This morning, Pat and I met with a physio working in our local HSE clinic. She told us about the physio that would be available to Pádraig in the community services in Dublin. Pádraig would get a few physio sessions, about 15-20 minutes each, and then they would coach the carers in some physio routines. The carers that would come about 3, maybe 4, times a day to our house. When we asked her, she told us that there is not one physio in the HSE community services specialised in neurology. Not one. Ni uno. Nil. We also asked about equipment such as the viva el MOTOMed. The HSE has them. And there is a chance we would get it. For about three months. Then it would have to be passed on to other people. We didn’t ask how long it would take for it to ‘circle’ back to Pádraig.
Later in the morning, we met an architect to discuss what would have to be done to our house to accommodate Pádraig’s need in relation to a bath and bedroom facility; how to go about to build it. It’s going to be expensive. And it’s going to take time. Nothing decided. Just exploring.
After a rush to the airport, the tram, the train, the S1, I was back with Pádraig who had a friend visiting him from Dublin, which was really nice. I know and understand by now that it must be difficult at times for old friends who see Pádraig only from time to time to deal with the new situation. That’s why I, and I am sure Pádraig, appreciate it so so much that they all keep visiting, that they stay in touch, that they are with him, telling him about what they are doing, what has been happening in their lives. It must be so encouraging for Pádraig to here these familiar voices and see those familiar faces!
His nurse was so nice to offer her help to sit him into the wheelchair; he then also had some time for the MOTOMed – not that much altogether, but sufficient to get a break from the bed.
When we were leaving the nurse that had talked to Pat about the cap for Pádraig’s speech valve came over and said she hope that Pat had not taken it in a bad way. Of course she had not. It’s just the stress of having to deal with such situation that are, of course, not and never intended to be that way. It was such a nice and genuine gesture to come over and talk in such a nice way about such a difficult situation. Fair play.
I am still so sore, tired, and exhausted. I put the marathon medal (yes, I got a medal:) over Pádraig’s bed and repeated to him that we had a deal going on here.
My and our thanks again to all who raised funding for Pádraig via their participation in the marathon! You did well (Ciara ran under 4 hours!) and raised hundreds of euro – so did Donal! Well done to the two of you!
I thought that I should set up a sponsorship to my run : one euro for every minute I ran – the only way to outperform, maybe, Ciara and Donal.