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~ Acquired Brain Injury (ABI): from the acute hospital to early rehabilitation – more on: www.CaringforPadraig.org and www.ansaol.ie

Hospi-Tales

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Control

06 Thursday Mar 2014

Posted by ReinhardSchaler in Uncategorized

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When I was finished writing up my rather long and winding meanderings about control or no control, about being able to determine one’s life or being a pawn in someone’s much larger game plan, I had another thought which is much shorter, much more pragmatic, and much more to the point. So here it is:

If you get sick you get treated for that sickness. If you have cancer, you get cancer treatment; if you have a kidney problem, you will be treated in a renal clinic. If you have a brain injury in Ireland, you have a right to appropriate treatment lasting three months. That’s it. Until you receive that treatment, you are kept in an acute ward; after that treatment, if your condition continues, you are transferred back to that acute ward or you are sent to a home. As simple and as horrific as that.

So, following this short intro, here is tonight’s earlier update.

sign“God exists. It’s not you. So just relax.” That’s what a priest once said to Matteo Renzi, Italy’s new prime minister, according to a recent article in Der Spiegel, a German weekly news magazine. I really like that. It’s short. It’s to the point. Give up the illusion of control.

Pádraig had a more ‘normal’ day today. Or maybe his interaction with us, the doctors and nurses has become something that has become almost ‘normal’. Again, this interaction is not much more than reacting in a basic, but nonetheless significant, way to very simple stimuli or requests. Of course, we would like to see more of this interaction and would do anything to make that happen. He has not eaten anything in more than eight months, not tasted any kind of food in all that time. I have no idea what that means, but it’s an incredible deprivation of very basic senses.

Control, or rather the lack of it (you are not God) is sometimes hard to accept. Because worldwe are being told multiple times every day that we can get anything we want and that we can be anybody we want to be: we just have to put on the right deodorant, wear the right clothes, drive the right car, eat the right food, spend our holidays in the right resort. So we become frustrated, because we don’t have enough money for this particular perfume, we cannot afford these really nice jeans, we are still driving the 07 banger, and we have to spend our holidays with the in-laws in the country.

Now, if it was true that God exists, that He was not me or you or one of us, then I could truly relax. No need to worry. No reason to try and influence things that God had already figured out anyway. Trying to control anything when control itself is an illusion would, indeed, be pathological.

Mozart: Die Zauberflöte

Today’s German Music Tip
W. A. Mozart, Die Zauberflöte (from the 2006 Festival in Salzburg). You’ll need 3 hours to watch this – but it’s sheer pleasure. If you don’t have 3 hours, listen to Edita Gruberova singing in 1971 one of the most famous Aria from that opera: “Der Hölle Rache kocht in meinem Herzen”. Translate that.
What’s hot
Signs
What’s cold
Certainty
The German word/phrase/verse of the day
Mensch Meier! Hab’ ich gar nicht dran gedacht zu kaufen! (When you are stopped on the S-Bahn by a conductor / ticket controller and asked for your ticket.)

Twitter: @forPadraig
#caringforPadraig
http://www.caringforPadraig.org
Upcoming events: http://www.caringforPadraig.org/events

Choice

05 Wednesday Mar 2014

Posted by ReinhardSchaler in Uncategorized

≈ 6 Comments

capYou are the master of your own life. You can choose what you want to do and you can choose what you do not want to do. Your choices determine the course of your life. If you want change, if you believe that things should go into a different direction in your life, it is up to you make those changes. You are standing at the wheel, you are the captain of this vessel, and you determine its course.

Except, when you aren’t and when you can’t. Which is a lesson that life, sooner or later, shipwreckis going to teach you. It’s a lesson in humility, it’s a lesson in the need to accept things that are out of your control. It’s a hard lesson to learn. Being in control is so much easier.

If you really had a choice, which life would you choose? Would it be better? Would a life without difficult moments, without grieve and pain, be a better life? Would it be really better if you could eliminate all the bad stuff, or would you turn into Bruce Almighty who messed up the whole wide world photo 1playing the good and caring God for a few days, a God that protects each and everyone of us from harm? Would you really enjoy a life in which you did not have to count on the solidarity and compassion of your family, of your friends, of strangers?

Yesterday had been one if not ‘the’ best days for Pádraig in a long time. Today, he topped it again. He opened and closed his eyes on ‘command’ – another first. Even better: he did this not just for the Oberärztin; when she called the Chefarzt to show him Pádraig’s progress, he did what he usually does not do: he repeated it for the Chefarzt.

Today, we received, by hand, from a friend, a booklet that friend’s aunt, a primary school teacher in Donegal, had prepared with her second class students who have all been photo 2praying for Pádraig ever since his accident. The students are around 8-9 years old.

They all wrote letters to Pádraig, telling him that they had heard about his accident, that  they are praying for him every day, and – wait – they wrote down in their letters their favourite jokes for Pádraig to cheer him up. Here is a sample: “Why did the Jelly Baby go to school? – Because he wanted to be a Smartie.” If you have children, if you are close to children, or if you are still young at heart, this must be the most moving ‘post’ you could ever get.

Think about it. This most beautiful, hand made present with the prayers and the jokes from Ryan, Shannon, Laoise, Lorcan, Ross, Caolán, Aod, Andrew, Molly, Saoirse, Cormac, Caillon, Leah, Conor, Aísling, Rónán, Jude, Jack, and Olwyh, from 8, 9 and 10 year old kids who never met Pádraig in person, is an incredible outpour of love and compassion from kids far up in beautiful Donegal. I will show this booklet to Pádraig tomorrow and I am sure, it will give him a big big boost of energy and laughter that will make him better! Absolutely!

Today’s German Music Tip
Jupp Schmitz, Am Aschermittwoch ist alles vorbei (1953)
What’s hot
Straight out
What’s cold
Scheming
The German word/phrase/verse of the day
Na ja, wenn’s der Wahrheitsfindung dient!

Twitter: @forPadraig
#caringforPadraig
http://www.caringforPadraig.org
Upcoming events: http://www.caringforPadraig.org/events

Train

04 Tuesday Mar 2014

Posted by ReinhardSchaler in Uncategorized

≈ 2 Comments

For the first time in 15 years, I am no longer the proud holder of an annual Iarnród Éireann ticket.

I really admired him. He usually arrived before me. His eyes were covered with one of those eye covers you used to get on transatlantic flights. His earphones connected to a Cie_engine_001_1portable radio. His ticket on the table in front of him, so that the conductor would not have to wake him up. No doubt, he was a seasoned traveller. It was perfection. All angles covered. I was a novice trying to learn, trying to see what I could pick up from the regulars. We never exchanged a word. Never even said hello. Eight years later, we were waiting for the Dublin train at Limerick Junction, as always. For the first time ever, he came over to me and said ‘Hello, you have been traveling on this train for a long time, haven’t you?’ – ‘Yes, but not half as long as yourself’, I replied still in shock that this man, my daily travel companion for years, who had never even acknowledged my existence, all of a sudden was talking to me. He continued: ‘Well, to be honest, I had been on the train for just a few days when you turned up first. I got a promotion but had to move to Limerick for it. It was going to be just for a couple of years. Well, it took a bit longer, but today is my last day. And before leaving my life on the train behind, I wanted to say hello and goodbye to you.’ And that’s where we left it. That’s how I lost my friend, the traveller. I never had a chance to say good bye to the train, to the people I got to know, the conductors. For them, I just disappeared from the face of the earth…

theklaPádraig sat out twice today, another first, as far as I know. About four hours each time. It was amazing how well he managed these long hours without showing any significant signs of fatigue. He is training very well and his physical condition is getting better almost every day. His music therapy today involved tapping the Bodhrán. He closed and opened his hand, and moved his tongue out a bit – all on command.

UnknownToday, I got a phone call from RTE who will be reporting on the open letter we wrote (and two of his friends so skillfully translated into Irish) to Enda Kenny on one of their daily news programmes on RnaG at 5pm, Mon-Fri. They will also send it on to the Minister of Health, James Reilly, T.D., to see whether he has any comments.

Pancake Tuesday today. No music.

Karneval

03 Monday Mar 2014

Posted by ReinhardSchaler in Uncategorized

≈ 4 Comments

I have a colleague at work who, when I start giving out and telling him about all the double yellowthings I am going to do to make (not the world, but) Ireland a better place to live in, asks me, with a lovely smile on his face: ‘Reinhard, for how long have you been living here?’ – basically telling me, that having spent more than half of my life in the country, I still haven’t got a breeze of how things work here. But, apparently, writing to your T.D. is the way to do it. T.D.’s can get you your passport super fast (there is a special post box for them in the Dail), and a really famous but now slightly discredited T.D. in our constituency (he was Taoiseach at the time, and his daughter is a famous writer) managed to get the double-yellow lines removed in front of my very elderly mother-in-law within days, after we had tried unsuccessfully for weeks to find the person responsible for double yellow line removal in Dublin Corporation.

For those of you interested in inter-cultural studies, this is another of the many differences between Ireland and Germany: in Germany, people would not even know which constituency they live in, never mind being aware of who their local politicians are. (Thinking about my mother-in-law who sadly is no longer with us, there is another lovely story involving her, a German, and a roofer, which I will tell another time.)

Today, I posted my first letter in Irish. No, it was not me who translated the English version into Gaeilge, but two of Pádraig’s friends. (I am still working on my Irish – but my day will come too, one day). It’s Pat’s and my open letter to An Taoiseach Enda Kenny, T.D., which Pádraig would, not doubt, have written in Irish in the first place. The letter is now up on the website (www.caringforpadraig.org) and it’s also going to all of the four T.D.s of Dublin Central: Paschal Donohoe , T.D., Minister for European Affairs, Fine Gael; Joe Costello, T.D., Minister of State at the Department of Foreign Affairs and Trade with responsibility for Trade and Development, Labour; Maureen O’Sullivan, T.D., Independent; Mary Lou McDonald, T.D., Sinn Féin. I will keep you posted on their replies.

Last week, Pádraig was measured for his custom-made wheel chair. It will take a few weeks for it to get ready, you will remember, but we can’t wait for it. As the weather is getting better and the first buts become visible, he is getting ready for the rose garden and his first walk in the park. We all hope that he’ll stay on course, becoming more alert and more mobile over the coming weeks. And at least for the time being, it looks like he is doing really well. Today, he was opening his eyes when we were with him, and he seems to have much more controlled movement in his ‘good’ eye. We have been told by his doctors that they will try to encourage him to also use the other eye a bit more.

karnevlWe’ve heard about preparations going on for St Patrick’s Day but nothing concrete yet. Today it’s Rosenmontag, the main day of Carnival in Germany. People in Northern Germany are far too reserved to get involved in silly things like Karneval, Pappnasen, and Kamelle – they leave that to the people living in the Rhine region, mostly Cologne, Düsseldorf, and Mainz. It’ll be some job to get them out of their famous ‘coolness’ for St. Patrick’s day:)

Today’s German Music Tip
De Höhner, Viva Colonia (2007). Even if you don’t like it – this is “Kölle Alaaf”, people basically going crazy, just because – well, they don’t really need a reason.
What’s hot
Karneval
What’s cold
Aschermittwoch
The German word/phrase/verse of the day
Rosenmontag

Twitter: @forPadraig
#caringforPadraig
http://www.caringforPadraig.org
Upcoming events: http://www.caringforPadraig.org/events

Normal

02 Sunday Mar 2014

Posted by ReinhardSchaler in Uncategorized

≈ 3 Comments

I was going to look up what ‘normal’ means before writing tonight. Then I thought: no need to look it up – I know myself what normal is. It’s a state that on one hand gives you some security, because ‘normal’ doesn’t attract any attention, is not being laughed at, and is not pitied. ‘Normal’ gives you some respite, you blend in with the crowd.

But then, I did not really want to write about ‘normal’. I wanted to write a state that is the opposite to normal – but I couldn’t find a word to describe this state. Maybe ‘crazy’ , like rock stars? Or sick, like societal outcasts? Or ‘extraordinary’, like heroes? I want to find out more about non-normal lives because I feel that whatever I do, however much I pretend that life just goes on, that you go with the flow, none of what I am living through is ‘normal’. The strangest thing is when I am in ‘normal’ life situations acting ‘normal’, for split seconds even joining ‘normal’ life. I am beginning to realize that life will never ever be ‘normal’ again for me. And I am getting this feeling that my new non-normal life has just begun to emerge. And as much as I would like to know, I have no idea what it is going to be like.

Pádraig was fine today. His two Irish visitors got a dispensation from the hospital to come in and see him before visiting time to say ‘good-bye’ to Pádraig. They were delighted when they both got a firm squeeze of their hands from Pádraig before they left. Sundays are quiet in the hospital, it feels like recovery time after a busy week with a full schedule of different therapies, all quiet exhausting. It is good to have a Ruhetag once a week on Sunday, to both recover from last and to get prepared for the next week.

There was no rest for the swimmers in Trinity today where D.U.S.C. had called upon swimmers to ‘swim a mile for Paddy’. And before I forget: thank you to all the organizers, and especially Jane.

This is an extract from what organizer Jane wrote to us afterwards:

Hello!!
We’re all done!! It was a great day at the pool!! We raised €1408!!
IMG_3490We had swimmers young and old down! Five little guys and girls came from Tallaght swim team, 3 from Aerlingus and 3 from Atlantis who came down with their mums and dads after seeing the post on the swim Ireland website! One 9 year old from Atlantis had never swum more than 400m before and did the whole mile non stop!!
We had some crc and Westwood crc ex pats and some master swimmers from around Dublin who saw the post too! We also had a couple of strangers who were just coming down for a swim and decided to take part! We had some posters made up and everyone who took part signed one so we’d love to send it on to you if you don’t mind sending me your address in Hamburg!
Everyone was asking loads about Paddy and wishing him well!
Janie
Jane sent on more pictures from the event which I will share with you tomorrow on  www.caringforpadraig.com
None of what happened in that pool today was ‘normal’. Imagine, a nine-year old boy who in his life had not swum more then 400m in one go, managed to successfully complete the full mile. He’ll never forget this extraordinary day ever in his whole life, the day when he became a real hero!

Today’s German Music Tip
Schwimmer, Gegen die Wand (2012). The music won’t be everybody’s cup of tea – I think you’ll need to turn it up to really enjoy it.
What’s hot
Miles
What’s cold
Kilometres
The German word/phrase/verse of the day
Das ist sicher nicht jedermann’s Sache

Twitter: @forPadraig
#caringforPadraig
http://www.caringforPadraig.org
Upcoming events: http://www.caringforPadraig.org/events

Stolpersteine

01 Saturday Mar 2014

Posted by ReinhardSchaler in Uncategorized

≈ 4 Comments

I spent this morning writing an open letter to our Taoiseach, Enda Kenny. I had read the Irish Times’ reports on the Fianna Gael’s Ardh Feis in the RDS yesterday. In his address to the Ard Fheis, he said that he was looking forward to the publication of the White Paper on Universal Health Insurance (UHI), which will outline how he will “tear down the barriers“ to access. “So for a change, when implemented, a new health service will be ready and waiting if you and your family need it.“ – I just felt this man should not let get away with such a statement. You can read the letter here. I emailed it to him and posted it. I also sent it on to a journalists and newspapers. You will have seen on http://www.caringforpadraig.org/similar-experiences/ that there are other young people like Pádraig, all of them in a similar situation regarding neuro-rehab. Why on earth does the State not look after its citizens when they most need being looked after? I just don’t get it.

Pádraig was good today. He had two lovely visitors from Dublin with him yesterday and today. It’s amazing what a difference the faces and voices from friends can make to the whole atmosphere in Pádraig’s room and on the whole ward. Saturday is a quiet day, not much is happening. – But…, I am not sure whether I mentioned before that Pádraig’s better hand and arm are on his right hand side. The left hand and arm had usually not been involved in much activity. However, tonight when I was leaving and when I took his left hand, he moved his left lower arm way up into the air. Another ‘first’, and we talked about it all evening.

photoI am not sure whether you have been in Germany and have seen the “Stolpersteine”, put into the ground to remember a person or a family taken from their home, deported and then killed by the nazis during the 2nd world war. Their purpose is to make you stop in your tracks, and to think.

Stop and think. What moved you when you got up this morning? Did you do today what you believe in? If today had been your last day, would you have been happy with it? Have you been kind and generous to others?

I am going to take an ‘early’ night tonight and stop right here.

Keep including Pádraig in your thoughts.

Words

28 Friday Feb 2014

Posted by ReinhardSchaler in Uncategorized

≈ 2 Comments

What do you say when words are not enough?

words

So many unbelievable things are happening. One is that we can, unfortunately I think sometimes, still listen to the Irish news from Hamburg.

Irish property developer Sean Dunne who filed for bankruptcy last year in the US with debts of $942 million (€690 million), and who has also been made bankrupt in Ireland, said he made a profit of €70 million selling 30 zoned acres at Woodtown in Rathfarnham, Dublin, in 2006 or 2007, according to today’s Irish Times. It was paid in “hard cash, brought in a suitcase,” he said. “You were joking about that? It was banked?” Nama’s lawyer Tom Curran asked. Mr Dunne said he didn’t know what he did with the money – he could have bought more property, given some to his wife, paid off debt or spent some on a holiday or a new car.

Pádraig is getting fitter. You wouldn’t think that someone in his still not-so-good condition could even train or being coached. But he is, both training and being coached. imagesThere is no way that he would have been able to go through physio, speech therapy, music therapy, a new approach in his respiratory therapy using an EzPAP (increasing the pressure in his airways to open up his lungs), followed by a few hours in the viva-la-Thekla – just a few weeks (day!) ago, as he did today. He held his head up high for a few seconds without any support, and did really well swallowing. There are so many people really doing more than their best to mobilize him, getting him to breathe better, to swallow, to connect back with his body. So many people believing in him, convinced that he will show us that a young, determined, and fit young man can produce miracles. Not the kind of one second apparitions, but the ones that take a bit of time to happen, and then stay with us forever.

After a really tough morning, he closed and opened his hand for Pat when she asks him to do so, he took her hand and lifted it up to his chest. This morning, this was another first, he held up his head for a few seconds when sitting out; this afternoon, he was still able to hold his head straight with very little support for a few minutes at a time.

Sometimes, words are not enough to describe how I feel. When things are going really well, the joy, the hope, the boost of energy. Sprachlos.

Today’s German Music Tip
Bläck Fööss, Männer (1989). This group is not everybody’s cup of tea, but the ‘a cappella’ version of this song, one of my all-time favorites, is not bad. The original version, by Herbert Grönemeyer (1984), is always worthwhile listening to! – Watch the keyboard player wearing boxing gloves:)

“Männer haben Muskeln,
Männer sind furchtbar stark,
Männer können alles,
Männer kriegen ‘nen Herzinfakt,
ohh Männer sind einsame Streiter
müssen durch jede Wand, müssen immer weiter.”

What could anybody add to this? 🙂

Today’s Second German Music Tip (special for our Irish friends:)
Bono (!) and Grönemeyer, Mensch (Rockgipfel Rostock 2007, parallel to the G8 meeting in Heiligendamm, in Northern Germany. Watch 4m30s: “Frau Merkel, halt Dein Versprechen, keep your promise”) – Both, Bono (!) and Grönemeyer, singing in German.

What’s hot
Fitness Coaches
What’s cold
Letting go
The German word/phrase/verse of the day
Sprachlos

Twitter: @forPadraig
#caringforPadraig
http://www.caringforPadraig.org
Upcoming events: http://www.caringforPadraig.org/events

Waves

27 Thursday Feb 2014

Posted by ReinhardSchaler in Uncategorized

≈ 11 Comments

Forget about Nazaré in Portugal, forget about Hawaii. According to Der Spiegel, Mullaghmore Head near Sligo is the best place on earth for surfers. Six degrees celsius cold water, heavy winds, and 15m high waves – it’s like surfing in the middle of a tsunami, according to one of Germany’s professional surfers.

scan sligoFor the past eight month, exactly, today, I have been looking at different kind of waves. I have learnt about heart monitors, oxygenation, the right heart rate, respiratory frequency, dangerous body temperature – most of it presented on monitors in steady forward moving waves.

heart-rate-monitorEight months ago, I was booking flights from Sanya, Southern China, via Shanghai and Detroit to Boston, in the middle of the night, not thinking, but wondering whether and when this nightmare I was having would end. Exactly 12 hours away from me, that was the time difference, a van had hit Pádraig, within minutes it was on Facebook, and Pat talked to a police officer while that officer was still on the scene. I left that hotel in the middle of the night and left on an 8am flight. 26 hours later I arrived in Boston and drove up to Hyannis. While traveling, I rang the hospital. They told me I could ring them any time of the day or night to find out how Pádraig was doing. When I entered Pádraig’s room, my heart broke. Pat was there and some of Pádraig’s friends. I knew I wasn’t going to wake up.

Today, we met Pádraig’s Speech Therapist. She told us all about tracheostomies, how they work, why patients need them, when and how they can be weaned off. We helped her to switch Pádraig over from his ordinary trachy front piece to a ‘speech’ valve which closed off the trachy opening and made him breathe through his mouth and nose again, also allowing him to make sounds. She and her colleague visit Pádraig three times a week and work with him to develop his swallowing capacities again, bit by bit, so that he will be able to get rid of the trachy eventually.

My eyes are filling up with tears, my throat is getting sore, my ears are ringing non-stop, my body aches like that of an old man, and my mind is refusing to take anything in. There are moments like this. I know they’ll pass. The world is still turning. The sun will still be shining in the morning. W. H. Auden’s request to “pack up the moon and dismantle the sun” was never taken on by anybody. Tomorrow, I’ll start training for the Hamburg Marathon. And I’ll make a deal with Pádraig.

wellenreiterEight months. Waves have been my life ever since. Shooting up and tumbling down at an incredible nauseating speed. Pushing me ahead of them with all their force. Making me feel small, beaten, powerless. Teaching me humility. Pushing me under the water until I could hardly breathe. Making me gasp for air. Covering me from above so I didn’t know day from night.

Tomorrow will be another day. Riding the wave. Staying on top. With Pádraig. Always.

Today’s German Music Tip
BAP, Wellenreiter (1982).

What’s hot
Riding waves
What’s cold
Being afraid
The German word/phrase/verse of the day
Mensch, hast Du so was schon gesehen?

Twitter: @forPadraig
#caringforPadraig
http://www.caringforPadraig.org
Upcoming events: http://www.caringforPadraig.org/events

Elvis

26 Wednesday Feb 2014

Posted by ReinhardSchaler in Uncategorized

≈ 8 Comments

elvisHe really liked the idea of having a parrot. He would sit on your finger or your arm, really tame. You could talk to him, and he would talk back at you. When you’d need a bit of private time, you could lock him up in a cage and do your own thing. Parrots don’t need to be brought out for a walk. They don’t have to be trained to do their business outside. They sounded like the ideal pet. There were several problems to be overcome on the way to become a proud owner of a parrot. Most had to do with money.

So, we needed to get smart about it, and improvise a little. Next time I went to Germany, I had to buy a cage – they were so much cheaper there. During one of my visits to see my mother, I managed to find a pet shop selling a parrot cage I could carry, just about, and the my rental car was big enough to accommodate. You can guess how long ago this was when I tell you that the airline had no problem taking the massive parrot cage in as part of my ordinary luggage allowance. These days, our national and not so national airlines wouldn’t even take budgie cages. The next major problem was the price of the parrot itself: it was massive.

nymphensittichLuckily, we found a brilliant pet shop in Wicklow, just off the N11 outside Bray. They sold cockatiels. While cockatiels are not quite of the same caliber as the African Grey Parrot, they only cost a fraction – they were so affordable, Pádraig decided to get a pair of them. Yes, he would become a breeder himself and get rich, selling cockatiels to his friends, neighbors, family, and on his webstore. There was no magic, what this guy in Wicklow could do, he could surely do in his sleep!

So one Saturday morning, we went off to Wicklow, and bought a pair of cockatiels. He called one of them Elvis – because of his fancy hair do. At home, the massive cage was ready to welcome it news tenants. The cockatiels came in boxes which was great for transport. Unfortunately, these boxes were too big to fit through the narrow flap of the cage. So we had to bring both the cage, and the boxes with the cockatiels into our back garden and as close as possible to one of the sheds – we didn’t want them to escape, you see.

(Are you still with us, with the story? I know it’s getting a bit long, but we are almost there.)

What happened next was what you probably expected all along. Pádraig’s worst nightmare. The cockatiels got frightened, when we opened the flap of the box, they charged out, first towards us, and then for the door of the shed, into the wild. Panicking, we charged after them shouting ‘Elvis! Elvis come back! ELVIIIIS! Where are you? Come back!’

Close to tears we were looking everywhere.

Then there was a know on garden door. When we opened it, two nice young lads, with a bright smile were standing there. One held Elvis in his hands. The other said, with a huge big smile, “Elvis has left the building”.

Needless to say, we made sure Elvis never left the building again. Also needless to say, that while they tried and did lay some eggs, those eggs never hatched, and Pádraig never got rich selling dozens of cockatiels. He had overcome all those insurmountable problems to get the cockatiels: cages, finance, transport, and dozens of small things (like convincing me that this whole venture was not an incredible act of madness). But as soon as the goal was reached, it lost its attractiveness almost immediately. Excitement threatened to turn into routine – and no self-respectable young person would be ready for that, when there are so many other things to be achieved, to be chased, to be explored. He was not quite ready yet for “Zieh’ die Schuh aus, bring den Müll raus”, all those ordinary, boring things adults have to do. He still isn’t.

Today, Pádraig kept his carers and doctors busy for the best part of an hour. Having had therapies in the morning, and having sat out for about four and a half hours, he was moved back into his bed. While he never really likes to be moved, today he showed his disapprovement. His oxygen levels went down to uncomfortable levels. Pádraig was really really lucky that the staff looking after him today and the Oberärztin know him so well. Instead of doing what less familiar carers would have done immediately, i.e. moving him back on to the ventilator, they calmly talked to him, threatened him a little (in a nice way), comforted him a lot, gave him confidence, made him feel safe – and managed to bring him back to normal levels of oxygen and a good heart rate. I arrived in the middle of it all, and just stood by the side of the room, admiring and in my heart thanking the people who with their professionalism and care, their knowledge, confidence, and persistence have made it their ‘business’ to give everything possible to Pádraig that could support his recovery.

Today, Elvis did not leave the building. He is going to hang in a little longer. And when he will leave, it will be through the front door, on his way to meet his date(s) in the rose garden. In the meantime, we are still waiting for more tips on how to properly celebrate Paddy’s Day in Hamburg, in Eilbek, in the Schön Klinik. Any ideas?

Today’s German Music Tip
Roger Cicero, Zieh die Schuh aus (2006). Unglaublich, how much German music there is. Just when I thought, it was going to get a bit difficult, someone really nice reminded me of Roger Cicero. This is good music, with even better lyrics – to bring you back down from your high-flying circus, down back to what really matters: take off your shoes and take out the garbage. Could anything be more romantic?

What’s hot
Persistence
What’s cold
Panic
The German word/phrase/verse of the day
Unglaublich, was?

Twitter: @forPadraig
#caringforPadraig
http://www.caringforPadraig.org
Upcoming events: http://www.caringforPadraig.org/events

Perspective

25 Tuesday Feb 2014

Posted by ReinhardSchaler in Uncategorized

≈ 6 Comments

There is this famous fable about some blind men touching different part of an elephant and each providing an account of what they ‘see’.

parable1

They all ‘see’ the same elephant in a different way and they all come to different conclusion as to what they are dealing with.

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Taking their conclusions and combining them into one picture produces a very different animal altogether.

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For me, the conclusion or the ‘moral’ of this story is that everything is a matter of perspective.

Still, sometimes i think I would like to see the elephant. But, maybe, even if I would see it, how would I know whether that was the real thing. And, at the end of the day, does it really matter?

Today, Pádraig must have yearned for his hardest days in Kentucky, in the UK pool – in comparison, they must seem to him now like a holiday camp. I am sure the training with coach Gary Conelly, who retired last year after 23 years, was incredibly hard. I also know that Mary and then Nickey in his Dublin-based clubs CRC and Westwood were tough coaches. His sister today said that one of the coaches said that he wouldn’t really get worried until the heart beat went above 220. Well, they are looking after the heart beat here and stop before it gets out of hand, making sure it doesn’t get up that high, but what the physios are doing with Pádraig is no joke – come afternoon, he is absolutely and completely exhausted. I know it’s really tough going, but at the same time it’s so great to see him being able to take all of this on, and still be fine. In fact, getting better all the time!

30776-bI had a long talk with the music therapist today. He said it was great to see the Kila CDs and the CD player, and that he was looking forward to getting the ‘Friends’ Compilation’ when it’s ready (I am still working on it). He mentioned that he played Horslips first album, Happy To Meet, Sorry To Part, which they had recorded in 1972 in The Rolling Stones mobile studio in Longfield House in Tipperary. (I forgot to ask him whether he had the original album which has a really elaborate cover.) – The idea of the music sessions is to try and connect with Pádraig through music. He was very interested hearing about the stories many of his friends shared with us. Pádraig is a real music lover and when he takes to a song, he surely does, playing and singing it nonstop, until he knows it inside out, until he has shared it with the people around him, and – until the next really brilliant song comes around!

I never had a chance to play today’s German music tip to Pádraig, a song which I remember as ‘Was sollen wir trinken’ but which is really called ‘Sieben Tage lang’ – one day I will, and I hope he’ll like it. It sounds like a drinking song at the beginning, and ends like a call to action:

Jetzt müssen wir streiten keiner weiß wie lang.
Ja für ein Leben ohne Zwang.

Dann kriegt der Frust uns nicht mehr klein.
Wir halten zusammen keiner kämpft allein!
Wir gehen zusammen nicht allein.

What ‘reality’ is, is a matter of perspective. Reality often doesn’t last, you blink and it has changed. Reality often is just a part of a bigger animal, what you ‘see’ could just be the tail. Reality is what you make it, whatever perspective you choose. Reality can hit hard, but music can bring hope and give strength. “Wir halten zusammen, keiner kämpft allein!” We are sticking together, no one fights by himself!

Today’s German Music Tip
Bots, Sieben Tage lang (1980)
The original version by the Dutch band Bots from 1976 is called Zeven dagen lang. The German singer song writer Diether Dehm translated the song into German, and the Bots recorded it in 1980. The song starts with „Was wollen wir trinken, sieben Tage lang” – What are we going to drink, over seven days. There is a bit of a discussion about who recorded the first version of the song. Alan Stivell’s plays the song which apparently is based on an already existing tune with the original title: Ev’ chistr ‘ta, Laou. The lyrics Stivell is using are in Breton and accompanied by himself on a Celtic harp. (There is a note by someone on youtube about the French and the Breton language that should sound familiar to many Irish speakers: As a frenchman of breton origins i never understood that way of thinking. It seems like France is afraid of its regions. The history of breton people in France is terrible : our language was forbidden, children in school were punished if they were caught speaking it. Yes French is the only official language of France and it’s i think the only country which has not signed the “European Charter for Regional or Minority Languages”. Some sources claim this song was written by an unknown Breton piper in the late 1920s. Most likely, it was written by Jean-Bernard and Jean-Marie Prima in 1929.)

What’s hot
Perspective
What’s cold
Certainty
The German word/phrase/verse of the day
Frust

Twitter: @forPadraig
#caringforPadraig
http://www.caringforPadraig.org
Upcoming events: http://www.caringforPadraig.org/events

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