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~ Acquired Brain Injury (ABI): from the acute hospital to early rehabilitation – more on: www.CaringforPadraig.org and www.ansaol.ie

Hospi-Tales

Tag Archives: An Saol

Hearing

17 Friday Oct 2014

Posted by ReinhardSchaler in Uncategorized

≈ 2 Comments

Tags

An Saol, cannonball, Hearing, hope, perseverence, trains

UnknownLooks like my long-planned never-realised collection of train songs is coming together finally, and completely unplanned. The ‘Georgia’ post got a comment with two links to the Wabash Cannonball – I knew the song, but had never realised that the Cannonball was not a cannonball at all but a train! The links in the comment to the post point to a version by Johnny Cash (always good) and Boxcar Willie (whose name just gives it all away:). Both really good versions of the song. When I looked the song up on youtube, I found one by the Chieftains with Ricky Skaggs – which is really really good, and worthwhile checking out.

All those train-songs are about love, loneliness, going away, going back home, leaving into the unknown, returning to the long lost home, about adventure, glory, and misery – all those things that make life exciting and sad. Anyway…

Unknown1Anyway – today, we had a hearing. To be more precise, Pádraig had. The kind organised by a judge. Now, if you are living in Ireland, you have a certain idea of what a judge should look like… which is why I didn’t realise that the young stylish woman entering the ward with us this morning was the judge until we were walking down the same corridor.

The hearing was to follow up on an independent doctor’s report on Pádraig’s health. The judge explained that this is the way it’s done in Germany because of our not so glorious history dealing with persons like Pádraig. What made us cry (and, I think, moved the judge) that this was not about what it was about – it was about stating in a very formal administrative German way that Pádraig will, most likely, need someone to speak for him for the coming years.

It was about making it almost a public matter of fact that this all the wrong way around unreal nightmare-like situation is not one where you pinch yourself and wake up in a sweat, you wake up in horror, but you wake up; instead, there is this realisation that it is a situation that you can get certified by a German judge in a hearing, not in court, but in an isolation room in a hospital, with a nurse cleaning up in the background, the judge going through the notions, fully knowing what she is doing, in all her own youthfulness, not judging, really, but consoling two parents who have given up pinching themselves, knowing what they are doing with their son, in his youthfulness, in their helplessness, not giving up, never giving up, but struggling with this upside-down, wrong way around situation that is so impossible to grasp, so hard to deal with.

So, here is to hope, to solidarity, to shared strength, to never giving up, to tears and to laughter, to desperation and to stamina, to life, to An Saol. Pádraig-style.

Another

05 Sunday Oct 2014

Posted by ReinhardSchaler in Uncategorized

≈ 2 Comments

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An Saol

This morning, I thought: good job I took some pictures last night. That way I have proof that Maria and I had really been at this most of all the unusual events ever. Congratulations to all the winners!

Yesterday and today, I met with a few people who are really interested in An Saol. They are therapists and one sells equipment. There is also a plan coming together to start with fundraising.

An SaolThere are some things that are very clearly the next steps for An Saol: assembling a team, setting up a nonprofit charity, creating up a website (in English and Irish), publishing a concept paper about it, starting fundraising, looking for land, getting architects to draw up plans, finding builders, and getting started; and we will need a good accountant and a lawyer. Some of the ground work is done, some of the outstanding work will be straight forward, some will be challenging. But there is no doubt, An Saol will radically change the way persons with ABI are being treated in Ireland.

Today Pádraig started on another drug and, whether that was coincidence or not, he was able to eat better than on other days and move hands and feet better too. Of course, it’s much too early to say anything after just one day – but, who knows, this time, it might make a positive difference, for a change.

Maria and I will be on Roisín tomorrow, TG4!

Aware

05 Saturday Jul 2014

Posted by ReinhardSchaler in Uncategorized

≈ 4 Comments

Tags

#AmhránDoPhádraig, ABI, An Saol, Dream Boat

imagesToday we had an experience that proved again, if that was necessary, that Pádraig is very much aware about what is going on around him. We told him a story and he very clearly and without any doubt reacted to it, having the speech valve, not just with an expression on his face, but also with his voice. It made me more determined than ever to make sure that we keep sharing with him how happy we all are with his incredible progress, and how many of his family and friends around the world, but especially in Dublin, are keeping him so close to their heart that they are doing whatever it takes to help.

Imagine: yesterdays blog had more than 1,500 views!!! There are so many people around the world following Pádraig’s story and the inspirational efforts his friends are making, it’s mind blowing! – Whatever happens, to Pádraig, to us, to his friends and family, none of us will ever, in their whole life, forget what has been going on over the past year. When has a young man in a coma moved so many people?

photo1He knows that and he knows that he can make it.

There is a picture in his room here in Hamburg that his friends brought into Cape Cod Hospital a year ago.

It has travelled a long way, across the big water, and between different countries.

He will, he will, he will get better soon!

Soon, the Dream Boat will rock Dublin and sail the crest of the waves! An Saol will become more concrete. It will gather strength. It will turn from an idea into something much more tangible. It will, with Pádraig’s magical inspiration, change the way the we’ll think about neurological rehabilitation and care for those with very severe brain injuries in Ireland. We need your help making this happen. Spread the word about #AnSoal and get politicians, funders, musicians, writers, gardeners, carers and consultants to support it. We are preparing a website and some initial discussion forum and will launch it before the end of the summer. Watch this space!

In the meantime, rock on Dream Boat!!!

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