Today was amazing140416 Amazing

There was a bit of a delay, but today Pádraig had an opportunity to call you. Using his voice for the first time in a long time, it was not quite clear who he was calling, but it must have been in response to this shout of ‘Pádraig, Pádraig, Pádraig’ traveling on Sunday night from a very cold and dark beach in Bray all across the way to Hamburg.

We had made an appointment with his speech therapist for this morning. When she unblocked the tube, Pádraig struggled a bit with shoutthe new and probably irritating sensation in his throat. Once he got used to it a little, the therapist blocked the tube so that Pádraig had to breathe through his mouth and nose. Again, a whole new sensation after so many months. The amazing thing is that he was able to do this, struggling first, but then relaxing a bit and taking the air in through his mouth and nose, and breathing it out the same way. This is when we heard his voice, not articulating clearly, not ‘real’ speech, but it was as if he was trying to tell us something, as if he was trying to speak. Of course, we don’t know whether that was really the case, but that is how it sounded. It was amazing for us, and it must have been even more amazing for him. I think he was saying to all who went on this mad adventure over the weekend “you’re an amazing, crazy and mad bunch of people. I heard you on Sunday night!”

As if that was not enough, a really caring nurse asked the therapists today about how to use the exercise ‘bike’ – and then, she got him going on this gadget for about an hour. Some time this week, she’ll show us how it works.

rose gardenAnd we got word that the super-dooper custom-made rocket don’t-stop-us-now-cause-we’re-having-a-good-time wheelchair will be beamed down to Eilbek from the universal special assembly station up in the solar orbit stelar system early next week. We can’t wait!

Remember the rose garden? Well, it won’t be long now!

The Dublin Women’s Mini Marathon will take place on 02 June, Bank Holiday Monday, and there will be a sizable contingent of Pádraig’s friends joining the marathon to raise funds. We’ll have more details on that soon. But in the meantime, please remember to sign up for the event, because the deadline for signing up is approaching soon: Friday, 18 April, is the last day! Sign up here. So far, 36 brave runners have signed up on the Facebook page – but in order to be allowed to run, you will also have to register on the race’s official website.

Today’s German Music Tip
Ape, Beck und Brinkmann, Endlich ein Liebeslied. Another band from my Heimat who gave their last concert in Dortmund in 1987… 

Was nützt den alles Weinen, unser Schreien, unser Klagen,
Wenn wir das, was wir zwar meinen, doch vor lauter Angst nicht sagen.
Jedes nicht gesagte Wort, jene Eiszeit der Gefühle,
Nimmt uns nur die Kraft für uns’re Träume, uns’re Ziele.

What’s hot
Voice and Exercise
What’s cold
Silence and lack of activity and challenge

The German word/phrase/verse of the day
Da fackeln wir nicht lange…

Twitter: @forPadraig
http://www.caringforPadraig.org