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~ Acquired Brain Injury (ABI): from the acute hospital to early rehabilitation – more on: www.CaringforPadraig.org and www.ansaol.ie

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ANormalDay

05 Thursday Jul 2018

Posted by ReinhardSchaler in Uncategorized

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“Thursdays with Pádraig” is what his friends have agreed to do. They take turns and call in to see Pádraig, to update him on what is going on and to see how he is doing. Today, as t happened, two of his friends called in, at different times.

One of them told us that he was going to walk across Ireland. Why would he do this, I ask. Was his car broken? – Probably out of courtesy, he smiled. The rest of my family just looked at each other and blamed cultural differences. He is going to do this coast to coast walk with two of his (and Pádraig’s) friends. They hope to do it in nine days.

The other (slightly older) friend is seriously ill. He had been coming over to see Pádraig regularly over the years and had made friends even with some of Pádraig’s carers. For him, he said, everything was coming together. When he left, Pádraig had one of those moments when we all new and felt how sad he was. And there was nothing we could do about it.

This morning, before Pádraig had his first physio session following his return from the Cape, I went up to our local HSE office and collected the original of the signed (!) Service Agreement with the HSE. It was an almost unreal moment, holding this document in my hands that had taken close to a year to get together, and another six months to get counter-signed by the HSE. Now, we’re just waiting for the funding to get processed and then, there will be no way back!

After many ups and downs, today we decided to work on the refurbishment of ‘Creation House’, the FABrik, the old Smurfit factory. It will take up to nine months to get planning permission, the paperwork processed and the work done, I was told today. We will need to find interim premises to start getting on the tracks after the summer. It is amazing to see things changing and turning from ideas into reality!

So what kind of day was this today? A mixed bag day? Or just: a ‘normal’ day?

I think it was the closest thing you could get to a ‘normal’ day

Structured

04 Wednesday Jul 2018

Posted by ReinhardSchaler in Uncategorized

≈ 1 Comment

Are we back to the daily routine? Are Pádraig’s days structured again along the lines of carers coming and carers leaving? Has anything changed? Are the days of exploring and conquering days gone by?

To the contrary.

They are just about to start.

Which way is he going to go?

How would I know?

It’s his life. It’s his decision.

He is the master of his fate.

He is the captain of his soul.

Under the bludgeonings of chance,

His head is bloody, but unbowed.

He is invictus.

Video

03 Tuesday Jul 2018

Posted by ReinhardSchaler in Uncategorized

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Here is a video my phone put together. I have no idea how it did it. None.

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There’s no therapist in sight. There is no-one encouraging Pádraig to move his arm, his hand, a finger, his leg or foot – not even his head. Yet, this video is full of smooth moves and full of spectacular ‘firsts’.

A lot of what Pádraig experienced last week is in there: the walk from the Police Department to the spot of the accident. The encounter with the jogger who performed CPR five years ago. The sign we had put on the roadside two years ago which was resurrected by an unknown friend and placed with a solid metal stick screwed on to it into a prominent roadside ‘garden’. Breakfast in the garden/house of a good friend (Pádraig had met for the first time). The visit to the Brewhouse for Pizza and Beer with his two friends who had been with him in Cape Cod five years ago. A visit to the house he and his friends had stayed, beside a beautiful lake with some ‘lake chairs’ still waiting for their return. Dinner at Gerardi’s Cafe, where the owner and staff welcomed him with open arms and open hearts. And a quick shot of the car we had rented after much difficulties in which he could sit right beside me in the passenger seat position.

PS: I lied a little earlier when I said that my phone prepared the video with no input by myself. I did pick the background music theme: happy. Hope you like it.

Went swimming today and Pádraig managed to stand on one side of the pool, holding on to the bar, all by himself, with me just helping him a little to keep his head up straight. Something unthinkable only a few months ago.

H-A-P-P-?

02 Monday Jul 2018

Posted by ReinhardSchaler in Uncategorized

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When Pádraig today spelled out what his greatest memory of his visit to Cape Cod was, we guessed the fifth letter.

When a cousin later dropped by and left a super tasty fruit/cream/meringues roll for him, that happiness continued and spread. We all had our double sugar boost and (nearly) finished this work of art in less than 15 minutes.

My heart is aching, there is a knot in my throat, and I am on a high – not just because of the sugar from this magic roll. We had thought long and hard about going with Pádraig to Boston and Cape Cod. At times, we had not been so sure whether this was the right thing to do. How would Pádraig take the trip physically and, maybe more importantly, emotionally. How would we take it.

Feeling happy for having done this trip is the best we could have wished for.

Much of this is thanks to the people we met along the way. From the staff in the airport and the plane, to the attorneys in the AGs office (at a personal level), the people working in Cape Cod Hospital, the Irish-American family who put us up five years ago and who we met again, the group of people who walked with us, some of whom traveled especially from Boston to the Cape for the day, his former landlord and wife, their son and daughter in law, even the Brewster Police Department who could  have handled this in a much less supportive way, the lady we had never met and invited us all over to her house for breakfast, the friends who made a point in coming to the airport in Boston to say good-bye to Pádraig, the people who so generously donated to support Pádraig’s Walk for Life.

I have always been annoyed that I hadn’t been born ten years earlier so that I would have experienced flower power first hand. So that I could have been in Woodstock or in San Francisco.

Last week, there was more love and peace and rock’n roll in Brewster Massachusetts, than there has ever been in Woodstock or in San Francisco.

Love and peace and rock’n roll. We’re conquerors. Dreamboaters. H-A-P-P-Y and beautiful people.

We’ll continue to turn bombers into butterflies.

And we’ll find ways for persons with catastrophic brain injuries and their families to enjoy life again, most of the time:) We’ll change the hearts and minds of people about very severe acquired brain injury so they’ll never ever think, never mind say, ever again that any money spent on their rehabilitation, in the widest sense, was a waste.

Review

01 Sunday Jul 2018

Posted by ReinhardSchaler in Uncategorized

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Pádraig’s Walk for Life is getting quite a bit of coverage.

The return of Padraig Schaler

TheDriveSafeApp
It’s been a battle and it has led Padraig down a long road, including one … The walkers who accompanied the family carried signs — Share the road, …

The return of Padraig Schaler

Cape Cod Daily News
BREWSTER—Five years on, to the very day and hour, Padraig Schaler revisited the curbside on Route 6A where his life took a disastrous turn.He was …

The return of Padraig Schaler

Wicked Local
BREWSTER — Five years on, to the very day and hour, Padraig Schaler revisited the curbside on Route 6A where his life took a disastrous turn

Irishman who suffered serious brain injury in US accident returns to site of crash

IrishCentral
Five years on from the accident that left doctors asking his parents whether they really wanted an “intolerable life” for their son, Pádraig Schaler returns …

Irishman who suffered catastrophic injuries in US returns to scene of crash

Irish Times
This morning, Pádraig Schäler (27), his family, friends and local well wishers … A promising swimmer, Pádraig Schäler had just completed a degree in .

Long road back for Irish man injured 5 years ago in Brewster

Cape Cod Times
BREWSTER — On June 27, 2013, 23-year-old Padraig Schaler hopped on his bicycle and pedaled toward the Bramble Inn on Route 6A. Just as he .

The journal.ie Facebook coverage

The journal.ie’s Instagram coverage from Monday, Tuesday, and Wednesday.

Pádraig even hit the front page of the Cape Cod Times!

In addition, there were hundreds of tweets, shares, and likes from people Pádraig has touched, not all of them met. There were also many people who made generous donations via PayPal and GoFundMe for Caring for Pádraig, set up by a group of friends to raise funding for Pádraig’s therapies and associated costs.

To all of the people who supported Pádraig’s Walk for Life, to raise awareness and to push for justice, who supported him in so many different ways: from the preparation of posters to organising a fantastic breakfast for all walkers, to spending time with him during his walk: Thank You!

None of this would have been possible without your help!

Leitrim

30 Saturday Jun 2018

Posted by ReinhardSchaler in Uncategorized

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My head is still spinning and I am wondering whether I am getting used to that feeling.

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To keep it like that, we decide to go to Leitrim for the weekend. Sure, why not. The bags don’t even have to be packed (they still are). Nice BBQ in the afternoon and dozing in the sun, recovering.

BackHome

29 Friday Jun 2018

Posted by ReinhardSchaler in Uncategorized

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#SaolWalk   #PádraigsWalk

http://www.CaringforPadraig.org

Friday morning. First flight in to Dublin. One of us straight off to Galway. One of us straight up to the hospital (‘routine’). Two of us home, having a shower and trying to settle back in. To normal life. Tired as tired as one could be.

Up to a meeting in the old Smurfit premises and in what could still become the home for the An Saol Project.

Afternoon all in a haze. And off to bed.

TheDayAfter

28 Thursday Jun 2018

Posted by ReinhardSchaler in Uncategorized

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#SaolWalk   #PádraigsWalk

iwww.CaringforPadraig.org

Breakfast. Packing. Drive. Airport. Flight through the night back to Dublin. Our last day on the Cape was short and really uneventful. It was raining really bad and we were saying how lucky we had been with the weather on the day.

The enormity of what had happened during the week is not even yet dawning on me.

TheDay

27 Wednesday Jun 2018

Posted by ReinhardSchaler in Uncategorized

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#SaolWalk   #PádraigsWalk

iwww.CaringforPadraig.org

We got up early and made it to Brewster Police Department for 9am. Together with about 16 old and new friends, Pádraig went, in his wheelchair, up the road and around the corner, for just over a mile, to the exact spot where the accident had happened at the exact time we got there, at 10am. Brewster Police Department pulled out all the stops and secured our walk with two squad cars, or: “Cruisers”, one at the back and one in the front, stopping traffic along the way. “We don’t want anybody to get hurt”, one officer said. Who could have disagreed? We had wondered how we’d get back to the Police HQ to collect our cars but shouldn’t have worried. We all got a ride in the ‘cruisers’.

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At the spot – used to be close to the Bramble Inn, now the Spinnaker -, Cian, Neil and I had put down a plaque two years ago, when we had cycled from Boston to Brewster for the third anniversary of the accident. I had not expected to see that simple, plastic plaque ever again, but someone had stabilised it with a metal stand and repositioned it prominently beside the roadside in what almost looked like a small garden.

And then, at 10am, a jogger came along an stopped. It was Mary A. Foley who had done the exact run at exactly the same time, exactly five years ago. When she witnessed the accident and was the first to give Pádraig CPR (she is a nurse). Still cannot believe it.

One of our new friends invited us all to her house where we had a lovely breakfast in the best company you could imagine.

Quick stop at the Brewster Brewhouse for beer and pizza for Pádraig and his two friends who had been with him on the Cape five years ago. On to the house on the lake where they all had stayed, quick chat with the owner. On to see his wife and daughter in law. And then dinner at Gerardi’s Cafe where Pádraig had worked. Pádraig picked his favourite dishes and enjoyed the best Italian food on the Cape! The owner and staff were so welcoming, it was brilliant!

Don’t ask me about emotions. About how I felt. About what it all means or meant to  me.

TheDayBefore

26 Tuesday Jun 2018

Posted by ReinhardSchaler in Uncategorized

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#SaolWalk   #PádraigsWalk

iwww.CaringforPadraig.org

Our first day in Boston. We got up early. Packed out bags. Had a quick bit to eat. Got the car. Drove to the John W. McCormack State Office Building, home to the Attorney General’s Office. Pádraig was going to meet the Deputy Chief of the Criminal Bureau. When he got there, he met him, and a handful of other attorneys, victim support unit and First Assistant Attorney General.

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The meeting lasted an hour. Pádraig and us learned that what is ‘usually done’ is not necessarily done. When a driver hits and almost kills a cyclist and leaves him with catastrophic brain injuries, what is usually done is: the driver is tested for substances, his mobile phone is examined, and his car is impounded. Evidence is secured. On State  Highways, State Police is called. – None of this happened following Pádraig’s accident. Instead, Pádraig was tested for substances in the hospital, his mobile phone and bicycle were impounded and examined. The driver got his car fixed that same afternoon.

Here is an extract from the official “Commonwealth of Massachusetts – Sharing the Road – A User’s Manual for Public Ways”, pages 108-109 (https://www.mass.gov/files/documents/2018/01/01/Drivers_Manual.pdf, consulted 26 June 2018)

As a motorist in the presence of bicycles:

• Do Not Cut-Off After Passing: When passing a bicycle traveling in the same direction that is on your right, you must not return to the right until you have safely passed the overtaken bicycle. (Chap. 89, Sec. 2)

(…)

• Do Not Squeeze Bicycles in a Narrow Lane: If a lane is too narrow to pass a bicycle at a safe distance, be PATIENT until you can safely use an adjacent lane or WAIT until it is safe to pass in the lane you share. (Chap. 89, Sec. 2) You should stay at least three feet away when passing.

(…)

• Be aware that bicyclists Do Not Always Have to Signal Turns! Bicyclists must signal their intent by either hand to stop or turn. However, the signal does not have to be continuous or be made at all if both hands are needed for the bicycle’s safe operation. (Chap. 85, Sec. 11B)

There is no shadow of a doubt that the driver in Pádraig’s accident did not take the necessary caution.

There was a doubt in the mind of the Attorney General’s Office attorneys that what the driver did and, subsequently, the police was a criminal offence. So they decided that they could not prosecute.

In the USA, in Brewster, the Police is only answerable to the local mayor or the equivalent of City Council. There is no non-local oversight.

To me, this is the Wild West.

I felt outraged. I did not ask Pádraig how he felt about the meeting.

We drove to Brewster and visited Cape Cod Hospital where one of the nurses who had looked after him five years ago showed him his room and the sign we had sent to them as a small ‘thank you’. I don’t think anybody then had expected to see Pádraig back in the hospital for a visit.

Later in the afternoon, we went to see the family who put us up in Brewster while Pádraig was in hospital and we had a really lovely get-together with them. Pádraig met them for the first time. And he was delighted!

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