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~ Acquired Brain Injury (ABI): from the acute hospital to early rehabilitation – more on: www.CaringforPadraig.org and www.ansaol.ie

Hospi-Tales

Tag Archives: Hamburg

Horror

14 Friday Aug 2015

Posted by ReinhardSchaler in Uncategorized

≈ 2 Comments

Tags

Hamburg, horror movie, horror movies, Kiel University

What comes to your mind when you think about ‘horror’?

Real events? Fictional movies or books?

There are people who like the idea of being ‘horrorised’. The most amazing person I ever met was a lady in Buchholz north of Hamburg with a locked-in syndrome whose favourite movies are horror movies. The people in the institution she lives in worked really hard and enlisted the help of researchers from Kiel University to use an Emotiv device (a kind-of simple version of an EEG device developed for computer game playing using just your thoughts) to allow her to switch through the channels on her TV until she found a horror movie.

One particular horror movie is, in reality, the biggest, most-fun, and bizarre party-movie of all times. And today, it’s the 40th anniversary of the first ever screening of it in London. I’m talking about, of course, the Rocky Horror Picture Show.

There are many things you can say about this movie. You might, in fact, not like it at all. In my mind, it’s the essence of what can happen to you if you are literally thrown into the midst of the most unusual circumstances.

Original_Rocky_Horror_Picture_Show_posterThe poor, newly engaged couple Brad Majors and Janet Weiss find themselves lost and with a flat tire on a cold and rainy late November evening seeking a telephone in a nearby castle and discover a group of strange and outlandish people who are holding the Annual Transylvanian Convention. What follows is sheer madness. Rocky is brought to live and Eddie rides out of a deep freeze on a motorcycle. And this is just the beginning. In the end, the whole castle turns into a rocket and lifts off into the universe.

One of my favourite lines is: “I’m here. There’s nothing to worry about.”

What’s the point of all this? None, I suppose, for many people. For myself, it’s an example of sheer senseless letting-it-all-out and enjoying yourself as much as you can, even in the strangest, most unexpected circumstances. To live your life to the fullest and celebrate it! There are no real horrors. Being horrorised can be uplifting and give you the deepest and most valuable experiences of your life.

Today, Pádraig had the last visit by his carer and by his physio before our departure to Pforzheim. It’ll be a long break from all that has been going on here in Hamburg. The time in Pforzheim will hopefully give Pádraig a big boost while also giving us some time to think and plan the next steps.

The amazing thing is that Pádraig is really ready for the next step. Just some months ago, when we were talking to the people in Pforzheim, we were not sure how ready Pádraig would be to start on such an intensive programme of therapy this summer. Now, he is. And I am sure that with his stubbornness and determination to do the impossible he’ll surprise us all. Yet again.

There are no scary horrors in life unless you allow yourself to get scared. Horrors are the unexpected. The unknown. The uncontrollable. The unforeseeable. They can stun you, they can scare you, they can damage you – if you let them. Or: you can take them on, confront them, take them as experiences that help you pushing out your boundaries, leaving your comfort zone, and becoming a stronger person.

Spaghetti

03 Monday Aug 2015

Posted by ReinhardSchaler in Uncategorized

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Hamburg, padraig, Pforzheim, Spaghetti

Spaghetti with tomato sauce seems to be the food Pádraig likes best at the moment, not the stuff from a jar, but home made. Ok, we cut the spaghetti into small pieces, and mashed it just a little bit, but it’s spaghetti, the same we would have a few hours later. It’s slow eating, it’s small quantities, but it’s ‘normal’ food. Who would have thought!

We’re also just back from a long walk along the Wandse at 30oC. The summer smells, the crickets in the grass, it almost felt like the south of France or Spain.

Today, we told the carer and Pádraig’s physio and logo that we will go to Pforzheim in just under two weeks. It’ll be a six weeks stay. A change of environment, “Tapetenwechsel”. Also, a very intense and focussed time of therapy with up to five hours a day.

It’ll be a great opportunity not just for Pádraig, but also for myself to learn about how such a therapy centre works and the kind of therapy given. Usually, they would allocate two therapists to a client such as Pádraig, in our case I will be one of the two to keep the costs down.

It’s one of the most wonderful and beautiful nights in Hamburg. Warm, with a light wind. Perfect.

I’m afraid to leave this behind. Who would have thought that we were going to live almost two years in Hamburg. In Duhlsberg. In Tonndorf. It’s all moving so fast. So slow. So unpredictable. So scary. So Into the Wild.

I never want to leave here. I want to leave straight away. I know that all here would be working our for Pádraig, that there is a system that would always look out after him. I know that his friends are in Dublin that our friends and family are there being not a substitute for but far better than any system I could imagine.

We’ve less than two weeks to go to Pforzheim. Hamburg-time is coming to an end for the time being. What will the future hold?

Today’s German Music Tip
Westernhagen, Wieder hier, Ich rieche den Dreck, ich atme tief ein, und dann bin ich mir sicher wieder zuhause zu sein.
What’s hot
Tapetenwechsel
What’s cold
No music, no dance
The German word/phrase/verse of the day
Das krieg’n wir schon hin!

An  Saol 
Living your life with severe acquired brain injuryAn Saol

Heiligabend

24 Wednesday Dec 2014

Posted by ReinhardSchaler in Uncategorized

≈ 6 Comments

Tags

Christmas Eve, Hamburg, padraig, Pope Francis

Who would ever have thought? A second Christmas Eve in our apartment in Hamburg. A second Christmas Eve with Pádraig in the Schön-Klinik. That certainly was not the plan a year ago…

Do you make plans?

Did you hear about Pope Francis’ list of 15 Ailments of the Curia delivered in his Christmas address? I had a look at them and have promised myself to read it again with more time. This is a list not just for the curia, this is a list for us normal mortals too.

Number 4 caught my attention:

Planning too much. “Preparing things well is necessary, but don’t fall into the temptation of trying to close or direct the freedom of the Holy Spirit, which is bigger and more generous than any human plan.”

It’s another way of expressing what many people on earth, of different beliefs, believe: that our plans never take us very far.

At the same time, an inability to plan, for whatever reason, is probably one of the biggest stress factors, one that is so stressful, that it can be torture-like.

IMG_9872From mid-day today to Saturday, Germany will close down. They will briefly open on Saturday morning, and then close again for Sunday. A lot of Irish people on panic stations on Christmas Day because some essentials are missing (“What do you mean? – There were no batteries with it???!!”), running out of food on Stephen’s Day (although that is unlikely – usually the turkey and ham last for a week to finally end up on sandwiches), or nervous to exchange their unwanted gifts and get the best items on Stephen’s Day Sales, a lot of them would not understand this. I have heard of Irish people on motorways trying to find the next airport or open garage to buy bread and milk on Sundays, never mind Christmas.

IMG_9873We will have a few days together here in Hamburg. Apart from not sitting in front of an open fire with the Christmas tree and crib in the corner. Apart from not being with our our Irish family, and so far away from all of Pádraig’s friends. Apart from this, we are lucky. Lucky to be together, with Pádraig. Of course, there is much we hope for – and Christmas is the time when we are full of hope for things to come. Amazing things. Things we would never have anticipated.

Padraig is doing well, he has improved so much over the past year, there is nothing stopping him now. And we, you, all of us, will support him every step of the way.

Despite of what Pope Francis’ #4 says, I’m making a plan. And I’m making it for Pádraig too. Let’s get onto the Dreamboat!

Separation

09 Tuesday Dec 2014

Posted by ReinhardSchaler in Uncategorized

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Hamburg, padraig

We separate for you! (So you don’t have to do it yourself.)

I am on my last trip away from Hamburg and Pádraig before Christmas. There will be a family visit tonight (probably over by the time I manage to send this), a very very very early drive across Ireland to the West, over to Limerick at lunch time, overnight stay there, back to Dublin in the evening, and back to Hamburg on Friday. (Just took a deep breadth when I finished writing this list. It’s longer than I had thought.)

We went to see Pádraig this morning before we left for the airport. He had been with a couple of therapists and they could not get over how alert he had been: movements and reactions all as per their requests. It was one of his really good days.

Handy: The Germans separate for you - at Bremen airport.

Handy: The Germans separate for you – at Bremen airport.

Tomorrow will be one of the very rare days when neither Pat nor I will be with Pádraig. We’ll be separated, in a way. But one of his sisters will be with him, and Pat will be back a day ahead of me.

It’s just after midnight now, time to go to bed. But before I go, I wanted to just mention that in between a hectic, long day, tonight I met with one of Pádraig’s great friends from whom I collected some of the CDs. When I write from Hamburg, I think about and feel the friendship and energy, and I know Pádraig does. However, being in the company of his friends is a completely different kind of thing. And I can probably not even just imagine, how that would be for Pádraig.

And two very last notes on what has been on the RTE +1 channel – we missed most of the report from that ‘home’ for people with disabilities, but watched the discussion. What the RTE investigative unit discovered was called by the reporters assault. – What would you call ‘treatment’ that leads to dislocated shoulders, haematoma, dropped feet, and spasms? I’ll stop here and go to sleep. It’ll be another day tomorrow.

Head(s)Up

05 Friday Dec 2014

Posted by ReinhardSchaler in Uncategorized

≈ 4 Comments

Tags

Hamburg, padraig

I visited my mother this morning. She didn’t stop asking for Pádraig. How he is, whether he understood what we are saying to him, whether he can move, how strong his voice is… She stopped every nurse passing by (and there were a few of them) to tell them that I was her son and that my son was very sick in a hospital in Hamburg. We spent a few hours together and we talked about Pádraig. Going over the same questions again and again. Memory doesn’t get better with age.

Seeing your parents get old and fragile, not being able to help themselves anymore, when they had, all their lives, helped you with anything you had ever asked them for (and sometimes with things you hadn’t ask them for:), seeing your parents in such a situation is terribly sad and breaks your heart.

When I had to leave her to drive back up to Hamburg, I wasn’t myself. I couldn’t be because I would have been too upset. I switched off. For self-protection.

Back in Hamburg, Pádraig was doing well.

I know, I know, you have been waiting for this for a long time: there was another “first” today. During the physio session he managed to hold his head up for a minute or two, without any support. He was sitting in the bed, with a physio supporting his back, and another moving his legs when, all of a sudden, they noticed his head – and almost couldn’t believe what they saw!

A bit like Santa coming early this year. In fact, there were a few of them on their motorbikes coming down from the North pole riding South, with Mrs Santa on the back seat. I’d say they’ll take the ferry to Ireland from France, so they should be there in time for Christmas!

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