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~ Acquired Brain Injury (ABI): from the acute hospital to early rehabilitation – more on: www.CaringforPadraig.org and www.ansaol.ie

Hospi-Tales

Tag Archives: ABI

VW

02 Saturday Aug 2014

Posted by ReinhardSchaler in Uncategorized

≈ 6 Comments

Tags

ABI, Camper Van, Change, Hair cut, Half Dream, Journey, Schadenfreude, VW Bus

vwHe got out of the VW camper van, shorts, t-shirt, the most beautiful big brown eyes, huge smile on his face, head bent slightly forward towards me. He gave me a big hug. When he saw my worried face, tears rolling down my cheeks, he asked ‘what are you worried about? Everything is fine! No reason to be so sad! Come on! – What do you think of it? It’s great, isn’t it? I’d been looking for one for ages, remember? And each time I thought I’d found one I liked, you said ‘are you sure you want to buy it? It’s a big responsibility, a lot of money, not just to buy it, but to maintain it, let alone tax and insurance’. And then I started to doubt and backed off. But when I saw this VW, I knew this was it! Now is the time to live the dream. Forget about the money. I don’t care about the money. I’ve saved enough from last summer and I am going to spend it. What good is it going to do in a bank account? I want to do this and I’m going to do it now, I’m going to enjoy this instead of thinking about all the reasons why I should not be doing it. It’s going to be brilliant! Don’t you think? Have a look at the engine! What a tiny little, simple engine! Sounds great, doesn’t it? Come on, we’ll go for a spin!’

There was some movement beside me I decided to ignore. Was it Pat moving beside me? Quickly checked his bed in the Schön Klinik; he was still there. Desperately tried to get back to the VW bus. Thankfully, it worked.

‘Are you coming?’, he asked. – I was still thinking about my work and the stack of ‘to do’ notes that I had to go through. When was I going to do all this work? Work! Those dozens of emails I had to check. The grass in the back and, more importantly, the front (neighbours!). Bills to be paid. Car needed a service. The Skype calls, webinars, websites, and messages that needed attention. All really important stuff that nobody else could do. And he wanted to take me for spin in this dream car? I needed to work!

So what, I thought, and hopped on to the passenger seat. ‘Klar! Natürlich komme ich mit!’ He gave me one of his big smirky smiles. Of course, he had known all along that this is what I had to do and had just been soooo patient (not really one of his ‘natural’ traits) with me, giving me time to make up my own mind. – He started the engine, put in the gear, the wheels started turning, off we went. Happy together. On a little spin, on a journey to God who knows where.

At that point it didn’t surprise me anymore that the world didn’t stop. Life continued.

Just in a different way.


Eventually I woke up. I got up and dressed, we had our Saturday breakfast (boiled egg instead of porridge:). Before cleaning the apartment photoa little, I decided to try out this hair cutter I had bought for Pádraig (apparently, the hair dresser in the hospital is so ‘basic’ that it’s worthwhile to ‘do-it-yourself’). I thought I was managing quite well, in the bathroom in front of the mirror, I was trying out the different tops for different lengths: shorter on the sides, longer on top. While I tried the back and didn’t do too badly there either, I thought, I’d call in Pat to check it out. She took off the tops, got a comb, and started to take out bits of hair that were sticking out. Until she found this bit, that was ‘clearly’ too thick and needed thinning. Definitely. It must have brought out some unknown streak of creativity in her, she grabbed the opportunity by the mane (!) and went for it: turning the cutter around she pressed it into the back of my head. All I heard and felt was a big lump of hair being cut out of the back of my head, as if she had started to put a pattern into my hair. – I shouted, she thought it was really funny, I tried to take it with a (very much forced) smile.

The best part of this story is that she showed the picture of the back of my head straight after the ‘cut’ to Pádraig, told him the story of her creative attack – and provoked his biggest smile ever! – I guess this is what you call Schadenfreude:)

Aware

05 Saturday Jul 2014

Posted by ReinhardSchaler in Uncategorized

≈ 4 Comments

Tags

#AmhránDoPhádraig, ABI, An Saol, Dream Boat

imagesToday we had an experience that proved again, if that was necessary, that Pádraig is very much aware about what is going on around him. We told him a story and he very clearly and without any doubt reacted to it, having the speech valve, not just with an expression on his face, but also with his voice. It made me more determined than ever to make sure that we keep sharing with him how happy we all are with his incredible progress, and how many of his family and friends around the world, but especially in Dublin, are keeping him so close to their heart that they are doing whatever it takes to help.

Imagine: yesterdays blog had more than 1,500 views!!! There are so many people around the world following Pádraig’s story and the inspirational efforts his friends are making, it’s mind blowing! – Whatever happens, to Pádraig, to us, to his friends and family, none of us will ever, in their whole life, forget what has been going on over the past year. When has a young man in a coma moved so many people?

photo1He knows that and he knows that he can make it.

There is a picture in his room here in Hamburg that his friends brought into Cape Cod Hospital a year ago.

It has travelled a long way, across the big water, and between different countries.

He will, he will, he will get better soon!

Soon, the Dream Boat will rock Dublin and sail the crest of the waves! An Saol will become more concrete. It will gather strength. It will turn from an idea into something much more tangible. It will, with Pádraig’s magical inspiration, change the way the we’ll think about neurological rehabilitation and care for those with very severe brain injuries in Ireland. We need your help making this happen. Spread the word about #AnSoal and get politicians, funders, musicians, writers, gardeners, carers and consultants to support it. We are preparing a website and some initial discussion forum and will launch it before the end of the summer. Watch this space!

In the meantime, rock on Dream Boat!!!

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