Loads of preparations for tomorrow’s operation. It’ll be all fine – though there was a bit of a brief scare today, more below (I have to make you keep reading) Watch out for step two to germanise yourself: it’s got to do with normcore). Also loads of preparations on getting a deposition from Pádraig’s doctors in the Schön-Klinik; preparing a mediation meeting for Wednesday (ahead of the trial); and the trial itself – with us going over on 12 April and the trial against the driver of the van starting on 13 April. It’s a civil case we have taken, the police didn’t see a reason to even cite the driver. But it’ll be a jury case and we have been told it will last at least a week. (Today I found out that the Boston Marathon will take place around that time…)

I thought a bit more about what I wrote yesterday. And tried to bring it all a bit more to the point. So here is my second attempt.

√ They are telling us our children are lost causes.

√ They are telling us, our children offer a bad return on investment so they won’t invest in them.

√ They are telling us we should take the money raised by the friends of our children to help us pay for the care the State denies them – and go on a holiday to relax a bit.

√ They are telling us, injuries acquired by our children under their care don’t matter as long as their brains haven’t recovered (which they might not).

“They” are people in charge of neurological rehabilitation in Ireland.

Are they serious? Are they just disillusioned or burnt out? Are they ignorant of advances in their field?

√ They should take note of the highly prestigious Cochrane Report on: Multi-disciplinary rehabilitation for acquired brain injury in adults of working age (Review) which concludes that:

Patients presenting acutely to hospital with moderate to severe brain injury should be routinely followed up to assess their needs for rehabilitation. Intensive intervention appears to lead to earlier gains.

Patients with moderate to severe brain injury who received more intensive rehabilitation had earlier improvements.

√ They should take note of the CONVENTION on the RIGHTS of PERSONS with DISABILITIES of which Article 10 states that:

States Parties reaffirm that every human being has the inherent right to life and shall take all necessary measures to ensure its effective enjoyment by persons with disabilities on an equal basis with others.

√ They should recover their enthusiasm, energy, and empathy that made them choose their profession. And then they should add a pinch of outrage to the mix, outrage at the State that runs our health system; and that took away their verve to do good, to really care.

And then – then, we, together, can start doing what needs to be done and give to our children what they need to get and what is their right to get.

Today, Pádraig had two very short seizures. The first one occurred when the physio was about to start her stuff, so I blamed her. An hour later, a doctor came in and asked me to describe what had happened. So Pádraig showed him. – As his operation is going to happen tomorrow morning, a neurologist came and prescribed some anti-seizure medication, and then sent a message that they want to continue administer anti-seizure medication “peri-operative”. – And then I checked the side effects and caution notes of the antibiotic he was getting against some bacteria in his bladder, and all became crystal clear: tell your doctor if you had brain issues/injuries; seizures can be a side effect. – There were a few really difficult hours until Google lifted the terrible uncertainty. You might ask: why did none of the doctors mention this before, or even after? Sounds like a very sensible question to me ….

Well, if you made it here, you deserve a break. So, here is Step 2 to germanise yourself:

Screen Shot 2015-03-30 at 16.03.54

 

Screen Shot 2015-03-30 at 16.04.22

Tomorrow will be one of those big days. Fingers crossed. Candles lit. Mother lining all the angels up for support and to inspire the doctors to do the best job they can possibly do.