Mann, Mann, Mann. It’s really hard to keep up with what’s going on sometimes.
Here we are, still looking for “the space” for our neuro therapy centre (there are some first leads but nothing confirmed, so keep looking), and we already have the first quotations for equipment, the first part-time employee, the first volunteer and, naturally, three families ready to use it.
All this is really fantastic.
But we can do better.
On Thursday, 7-8.30pm, An Saol will host the first meeting of families affected by severe acquired brain injury (sABI), in Room 15 of the Carmichael Centre, Brunswick Street, Dublin. The focus of the meeting will be a pledge we’ll circulate to prospective TDs in the forthcoming elections as well as the plans for the Neuro Therapy Centre.
Pádraig is doing well, he’s not as good as he was before these ‘episodes’ started, but much better than he was for the couple of weeks just prior to Christmas. One thing I want to think about more is how it is that health professionals at times find it difficult to listen, to understand, and to trust families who naturally know their loved once (and their injuries) much better than anybody else. There is, really and literally, no competition. Of course, they all want to help and ‘do the right thing’. But there is no one ‘right thing’. People are different. Circumstances are different. Personal histories are different. Injuries are different. Hospitals are different. Interests are different. And you could go on… So there is, probably, no right decision – at least not a universally ‘right’ decision. Which is why it cannot be health professionals who take those decisions but the patients or, where necessary, their representatives, family members where appropriate. It cannot be health professionals. Not ethically. Not legally. And not using your common sense. Wouldn’t you agree?
Tonight we were listening to Kula Shaker. Never heard of them? Never listened to Tattva, Hey Dude, Govinda, Hush, or Sound of Drums? – Never had I. But they are really really good. Really. Thanks to Pádraig’s friends who introduced the family (!) to Kula Shaker! (I’m still wondering how it comes that lads in their 20s discovered Santana, another album they brought in, I mean: Carlos Santana!!! He’s 68 years old!!!!) In all honesty, though, all of Pádraig’s friends, those I’ve met, have exceptionally good taste when it comes to music! And it’s music that makes you dance until you drop, that makes you want to ride a motorcycle with the wind in your hair, and that allows you to move weightless like a butterfly into a world of your imagination.