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~ Acquired Brain Injury (ABI): from the acute hospital to early rehabilitation – more on: www.CaringforPadraig.org and www.ansaol.ie

Hospi-Tales

Tag Archives: padraig

Exercise

05 Friday Sep 2014

Posted by ReinhardSchaler in Uncategorized

≈ 3 Comments

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Der Kommissar, padraig

If you want to go for a swim or just for a walk on Killiney Beach tomorrow, getting some exercise, check out Leinster Open Sea Swimming who are organising a Swim for Pádraig with the men’s race starting at 1pm and the ladies race starting at 1.45pm.

Screen Shot 2014-09-05 at 21.14.35

Screen Shot 2014-09-05 at 21.14.47

It was another ‘schön’ day in Hamburg: the sun was out, it was warm, and Pádraig’s really nice music therapist agreed to go out with us for a walk. You could see and feel how much Pádraig enjoyed that walk. The movement of the wheelchair itself on slightly uneven surfaces must have been a great ‘wow’ experience, some great exercise. On top of that the sound of birds, the voices of loads of different people, including children… I’m sure he’d like to do this more often.

I was thinking the other day that we should try out some different kinds of exercises, just for the feeling, to get a better understanding.

So here is it, exercise no. 1: Go to your bedroom and lie down on your bed.

Make yourself comfortable. Really comfortable. Easy? – Easy! Now here comes the difficult part: you are not allowed to move any part of your body for 30 minutes. Ignore the pain, ignore the itching, just don’t move. Hard? – Hard! Very hard, I think. Now imagine not being able to move for an hour, a day, a month, a year. To be honest, I cannot imagine what that would feel like. At all, at all. – And then think about health services saying that there is no money to provide people with severe brain injuries to receive the therapies they require – because their cases represent a bad investment.

Makes you wonder, doesn’t it?

Today’s German Music Tip
Falco, Der Kommissar. This is a real brilliant classic, great song for dancing, great lyrics, hard to understand that it took me so long to dig this one out. “Alles klar, Herr Kommissar?” (at 3:40m). 
What’s hot
Exercise
What’s cold
Health Services seen as an investment – does every spend has to provide a return?
The German word/phrase/verse of the day
“Keine Asche inne Tasche, keine Butter füa dat Futta” – what you’d say in the Ruhrgebiet at the end of the month when you’ve run out of money: no money in your pocket, no butter on the table (to eat).

AmhránDoPhádraig

29 Sunday Jun 2014

Posted by ReinhardSchaler in Uncategorized

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Garda Síochána Ombudsman Commission, national broadcaster, padraig, RTÉ Nuacht

RTÉ Nuacht, the main Irish news on Ireland’s national broadcaster, had three main news items tonight: the Garda Síochána Ombudsman Commission, the collapsed building in India, and – Amhrán do Phádraig, a report on the first anniversary of Pádraig’s accident and this morning’s brilliant practice session for the recording early next week. There were great interviews with Caoimhe and Maitiú – and, of course, plenty of music.

140629 RTENuacht

140629 RTENuacht

 

Built a boat yesterday
In one early morning half dream
And it floated like a dream

Let’s have some fun
Seosamh interviewed by TG4

TG4’s player didn’t have tonight’s News (Nuacht) programme available yet – we’ll get it tomorrow, no doubt!

Thank you to RTÉ’s Irish language newscasters, to Pádraig’s friends in the Irish media, to all who got up in the middle of the night (!) today to make it to the practice session in the Conradh! Pádraig was there with you, all the way!

Pádraig today was almost back to normal. I guess the antibiotics were doing their job, all vital indicators were back to normal. Though there was no speech valve, no wheelchair, no MOTOMed viva 2, no nothing – just a long auld lazy rest day for a change. We were telling him about all the brilliant stuff going on in the Conradh, we were showing him the news on TG4, and talked to him about the plans for the music session on Tuesday, the recording sessions later in the week. No doubt, he is with his friends in Dublin!

Bq_kjrECYAEp8pK.jpg-large

Built a boat yesterday
In one early morning half dream

Tú féin ag cabhrú liom
Craobhacha a bhaint de chrann

Ghreamamar le chéile iad
Le drúcht ó na ribí féir

Is báidín gleoite í
lán de dhóchas ó mo chroí

(curfá)

and it floated like a dream
on those waves just you and me
is it a sign of things to come
lets just sail and have some fun

agus sheol sé le gaoth
ar bhruach na brionglóidí
An dea-thuar é seo tá romham
Ragham ag spraoi ar bharr na dtonn

Trying

23 Monday Jun 2014

Posted by ReinhardSchaler in Uncategorized

≈ 4 Comments

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Jon Krakauer, Mercedes Sosa, padraig

images“That’s what was great about him. He tried. Not many do.” (Jon Krakauer, Into the Wild)

Pádraig is one of those people who keeps trying. Yesterday was one of those days when he succeeded. Today had to be different.

First, the kind of thing happened that doesn’t happen very often: the therapists had a double session available for him. Time to bring the tilt table. And then, guess what! They asked him whether he wanted to have a go, not once, but twice! And guess what he ‘said’? NO – sticking his tongue out on the left. Not once. Twice. And guess what the therapists decided? Pádraig is boss. So they let him stay in bed! I mean…? Ok. Well. They came back and said that he’ll have, wait, a *triple* session tomorrow!!! – I can tell you, we spent the whole afternoon trying to get it across to Pádraig that when therapy is on, it’s on. And it’s not really an option, but rather all inclusive! None of this sticking-out-your-tongue-on-the-left-side business!

Later in the afternoon, we had a bit of a scare, like a reminder that we can’t take anything, anything at all, for granted. His oxygen levels went down when he was turned onto his right side by his nurse (one of those caring people that look after him so well). He didn’t like it and made his point so clear that at some stage he had not just one but two doctors in his room. His heart rate went up and his oxygen level so down that he was put back up almost in a sitting position. He got over that bad phase and settled back down to almost normal levels, now on his left side, with at least one, if not several new sensors attached (the latest craze: wearable computing).

Copy_of_STU08ROMAN_1072865kSome call it a bucket list. Some call it ‘100 things to do before you die’. No matter what you call those lists, they suggest to capture what life is all about. See the Taj Mahal, visit the Pyramids, climb up the bell tower of Notre Dame. There are travel agencies that make the arrangements. You just have to make the ticks. Life becomes a list of things to do. Life is short so you better get going. Loads of ticks = great life. Last Sunday’s Sunday Times had a report that added another item to that list. In fact, it has become the most visited place on the planet with more visitors that the Eiffel Tower, the Pyramids and Disney Land together: the Dubai Mall. It’s official: the meaning of life has become a shopping mall.

Today’s Music Tip
Mercedes Sosa, Alfonsina y el Mar (1969). While the youtube video shows for its 45 years, the song itself is still pure brilliance. Mercedes Sosa was the first to record it on ‘Mujeres Argentinas’. I heard it for the first time in Madrid in the summer of 1979. It has been with me, with us ever since.
What’s hot
Staying on top and trying
What’s cold
Surprises
The German word/phrase/verse of the day
Erstens kommt es immer anders als man zweitens denkt.

ThumbsUp

22 Sunday Jun 2014

Posted by ReinhardSchaler in Uncategorized

≈ 10 Comments

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Brenda O'Malley, padraig

imagesThings were always coming in three, that way they are easier to remember. Today was different. Today, things came in four…

It was one of those days to remember, because of four things: (1) The incredibly helpful and friendly people looking after Pádraig today showed us that it is possible to sit him out in his wheelchair even on a Sunday, with reduced staff and no therapists helping out. It was so good to see how well he was able to take what for him is quite a bit of an exercise – sitting out for a number of hours in a wheelchair. (2) Then his doctor decided that he was able to take the speech valve for 2 hours twice a day (rather than just 1 hour); and it’s amazingly true: what should be stressful on him, the use of the speech valve, seems to be more natural for him, getting him to breather really well and bringing up his four thingsoxygen levels a few percentage points. (3) Pat wanted to put a towel under his arm and told him that she was going to lift up his right arm – and, as she did so, Pádraig, all by himself, lifted up his right arm including his elbow, to allow her to put a the towel in place. (4) And it got better even than this: when two of his good friends from Dublin who were visiting him this weekend asked him to give them a ‘thumbs up’, he did! – If he keeps going like this, there won’t be anything or anybody stopping him…

The O’Malley’s Table Quiz on Friday night was a huge success. The O’Malley Clan (Pádraig’s grandmother was Brenda O’Malley) really went all out. Hundreds of people gathered in Crokers of Murroe (Limerick) from all over the country to support the event. On behalf of Pádraig and of his family: a very heartfelt ‘thank you’ for an amazing night and the incredible support shown! More details to come…

Today’s (German) Music Tip
Die fantastischen Vier, 25 (2014). The 25 year anniversary single of one of Germany’s longest-running hip-hop-bands from Stuttgart!
What’s hot
Four
What’s cold
Three
The German word/phrase/verse of the day
Daumen im Wind

Language

21 Saturday Jun 2014

Posted by ReinhardSchaler in Uncategorized

≈ 2 Comments

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Christopher McCandless, Frank Zappa, Konstantin Wecker, padraig, Rory Gallagher

imagesHave you seen Into the Wild? Have you read the book? It’s both my favourite film and my favourite book. To my absolute surprise, one of Pádraig’s friends who had staid with him from the very day of the accident till we left was reading it to him in Cape Cod. Turned out that the two had planned to follow the journey of Christopher McCandless through America. Since we came back from Hyannis, I have been telling Pádraig that he will be going to do this trip, up to Alaska, once he is well enough, with his friend (and me, if they take me with them). Today I asked him whether he would like to go on this trip. The answer was inconclusive, the tongue kinda staid in the middle. I’ll keep asking.

What do you think about the following? –

“… Make a radical change in your lifestyle and begin to boldly do things which you may previously never have thought of doing, or been too hesitant to attempt. So many people live within unhappy circumstances and yet will not take the initiative to change their situation because they are conditioned to a life of security, conformity, and conservation, all of which may appear to give one peace of mind, but in reality nothing is more damaging to the adventurous spirit within a man than a secure future. The very basic core of a man’s living spirit is his passion for adventure. The joy of life comes from our encounters with new experiences, and hence there is no greater joy than to have an endlessly changing horizon, for each day to have a new and different sun.”

Pádraig is one of the most sensitive, caring people I know when it comes to languages. He taught me how important it is for your identity, for your ‘self’ to be firmly rooted in your language, while being really respectful of the languages of others. He insists in the use of and his right to use Irish, his language, where it matters, and he makes a real effort to speak German to me even when it would be easier for him to speak English. It is really brilliant to see that he has maintained his ability to understand all the languages that he grew up with, after the accident. The nurses and I speak German to him, Pat speaks English, and his Irish friends continue to communicate with him in Irish. He even invented another tongue, literally.

This week, we changed our routine a little (because of visitors) and went to Tating a day early. We stopped by our local in Garding to show this incredible place to our cousin from Australia and an Irish friend. As always over the weekend, there was live music, people having a drink, smoking (!), in this tiniest of places, the music was free (they collect whatever you want to contribute by passing ’round a hat), and loud. Last night’s band played Rory Gallagher, T Rex, and the Doors. The Roadhouse Blues almost lifted the roof off the place. I had to pinch myself to remind me that this was now and not then.

Over the past years, each time I’ve been listening to an English song, I understood it a little bit better. This morning, though, I had to check the lyrics online for some words I never quite got – even after almost 30 years of learning English, of the Roadhouse Blues. When I did, I wondered how it ever got air time on commercial mainstream radio. There is the ok Road Safety Authority – type tag line we all sang on top of our voices, ‘Keep your eyes on the road and your hand upon the wheel’, but there are also lines about the bungalows behind the roadhouse and other not really sufficiently ambiguous things going on. My favourite, kind of existentialist line probably is about the future being uncertain. Thinking about it – this is nothing, considering that Frank Zappa’s Bobby Brown made it to No. 1 over several weeks when it came out and even the German DJs playing the song were wondering whether people buying and listening to the song understood what it was all about. You know what I mean if you check out the lyrics. Turned out that in this case content did not matter, nobody cared, the German’s loved the music and Zappa’s voice. And that was that.

You don’t have to go Into the Wild on your own. Right?

Today’s (German) Music Tip
Mercedes Sosa, Konstantin Wecker, Joan Baez, Ich singe weil ich ein Lied habe (2009, live in Xanten). This must have been some concert: the three greatest (protest) singers of all times, from Argentina, Germany, USA. ‘I am singing because I’ve got a song, not because you like it, not because you commissioned it or because you pay’.
What’s hot
Indoor ‘Bad’
What’s cold
The North Sea – even during the summer
The German word/phrase/verse of the day
Bad – it’s a bit like Rathaus, not ‘Bad’ at all, but a ‘bath’:)

Trapped

21 Thursday Nov 2013

Posted by ReinhardSchaler in EarlyNeuroRehab, Uncategorized

≈ 1 Comment

Tags

padraig, Patrick

Cairde a chara

Last night, I collected Pat from the train station in Heide (yes, this is the city with Germany’s largest market square!). You’ll remember that we gave the little red Kia

Trapped and ready to ring 110

Trapped and ready to ring 110

Ferrari a break, as Pat went straight from the airport to see Pádraig and then took the train towards Dithmarschen. For a change, I was on time. And waited. Until Pat rang and asked me where I was. Turned out we were on opposite sides of the quite small railway station, me in the car and Pat – trapped in the Deutsche Bahn waiting room, having escaped from the arctic temperatures outside. When my engineering skills failed to open the automatic door, Pat and I decided we were not going to smash the glass but to ring 110 instead (that is 911 for the Americans amongst you). 10 minutes later, security arrived and opened the door. When we pointed out that this was something quite dangerous: a door that allows people in but then leaves them with no way out, the security man said: “Well, she shouldn’t have gone in there in the first place”. Right, we thought. In our innocent minds, we had expected an apology but now were getting a whole new perspective on things. You might find that doors open on the way in but are firmly shut close when you are trying to get out.

Today, Pádraig took a small step back. The microbiologists discovered traces of a bacteria or germ which required Pádraig to get back into isolation, and us to get back into our beloved blue gowns and mouth protectors. There is no clinical evidence of the bacteria, i.e., they don’t do any active damage at the moment, but the hospital is über-careful to contain any possible threats. It was easy for Pádraig to get into his bright new high-tech room – I hope we won’t have to call Deutsche Bahn security to get him back out, one day soon.

We are trying to tell the nurses and doctors what Pádraig can and what he cannot do, what he needs and what he doesn’t need. They haven’t figured out yet how Irish families work and still live under the illusion that they could fob us off telling us ‘stories’ when we represent a collective year of ICU experience by now. For example, there is no-one better than Pat to know when Pádraig needs to be suctioned, the nurse who didn’t believe this learned about it tonight. We give them another week or so, by then everybody will know much better where they stand.

This morning, we heard on RTE that the European Commission is bringing Ireland to the  European Court of Justice because it failed to implement the European Directive of the 48-hour-per-week maximum working time. The EC felt that this was not just unfair to doctors but that the practice was also putting patients at risk. Apparently, Minister O’Reilly, himself a doctor, didn’t understand what the fuss was all about as he had already clarified that the 2003/88/EC directive would be implemented in late 2014 – just 11 (eleven) years after it was published. – You wonder whether O’Reilly is capable of getting out of the trap of his protected life as a minister. Should we ring 110?

Le meas,
Reinhard

Today’s German Music Tip
Udo Lindenberg, Highlights of MTV Unplugged (2011) (Don’t be mislead by the ‘2011’, Udo is Germany’s oldest and original Rock Musiker who teamed up with some younger German colleagues to play some of his best music in the Hotel Atlantic in Hamburg just two years ago. I know all the lyrics off by heart:)
What’s hot
The no-Stau Autobahn
<6l/100km
LTE
Kilometres we have driven to-date (since Wed., 13 Nov): 2,074
What’s cold
Isolation
The weather
The German word/phrase of the day
Die wolln mir erzählen von Hamburg bis Laos, wo’s hier langgeht in diesem Chaos. (Udo Lindenberg in: Der König von Scheissegalien)

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