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~ Acquired Brain Injury (ABI): from the acute hospital to early rehabilitation – more on: www.CaringforPadraig.org and www.ansaol.ie

Hospi-Tales

Category Archives: Uncategorized

Optimism

02 Monday Dec 2013

Posted by ReinhardSchaler in Uncategorized

≈ 8 Comments

Voltaire once said that “Optimism is the madness of insisting that all is well when we are miserable”, and famous Irishman Oscar Wilde believed that “the basis of optimism is photo 3sheer terror”. Science doesn’t agree: a huge study conducted by Hilary Tindle of the University of Pittsburgh showed that optimists are living healthier and longer. The psychologist Ralf Scharzer found that patients with an optimistic outlook recovered better from operations, were more content, and returned to work faster. Even an artificially generated positive outlook resulted in more positive outcomes found Barbara Fredrickson, a psychologist from the University of North Carolina at Chapel Hill. (All references from the German magazine Der Spiegel.)

While I like Humanities, and Voltaire and Wilde, this time I am going to side with Science. Everything will work out and be just fine. Why? Because there is such an amount of positive energy encouraging Pádraig to overcome his injuries that their effect just will have to fade away.

Today, we had a meeting with the senior neurologist looking after Pádraig. (She once photo 2spent 6 months driving through Kerry in a VW Bus bringing medical services to the people of Kerry.) Her main message was that we have time and that she has seen several positive signs in Pádraig that are really promising. Progress is slow, but steady. – Pádraig now seems to have settled. Breathing, temperature, heart, oxygen levels, and blood pressure are all good. For the second consecutive day, he has been off the ventilator for more than 12 hours. He is not getting antibiotics and seems to have less phlegm.

I brought in the collages of pictures assembled by Pádraig’s friends at their first photo 1gathering in his support at the Conradh, together with an Irish poster ‘made in Hyannis’, and a wonderful magic quilt on loan from a friend. Finally, the quite sterile looking room (even without us coming in with face masks and full-length aprons) got a bit of a personal touch. To my surprise, the German guardians of hygiene, the mother of  all HIQAs, allowed and, in fact, encouraged me to put up these posters with his pictures  – rather than seeing in them a microbiologist’s nightmare come true (we had to take these posters down in Ireland before the HIQA visits as they were seen as ‘unhygienic’ – they aren’t covered in plastic and cannot be washed.).

Today was a good day, a day for optimism, strength, faith, and a positive outlook.

Today’s German Music Tip
Bushido, Alles wird gut (2010) [22m people have seen this video on youtube, and someone even translated the lyrics into English underneath. You will find the German lyrics here. I don’t quite like rap usually, but this one isn’t that bad at all.]
What’s hot
Optimism
The German word/phrase/verse of the day
“…und wenn sie meinen du stehst nie wieder auf, dann lass sie reden junge
zeig ihnen das ist dein traum, du wirst ihn leben.” (Bushido)

Advent

01 Sunday Dec 2013

Posted by ReinhardSchaler in Uncategorized

≈ 2 Comments

HE is on its way, coming. It’s the first day of the New Year in the calendar of our Church. It’s a time of hope. The plane back to Hamburg is full of people going to see the famous German Christmas Markets. Some are clearly going home already for their Christmas Holidays, full of joy. For those arriving at Dublin airport, it is, as always around this time of the year, in festive mood, with Christmas trees, lights, and never ending loops of Christmas songs. Maria brought me to the airport. Will I be back before Christmas…? In Hamburg, I will see Toni at the airport when I’ll get off the plane and she’ll get on the plane back to Dublin; Pat will stay until Tuesday and then resume her weekly commute; one of Pádraig’s good friends will arrive the same day and stay for the best part of the week. It’s complicated.

We were told by the consultants in Dublin that the first six months after Pádraig’s accident would give us an indication of how his recovery was going to be in the long run. We were told that his youth is on his side. Young people can do amazing things, there are no limits. But, there was the long haul from Hyannis to Dublin, the operation in Dublin putting back the bone flap, the pneumonia and antibiotics, and finally the trip to Germany. We will continue working for and hoping for the best possible outcome.

Today, Pádraig has been off the ventilator since 8am. He has been doing very well, and was still off the ventilator when we left tonight at around 7:30pm. His breathing was supported by oxygen, but at very low levels (just 2l). He had a visitor over today, one of his good friends from the Conradh in Dublin, and there are more friends on the way for this week and the coming weeks leading up to Christmas.

We used to invite old friends to our house on the first Sundays of Advent, for waffles, hot cherries, cream, and Glühwein beside the fire and a room lit with candle light, for the annual catch up on how our kids and we ourselves were doing. 30-years were passing by. We had an ‘Adventskranz’, a reed with four candles. No waffles this year for Advent. No turkey and ham for Christmas this year, no aunts and uncles, no in-laws for Christmas Dinner. Hamburg is too far away.

Today’s German Music Tip
Adventslieder
What’s hot
Hope
The German word/phrase/verse of the day
Adventszeit

Homeless

30 Saturday Nov 2013

Posted by ReinhardSchaler in Uncategorized

≈ Leave a comment

There is the obvious meaning of the word. It’s when you sleep under bridges or take shelter in the entrance of a department store or supermarket. If you have to do this you are in trouble. You don’t have any money for decent accommodation, and you don’t have friends who would take you in for the night. Your home is where you feel secure, protected; where you know the people, and the people know you.

Over the past months, any doubt that Dublin and Ireland had become my home had been swept away. There was a level of support and solidarity from so many people, it was truly amazing. i came back from Germany on Thursday for a few days and, for some reason, got a very profound feeling of being homeless. I have been uprooted, my live thrown up into the air, and there it is . Of course, I am not really homeless. I have a roof over my head. But I am no longer moving within well established and understood boundaries. I had no choice.

Today was an ordinary day for Pádraig. Nothing strange happened. It was one of these days that little more than five months ago would have filled us with horror. Not anymore. The unthinkable has become a recurring, regular part of our lives. We are not speechless anymore, but ask questions, make suggestions, and manage the situation as good as we can.

I never understood people who spent all their money on buying a house. I always wanted to buy a boat. A house ties you down, a boat keeps you moving. Life eventually made me (us) buy a house, the boat remained my dream. What I really need today though is neither a house nor a boat but Captain Kirk’s transporter operated by Scotty, to ‘beam me up’.

Today’s German Music Tip
Hans Albers, Auf der Reeperbahn nachts um halb eins (1943) (From the movie: Große Freiheit Nr. 7; there is a version of the movie, including the song, with English subtitles on youtube; the song starts at 4:49)
What’s hot
The beer-drinking horse in ‘Die große Freiheit Nr. 7’
What’s cold
Being uprooted.
The German word/phrase/verse of the day
Hack’ Dich unter… wir wollen zusammen… mal bummeln gehn.

Autobahn

29 Friday Nov 2013

Posted by ReinhardSchaler in Uncategorized

≈ 10 Comments

Today we learnt that even in Germany, there are, besides the excellent nurses, also unexperienced nurses. In most professions, there are different levels of professionalism. Healthcare is not different. Today, ‘Herr Schäler’ was not looked after as he has become accustomed to – he was not taken off the ventilator for long enough, they didn’t sit him up in the chair-bed, and his oxygen saturation went down to around 90 – which would not be so bad with an elderly person, in his case it is far too low.

Good thing is: there are always doctors on the ward who can intervene. Pat asked one to check Pádraig out to see whether he needed suctioning; he did, and he also needed to be turned to loosen the phlegm on the other side of his lungs. The doctor also explained to the nurse what to look out for, stressing that the level of oxygen saturation for someone like Pádraig, needed to be close to 100% – especially if he is on a ventilator.

While I was driving on the Irish Autobahn, I heard on the radio that moneys collected

Wo soll das alles enden?

Wo soll das alles enden?

for charities funded by the HSE was used to break accepted salaries agreements. The National Rehabilitation Hospital in Dun Laoghaire offered a ‘top-up’ to  the salary of consultants, already earning way above 100k, and in some cases more than 200 k. The National Rehabilitation Hospital in Dun Laoghaire, is one of the hospitals mentioned in the report where top-ups have been provided to some staff. In the case of the Central Remedial Clinic (CRC), top-ups were given, against existing guidelines and regulations, involving charitable organizations. – Where will it all end?

Today’s German Music Tip
Kraftwerk, Autobahn (1974) (There are different versions of this song on the web, this one shows the German text with its translation into English. It’s the 3:27 single version of the original 22 minute title track of the band’s fourth album.)
What’s hot
Autobahn
What’s cold
Using charitable funds to top up consultants’ salaries
The German word/phrase/verse of the day
Skandalös (disgraceful)
Wo soll das alles enden? (Where will all this lead to?)

Major Tom

28 Thursday Nov 2013

Posted by ReinhardSchaler in Uncategorized

≈ Leave a comment

131127 Road at night

Going home in the evening on dark roads is a long and drawn out journey.

The experts were discussing on RTÉ who, in their opinion, was the best singer and what the quality was that made them the best. Most of the experts agreed that it was ‘authenticity’ that mattered most. They said, you really need to feel that the music is at one with the person who performs it. But then, there was this one critic who said that this was absolutely and completely wrong: one of the best singers, musicians, and performers of the world, David Bowie, was at his very best when he was not himself at all, but slipped into the persona of Major Tom, völlig losgelöst von der Erde.

Today, I decided to learn about Beaumont Hospital in Dublin, where Pádraig spent almost four months up to 11 November. The information I found differs slightly. The ‘About’ page on Beaumont’s own website (www.beaumont.ie) says it employs approximately 3,000 staff and has 820 beds. The HSE’s site (http://www.hse.ie/eng/services/list/5/nccp/about/Beaumont_Hospital.html) says it employs approximately 3,500 staff, catering for a local community of 250,000 (HSE) versus 290,000 (Beaumont), in addition for it being the “designated Centre of Excellence in Cancer Services and … the Regional Treatment Centre for Ear, Nose and Throat, and Gastroenterology. (It also is) the National Referral Centre for Neurosurgery and Neurology, Renal Transplantation and Cochlear Implantation.” Compare this with the Schön-Klinik in Hamburg: they employ 1,500 staff, covering 700 beds. In terms of patient/bed to staff ratio, Beaumont employs almost twice the number of people than the Schön-Klinik.

It is hard to understand how this is possible – because one of the first things you’d notice about the ward where Pádraig is, is the (generally) much more relaxed way staff works and deals with their patients. The clinic has a long history, and Alfons Maria Jacob described here for the first time in 1920 the Creutzfeldt-Jacob decease. Beaumont is much younger. Again according to Wikipedia, it was planned and commissioned from 1978 to 1984 and represented an investment of IR£50 million. It opened on November 29, 1987 following the closure of two smaller and older Dublin hospitals: The Charitable Infirmary, better known as Jervis Street Hospital and St. Lawrence’s Hospital (known as The Richmond).[2

Pádraig sat out in his ‘chair’ for many hours today. You can see how that makes him tired. His heart rate goes up, as does the frequency of his breathing. They had washed his hair again today, not sure how they are doing it, but they do it! Again, he has been reacting to our voices and touches. Overall, sitting up is really good for him: it keeps the blood pressure going, helps him clearing his lungs, etc. Today, two of his Irish friends had to go back home today. They were great company for Pádraig, and it was brilliant that they could make it. They were the first of quite a respectable number of his friends coming over for a visit, making sure that the connections are kept strong and kicking.

David Bowie’s and Peter Schilling’s Major Toms both decided to go floating into the outer space. They were the creation of a time when everything was possible – even space exploration.

“Here am I sitting in a tin can
Far above the Moon
Planet Earth is blue
And there’s nothing I can do.”

Major Tom was happy: life was amazing and full of wonders. Bowie showed us that there is a bit of Major Tom in all of us.

Today’s German Music Tip
Peter Schilling, Major Tom (1983) (This is a recording from the German version of Top of the Pops, called Hitparade. Watch the head move, and just one blink from Peter during the whole song!)
What’s hot
No driving tonight.
What’s cold
Tonight’s news about the CRC top ups.
The German word/phrase/verse of the day
Völlig losgelöst von der Erde

13,219,200

27 Wednesday Nov 2013

Posted by ReinhardSchaler in Uncategorized

≈ 3 Comments

One second can change it all. Whatever life you were used to, whatever innocent dreams you had. — Today, it’s exactly 5 months, or 21 weeks and 6 days, or 153 days, or 3,672 hours, or 220,320 minutes, or 13,219,200 seconds that a 4.3-ton van hit Pádraig at around 10am on Rt. 6A in Brewster, MA. Doctors did not think he would survive. He did. He is still recovering and not fully awake yet. But he clearly has communicated with the people around him, still in a basic kind of way, but nonetheless he has communicated.

One second can change it all. When the world is your oyster there are only opportunities, stuff to be tried out, adventures to be had, people to be with, countries to visit, talks and discussions, fun and dance all night long.

One second can change it all. What is important to you now, what was important to you before. How everything is different from one moment to the next. When life past seems so innocent, and full of happiness.

One second can change it all. We are waiting, hoping, and praying for this second, this second in the future when happiness will be with us once again.

We have time.

131127 Conradh 180px-Conradh_na_Gaeilge_Baile_Átha_Cliath_2006_Kaihsu_Tai

Conradh na Gaeilge, Harcourt Street, Dublin

Today, Pádraig spent almost 2 hours in the morning and about 4 1/2 hours in the   evening off the assisted breathing / ventilator and on what the Germans call ‘Feuchte Nase’, i.e. what he had been on for a few months in Beaumont – only at only 2l of oxygen instead of the 4-5l from Beaumont. For the first time in a long time, his temperature was just above 37, heart at 80, oxygenation at 98 – all pretty normal. The two friends on a visit from Ireland might have reassured him that all is well. It is so good of them to have made the long journey from Dublin to Hamburg, to spend some time with Pádraig. Tonight, he opened both of his eyes and was quite responsive. We are planning to have a meeting with an Oberarzt to find out about what they are planning, and how they see Pádraig’s progress, for early next week.

Some of Pádraig’s friends are organizing a night for Pádraig in Conradh na Gaeilge, Harcourt Street, Dublin, on Friday, 06 December, 07:30. Check it out.

Today’s German Music Tip
Hannes Wader, Heute hier morgen dort (1982) (my favourite German folk song – there is a mixed German/English version available too)
Heute hier, morgen dort,
bin kaum da, muss ich fort,
hab’ mich niemals deswegen beklagt.
What’s hot
Keep going.
What’s cold
Being stuck with no way out.
The German word/phrase/verse of the day
Staplerservice (as seen on a German truck offering fork-lift services)

Imagine – and no religion too

26 Tuesday Nov 2013

Posted by ReinhardSchaler in Uncategorized

≈ 2 Comments

Pádraig’s is the only room with a mass card and a little bottle of water from Lourdes, one of our friends sent for him. Hamburg is, like the rest of northern Germany, predominantly protestant. At the beginning of the last century, Max Weber wrote a famous book called “Prostestant Ethics and the Spirit of Capitalism” (Die protestantische Ethik und der Geist des Kapilalismus), in which he discusses the connection between protestant ethics and the development of capitalism in Europe. The desire to achieve things.

Pádraig was sitting in a ‘chair’ when I came in to visit him today. It’s like a cross between a really comfortable arm chair and a bed. He look super-comfortable and spent more than three hours in this chair today – there is nothing better for his lungs than sitting up, at the moment. Two carers had slipped him across from his bed into this ‘convertible’ chair by pulling him across from his bed onto this chair/bed. They could do this with two people. In order to move him from his bed into a wheel chat, they would have needed 3 people.

When I told them that carers and nurses in Ireland had used a hoist to lift him out, I was told that they would not use a hoist here for someone like Pádraig, that this wouldn’t be safe enough. Later in the day, I talked to the Oberärztin looking after Pádraig. She said that on Friday they would try to turn him completely onto his chest in the bed, in order to clean out his lungs from any secretions.

Christmas Tree in Tating!

Christmas Tree in Tating!

Two of his best friends from Dublin arrived today. It has been so nice to see them, and, although Pádraig wasn’t at his most alert today, I am sure he was so happy to hear familiar voices, and especially Irish. They will stay until Thursday – it’ll be really nice to have them around. And it was so good for them to make the journey over to Hamburg to visit Pádraig.

Pat once told me that the nuns running her school wanted to be up-to-date and modern  and all, and sang all sorts of great contemporary songs with them. One of their favourites was John Lennon’s ‘Imagine‘: “Imagine there is no country, it isn’t hard to do. Nothing to kill or die for, and no religion too… You may say I am dreamer, but I’m not the only one…” According to Pat, with all their enthusiasm, it took the nuns a long time to notice the bit about “and no religion too”. – Myself, I hear and see Alice’s Restaurant in the last line: I might be a dreamer, but I’m not the only one.

I believe that our dreams can inspire others. The desire to help other people because this is the right thing to do is something that I found in Dublin more than anywhere else. The amount of help, love, and support Pádraig is receiving from his wider family and friends is inspiring, and nothing I have ever experienced previously in my live. – I wonder, is there the possibility of a connection between catholic Ireland and German protestant work ethic? Just Imagine.

Today’s German Music Tip
The Beatles, Sie liebt Dich (1964) (The Beatles startet their career on 17 August 1960 in the (in)famous club Indra, just off the Reeperbahn.)
What’s hot
Imagine.
What’s cold
Being stuck with no way out.
The German word/phrase/verse of the day
Ja, sie liebt Dich und da solltest Du Dich freuen!

Turkeys voting for Christmas (or Thanksgiving)

25 Monday Nov 2013

Posted by ReinhardSchaler in Uncategorized

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One of our friends on the Cape reminded me that Thanksgiving is coming up soon, in fact it’ll be Thanksgiving this coming Thursday, November 28th. I had to think of turkeys, immediately. And of Alice Glenn. I emailed the story of Alice Glenn to our friend (who remembers Alice Glenn?:) who famously said during the debate about the divorce referendum here in Ireland that “women voting for divorce is like turkeys voting for Christmas” – or Thanksgiving in the US. I could see our friend smiling in my mind when she read this…

Thanksgiving also remembers me of a song, in fact it is the longest folk song ever recorded, which also was made into a movie.  The story of “Alice’s Restaurant” (no – not Alice Glenn’s) by Arlo Guthrie (Woody’s son), even older than Ireland’s divorce referendum, originated on Thanksgiving, 1965, at the time of the Vietnam war, when young kids in the US were drafted to fight for freedom and democracy, and many (amongst them, Arlo) found a way out – sometimes in quite unexpected ways. (The original song was recorded in 1967, but Arlo kept singing and recorded another live version in 2005 at the Guthrie Center; you can find the lyrics here.)

The bit I like most is when Arlo tells his listeners that they should join the Alice’s Restaurant movement:

“… and walk out. You know, if
One person, just one person does it they may think he’s really sick and
They won’t take him. And if two people, two people do it, in harmony,
They may think they’re both faggots and they won’t take either of them.
And if three people do it, three, can you imagine, three people walking in
Singin a bar of Alice’s Restaurant and walking out. They may think it’s an
Organization. And can you, can you imagine fifty people a day, I said
Fifty people a day walking in singin a bar of Alice’s Restaurant and
Walking out. And friends they may thinks it’s a movement.
And that’s what it is , the Alice’s Restaurant Anti-Massacre Movement.”

Sometimes you just have to walk out, others will follow, and you might start a movement.

Another friend asked how the Irish and the German health systems compare, generally. 131125 350px-Total_health_expenditure_as_a_Percentage_of_GDP_(2005-2008)Whether I thought that the difference between our experience in Germany and in Ireland originates in cultural differences between the two countries or because of the different levels of funding available. I think it is both: Germans spent more on their health system (10.6% GDP) than the Irish (8.2%). In 2014, 666m euro will be taken out of the health system (some experts say that the total cuts will be closer to 1 billion), and deal a final blow to a system that is already at braking point.

When the CEO’s of the four major hospitals wrote a letter to the director general of the HSE in early November, saying that health cuts are beginning to seriously threaten patient safety (“There is clear evidence that funding reductions coupled with accelerating demand have begun to seriously threaten the quality and safety of patient services.”), the Minister’s response was that he could not comment since the letter was not addressed to him.

People working in Irish hospitals are conditioned by the realities of their work place. Many think that the care and treatment provided to the patients is adequate. As someone who spent close to 4 months in an Irish hospital with Pádraig, I would not blame the people, but the ‘authorities’ who do not guarantee resources, provide control, and implement sanctions where necessary. – Remember the headlines when staff was found not to wash their hands properly? How could it ever have come to that point?

Today, I spoke to the man in charge of the intensive care unit where Pádraig is being looked after at the moment, the ‘Chefarzt’. What struck me was how positive he was about Pádraig’s progress and his very positive outlook. I had stopped him on the corridor (this might ring a bell with friends who are familiar with a similar situation we went through in Ireland), when he was completely unprepared – nonetheless, he showed that he was familiar with Pádraig’s case, he commented on some quite specific questions I asked, and he demonstrated that his doctors have a definite plan for working with Pádraig on improving his situation. It was refreshing, and evidence of a level of attention a patient like Pádraig would, obviously, never get in an acute neuro-surgical ward, such as the one he spent 4 months in, in Beaumont.

The Schön-Klinik in Hamburg is one of Germany’s leading hospitals for neuro-rehab and was, historically, the second hospital in the country where early dedicated and intensive neuro rehab was offered to patients. The Chefarzt in charge of Pádraig is heading up a neurological Intensive Care Unit with 40 beds; there are 49 beds for early neuro-rehab. And listen to this: there are a total of 200 carers/nurses, 45 doctors, 12 consultants, and 72 therapists. – The whole of Ireland has 3(!) beds for early neuro rehab, with a waiting time of one year(!).

Pádraig has been doing well, given the circumstances. He opens his eyes more often then before, his breathing, heart beat, and temperature are all closer to normal than during the previous days – and I am sure that he is very much looking forward to the first visits by his friends starting tomorrow!

Going back to Thanksgiving, Alice Glenn, turkeys, and Alice’s Restaurant. If the turkeys decided to walk out first in pairs, then 3 at a time, and eventually in groups of 50 – they could become a movement – and if we all said “enough is enough”, our movement would impact change. Forget about 12 months – 24 (hours), no more!

Today’s German Music Tip
Spliff, Carbonara (1982)
What’s hot
Caring.
What’s cold
Just everyone for themselves.
The German word/phrase/verse of the day
Scusi Segnorina, willst du auch’n Spliff, oder stehst du nur auf Männer mit Schlips?

Ich bin Ich

24 Sunday Nov 2013

Posted by ReinhardSchaler in Uncategorized

≈ 7 Comments

Leaving Hamburg in the evening leads us across the Kennedy-Brücke. Since last Friday

Drive Time

Drive Time

was the 50th anniversary of JFK’s assassination, we talked a bit about what he meant and how much he moved in his time. Hyannis was and still is his family’s favourite place to spend the summer. Hyannis, of course, is also where Pádraig was operated on and where we spent the first weeks after his accident. i never did, but Pat and her friends actually saw JFK driving down Dorset Street in Dublin – where his car stopped to allow him to give a present to one of Pat’s friends. – Yes, we are getting old.

There are dozens of famous JFK quotes around. From being a ‘Berliner’ to doing work for your country. Here is one that made me think today: “Change is the law of life. And those who look only to the past or present are certain to miss the future.” I promised myself that we will make sure not to miss the future.

The care for Pádraig here continues to impress us. There is a dedication and care, a professionalism and personal touch that is truly amazing – and something to aspire to.

There was a piece on the Irish news over the past days reporting that there is going to be a significant shortage of GPs in Ireland and that young doctors are leaving the country. I wonder whether that made alarm bells go off in the Department of Health? How will the health service function, following a cut of 666m in 2014 which will in reality most likely rise to one billion, according to The Irish Times. Already, the health system is not functioning as well as it should. Many people in it are disillusioned, tired, and overworked. Where in the western world have you ever seen doctors in gowns wearing multiple buttons ‘shouting’ 24-no-more at their patients? People in Ireland not only deserve better, they need it to be better. It should not be acceptable that doctors have to leave the country, and the patients with them, out of sheer desperation.

I set up a Google Calendar for friends visiting Pádraig in Hamburg:
https://www.google.com/calendar/embed?src=ejbikhh20hgf5i87d88fenj9ns%40group.calendar.google.com&ctz=Europe/Dublin
Y
ou should be able to see the dates, and edit them – let me know how that works.

Today’s German Music Tip
Rosenstolz, Ich bin ich (2006)
What’s hot
Working on a computer and the internet while being driven to the hospital.
What’s cold
Getting out of the car being so dizzy that my stomach is just waiting for an excuse to bring back breakfast.
The German word/phrase/verse of the day
Ich bin Ich

When Time Disappears

23 Saturday Nov 2013

Posted by ReinhardSchaler in Uncategorized

≈ 2 Comments

Have you ever got obsessed with something? Anything? We acquired a new obsession. – When we drive home from the hospital in the evening, we are passing close to a dozen petrol stations. During the past week, we started to check out the price of petrol at each of these stations. It is absolutely incredible to see how petrol prices fluctuate. We have seen prices for E10 petrol between 140 and 149 cents, at the same station, on the one day. These 9 cent means, we figured out, a difference of almost 50 euro per months, on the basis that we drive 300 kmh/day on about 6l of petrol. – We have become obsessed with the price of petrol.

We also have loads of time to talk during these long drives. Today we commented on the fact that sometimes it is hard to see that Pádraig is making progress. Then, days merge into each other and timelines vanish: where we are, how got there, what the future hold. On the way back, at exactly 120 km/h to safe petrol, we got into this mood and while we were talking, we realized that some of the progress Pádraig is making becomes part of this time warp we have been living in for the past months. It was only when we were talking to we realized how much more relaxed Pádraig is now, the sudden, uncontrolled movements have disappeared over time, and he has become much more himself again. Still in a coma, but communicating and reacting in his own way.

This afternoon, Pádraig had a visit from his German family and his room got a bit crowded. A male nurse came in, looked at us in horror and asked what we were all doing in there. They had, in their generosity, allowed three people in at a time – now we were five. I assume he was right, but there is enough room , we were not in the way, and we all had traveled a long way to see Pádraig. So we left for a break, and when we came back we found Pádraig positioned in his bed by a true artist. What the nurse had done was done with such care and attention to detail, it was hard to believe. We made friends again:), and thanked him for taking such good care of Pádraig. He said that this was the reason he had chosen his profession, he wanted to care for people. He had brushed Pádraig’s teeth with a soft tooth brush, and his cheeks and tongue with a special suction swab. His lips and face were covered in soothing cream.

Today’s German Music Tip
Die Ärzte, Rebell (1998)
The German word/phrase/verse of the day
Straßenunterhaltung (“Street Maintenance” or “Street Entertainment” – take your pick:) – seen on a Hamburg City Council truck.

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