dreamboat.

Oh my goodness!were the Physio HSE sessions ceased due to the fact that the family are ensuring adequate physiotherapy for Pádraig seeing as the HSE only allocates 45 mins per month,which is obviously inadequate and the policy is for ONLY the HSE to provide it?
I don’t know, Norma. It might all be very clear to someone, but it is beyond my comprehension. They are leaving people behind – contrary to moral, professional and ethical standards in a civilised society. I am shattered.
You sound like you have had a lovely relaxing weekend, I find the intrusion of these ‘care workers’ just cause us more stress…..we have noone at the moment and things are going okish!! We have got Emma a personal trainer who does the exercises suggested in Germany, I have to keep thinking outside the box…………..like you do…..i bet you will make it to Spain and anything else you aim to do as you are a ‘dreamboater’ and doing a wonderful job…….small steps ………..
It’s such a pity we don’t live closer to each other, Hilary!