We drove over to the NRH today with Pádraig so that he could have a go at their Erigo machine – the one that puts a person upright (almost) into the vertical and makes their legs move, mimicking a ‘walking’ motion. Afterwards, we had lunch in their restaurant. It was a really nice day out. The nicest part of it was that we were able to bring him back home afterwards.
Since yesterday, Pádraig’s shakes seems to have virtually disappeared. He is still taking anti seizure medication which we will hopefully be able to reduce and then stop altogether, once he has fully recovered from this episode. Relieve is not the word to describe what we feel.
We have also been planning. I like planning! And making the plan happen!
We’ve been planning how to start with some basic services for An Saol and to whom which services we could provide. In addition to fundraising and advocacy, An Saol really needs to be able to show what good care and therapy could look like. I really hope, we’ll be starting soon doing this.
Finally, here is another piece of great information from The New Yorker, LARISSA MACFARQUHAR writing about the Ford Foundation:
The urge to change the world is normally thwarted by a near-insurmountable barricade of obstacles: failure of imagination, failure of courage, bad governments, bad planning, incompetence, corruption, fecklessness, the laws of nations, the laws of physics, the weight of history, inertia of all sorts, psychological unsuitability on the part of the would-be changer, the resistance of people who would lose from the change, the resistance of people who would benefit from it, the seduction of activities other than world-changing, lack of practical knowledge, lack of political skill, and lack of money. Lack of money is a stubborn obstacle, but not as hopelessly unyielding as some of the others, and so would-be world-changers often set out to overcome it. Some try to raise money, but that can be depressing and futile. Others try to make money, but it’s hard to make enough. There is a third, more reliable way to overcome this obstacle, however, and that is to give away money that has already been made by somebody else, and has already been allocated to world-changing purposes. This is the way of the grant-makers of the Ford Foundation.
Looks like we’ll have to get in touch with them!