Still amazed by the trip yesterday and how well Pádraig managed it. At the end of the day he must have been so exhausted. Being in the wheelchair for 7-8 hours by itself was an achievement. Traveling 4-5 hours altogether in the car must have been really tough for him.

imagesBut he enjoyed it. Being out by the see. Walking that mile over the bridge out to the restaurant he wanted me to buy so badly. Sitting out in the sun, on top of the most fabulous beach was brilliant. An Saol, so it was. Sailing down the stream in the Dreamboat. Who would have thought! A few months ago, the chief doctor didn’t even allow us to take him for a walk in the park of the hospital. I was thinking, maybe next time we go we’d invite him along to show him what life, An Saol, with a serious brain injury is all about.

There we were, the tree of us. And so happy. All of us.

After a hectic day yesterday, Pádraig took it easy today. Slow, easy-going in the morning, an easy breakfast and lunch, and I long, but relaxed, almost two hours’ walk along the Wandse stream on one of the most beautiful lazy Sunday afternoons you could imagine.

Today, I read the articles that were published in the Irish Times over the weekend. It’s heartbreaking. And it brings back memories of not just the heartbreak, but also the never-ending problems that shouldn’t have been problems at all. One article reported how friends standing in for what were supposed to be multi-million euro insurance policies covering every eventuality: “Confusion at times about who was going to foot the bill for medical expenses and rehabilitation was one reason why family, friends and students organised the fundraisers at home.” Insurers making sure they weren’t loosing any of their precious money to parents in horrendous circumstances: “There is a separate battle on the insurance front. Although the students were covered by J-1 travel insurance, some families say they are under pressure to relocate the students to Ireland to continue recovery.” And then, the hope to get appropriate treatment when they get back home to Ireland: “When they get home to Ireland the students will go initially to an acute-care hospital, then move on to the National Rehabilitation Hospital in Dún Laoghaire, Co Dublin, or a similar medical centre to continue their recovery.”

Not even the author of the Irish Times article, the paper’s Washington Correspondent Simon Carswell, seems to know that there are *no* medical centres “similar” to the National Rehabilitation Hospital in Ireland… that you have to wait a year to get into it with a severe brain injury and that treatment is limited to three months…

Oh, before I forget: I believe this mad man is still planning to run the five maratóns in five days next week. Have you tried to stop him? Click here to do what you can!

An  Saol  Living your life with a severe acquired brain injuryAn Saol