I once worked for a company that made its fortunes on a product called 1-2-3. It was that easy to use. That was their message.
Here is my 1-2-3.
(1) Persons with severe acquired brain injury have been abandoned by the Irish health system – with dire consequences for them and their families. I could go on and on and on about what these ‘dire consequences’ are, from mental health, to physical health, to financial and relationship issues, and I am sure many of you could add to this list yourselves. This is a, largely untold, scandal.
(2) The Irish health system, represented by the HSE, is not capable of providing the support these persons require – and, I would say, are entitled to in accordance with their human rights. This is despite the Minister of Health and the HSE publicly stating that they would provide this help, at least in terms of the provision of funding for a three year pilot project aimed at connecting what research into neuro rehab for severely brain injured persons has been telling us for years with the reality of neuro rehab. This is, sadly, not surprising, given the dysfunctional state of the HSE. And there is not much we can do about that.
(3) We need to offer an alternative to the offering by the health system and demonstrate how neuro rehab can be brought into line with recognised standards of care and the human rights of those affected. Rather than continuing to write begging letters to the HSE to please honour their commitments; rather than wasting time trying to comply with their requirements which are largely an exercise in ticking boxes anyways and an attempt to protect themselves; rather than draining energies and becoming depressed because of a lack of progress. I will start writing and implementing a plan that will allow us to deliver much of the services that are needed. Starting tomorrow. And to be implemented before the end of the year.
Couldn’t be easier.
And. I could not even contemplate what failure would mean.