You all knew about today’s ice-cream. So, what’s new? – There was something. Something happened. But – I’m going to keep you in suspense. Yes, I know it’s not fair, but then – what’s fair in life?

This being summer and Hamburg being really hot these days, Pádraig got lucky and the speech therapists kept their word (got that? speech… word…:). They started a little ice-cream parlour in his room and spoon-fed Pádraig green ice-cream: as green as the shamrocks on his window, still hanging in there from Patrick’s Day. And he loved it!

Then came the real surprise (you’ll remember, we knew since yesterday that today was going to be ice-cream day, so no surprises here)! When Pat came back into his room, she found four really exhausted-looking people. Pádraig and three therapists/nurses. They had actually got Pádraig to sit on the side of his bed, with his feet pressed against the floor! Another first (has anyone counted the amount of stuff Pádraig has started to do for the first time again?) Think about it: he had not sat (without support) for more than a year

This afternoon, i met with the NAI and with Headway – both promised their help, anything they could do, for An Saol. It is slowly but surely gaining momentum!!!

It was too much to expect, I guess, to have two good matches on two consecutive nights. This doesn’t look like soccer to me, there is no elegance, no genius, but a lot of really hard body work, very hard tackles. And no scores. In 90 minutes!

Pádraig had his total of six hours on the speech valve and he managing that superbly. Who would have thought this just a month or two ago! And today, he did much better than that: today, he had eight or nine spoon full of chocolate pudding.

And, as it is terribly hot in Hamburg, the plan is to continue with ice-cream tomorrow. There won’t be a choice of flavours, they’ll be pre-determined to stay in the whole frame-of-mind of winning:)

Can you imagine that: from nothing for a year, to semolina, followed by chocolate pudding, and then ice-cream – all within just about a week! I know, eating a pudding or even an ice-cream… what’s the big deal? But – if you haven’t eaten a thing, nothing at all at all at all, for more than a year, to be able to get all these sensation into your mouth must be tremendous.

Went out into the back garden this afternoon, back in Dublin. The hammocks are still hanging there, and Pádraig was ‘hanging out’ there, planning his next adventure, chilling. His favourite place in the garden. He was there, because without him none of this makes any sense. Whatsoever.

Off to Limerick in the morning, meeting with the NAI later on to plan An Saol.

Whoever was walking the streets with a German flag on their shoulders, never mind one painted on their cheek, was definitely and without a doubt a neo-nazi. Who, in their right mind, would ever be proud again to be a German and wave the German flag to show it? “Die Ewig Gestrigen” we called them. People who were still dreaming of the big Germany, the one that had sent most of Europe and a good part of the rest of the world into the abyss. When I went on what would nowadays be called an ‘Erasmus’ to Spain, and my Spanish friends were telling me how organised and disciplined (in a good way) Germans were, I always said that it only appeared like that from the outside and that every country and every culture had their strengths and weaknesses. (It was still a ‘funny’ feeling to be caught up one day in Madrid in a huge demonstration commemorating the death of the Caudillo, driving this German registered VW beetle, and all the fascists ‘welcoming’ their German ‘supporters’ by beeping their horns and waving us on.)

But – things change, a new generation has a different view of history, and being proud of being German with flags on your windows, your car mirrors, your t-shirt, and – yes – on your cheek, is creating, again, this sense of belonging, and a sense of being proud of your country, even if it is Germany.

Today is a big day in Germany. There won’t be night shifts in many factories as people will get together and watch the match of all matches, the real word cup final, the epic between the host country Brazil and the all-time favourites Germany. It doesn’t really matter who is going to loose – it’s going to be a major disaster anyways.

In Dublin, we hear that people are really really really excited about these concerts – some saying that they want them all, some saying they want none of them. They don’t know that the real, the authentic, the biggest hit this summer will not be one about “If Tomorrow Never Comes” – to the contrary: it’ll be one about the power of dreams, about believe in yourself and what you can achieve, about a sign of things to come, with loads of people, loads of them, having some ‘serious’ fun!

The Dream Boat is getting ready. No official recording available yet, but a bit of the ‘Making of…’, a sneak preview of the song in the Conradh, can be watched on youtube already.

When we arrived at the hospital today, Pádraig was sitting in his wheelchair and the occupational therapist and physio were just about to leave. Everybody is really happy with the progress Pádraig is making. He has no problem using the speech valve for up to six hours now, three in the morning and three in the afternoon. He manages without a problem to sit for about four hours a day in the wheelchair. And he managed to cycle so fast on the MOTOMed-Viva2 on one of his Tour d’Schön races that it blew a fuse and had to be withdrawn from any races until further notice.

Tonight, we’re getting ready to take down the German flags in Pádraig’s room. But, ‘der Ball ist rund’ and anything can happen! Sure, we all know this – anything!

Hamburg. There is no city I’ve been in where there’re more really expensive cars driven by people who obviously never earned enough money to buy those cars. Maybe it’s all legit, but those guys are in their twenties, wear dark glassed and dark suits, and they’re just to über-cool to have earned their money in an office job. U just couldn’t picture them in an ordinary 9-5. And even if you could, those jobs would not pay for them cars! So, what’s the secret?

We continued to lend a helping hand to the carers: over time, I could see us getting really well accustomed and able to make Pádraig comfortable.

There was another first today: we first thought it might be a “Krampf”. Then, Pat asked him to relax, and he did. We asked him three times if he wanted to do it again, and he did. What was it? Simple, easy – for any of us. For Pádraig a huge, huge effort: he moved his whole right leg up, and – when we asked him – down again. Up. And back down. And a third time. Wahnsinn! A sign of things to come!

What’s the secret!?

Under different circumstances you’d call this an ordinary day. Wheelchair, speech valve (x2), all going well. Nothing really that special. Just another day. Sun-day. Literally. 28 degrees. Africa in the North of Germany. Pádraig is doing ok, he’s hanging in there. Great to know that the weekend is over, without an incident. Really nice nurses supervising and encouraging us to get involved in Pádraig’s care. We managed to lift him out of and into his bed, and working with the speech valve.

Started to write up a plan for An Saol. Also talked to and exchanged emails with a number of people who are really enthusiastic of the idea. There has been some response to the call to support #AnSaol, and some of Pádraig’s great friends have started to lobby politicians. To make An Saol a reality, it will need supporters, many, people who can make things happen: people like you, who will not accept things as they are. People like Pádraig.

After having been with Pádraig, we went out to see Eamonn in his Irish Pub in Hamburg – no, it’s not called Eamonn’s but (for some reason:) Paddy’s Bar. We were told he’s there every night, except tonight;) Tough luck, we thought, we’ll have to go again!

Before I finish tonight, I wanted to ask you what you think would be the most important things to take into account when thinking about and planning An Saol?

Any ideas?

And – would you like to get involved in one way or another?

[Comment – or send an email to caringforpadraig@gmail.com.]

It must have been another long night in the recording studio judging be the tweets coming in at all hours of the morning. Looks like Smithfield became to small and the gang had to move to Bow Lane. There has been a constant stream of pictures taken and distributed by Caoimhe, Jen, Rónán, and others on Twitter (see a collection of them below). There were also some sneak previews of the making of Dublins 2014 Summer Hit on #AmhránDoPhádraig.

In the meantime, Pádraig managed to Take Five spoons of the green stuff – a sure sign of things to come. He also managed to stay on the speech valve for approximately 6 hours today, which must have been a record. The past few days have felt like as if some pieces begun to fall into place, loads of progress, loads of really good music being played in a Hamburg hospital, and yes, it definitely floated like a dream. He believes and he is making the effort, he knows that he can make it and he is determined to float that boat.

This is not the first time over the past few months that I thought there are things happening here that come what may none of us will ever forget. We will tell our grandchildren and they will tell the story to theirs. We are having, in a transcendent kind of a way, the time of our lives. I include Pádraig in this – what is happening here is pure magic. And we need to keep it going because he won’t give ever give in or give up either.

Is this a sign of things to come? There must be something going on here that no one can touch or see or hear. Looks like the boat is getting ready to sail!

We had our usual Wednesday morning meeting with Pádraig and the Speech Therapist. We started with the usual routine. Then, in a very casual way, she said that she had brought some semolina along, and asked Pádraig would he want to try a bit. His answer was, let’s say, neutral. So she took a teaspoon and a tub with some blue stuff. I thought by myself, good job Pádraig probably wasn’t paying too much attention to the colour and consistence of what he was about to enter his mouth. Now the details of what then happened are important.

She put some of this blue stuff (no – not blue face paint:), let’s believe that it was semolina, onto the spoon. She then touched Pádraig’s lower lip with the spoon and said, “Here is some semolina” (She actually said: “Hier, Patrick, ist etwas Griesbrei”, which was good because I doubt that he had ever heard that word in his life before, so even if he did pay attention to the colour of it, it probably didn’t make too much of a difference.) She then asked Pádraig to open his mouth, which he did. She then put the spoon with the semolina into his mouth and asked him to close his mouth and take the semolina off the spoon. She then took the empty spoon out of his mouth. Pádraig kept his mouth closed as if he was tasting the semolina. After a while he swallowed. Then the speech therapist repeated the whole procedure a couple of times.

At the end, the secret of the blue colour was revealed – it was suctioning time to see if any of the blue die had made it into his trachea. It had not. Nada.

Had I not seen this myself and someone had told me about it, I would not have believed what happened this morning. And no one in the room would have. The rest of the day (breathing therapy, occupational therapy, physio therapy, speech valve, sitting out in his wheelchair) would have been great any other day. Today, it was all just secondary.

Imagine. One year. No food in your mouth. No taste. No texture. No food going down your oesophagus. No food going into your stomach (just ‘Sondenkost’, liquid nutrients, through a tube directly into your stomach).

And then, this explosion of taste and texture. Semolina.

Still can’t believe it – it must be a ‘sign of things to come’. And it was not just a dream! There is a defiance here of the laws of probability, physics, chemistry, and medicine here that is typical, not out of character at all. There is no doubt, the boat is floating down the stream towards the sea!

Day 2: Getting Ready for Tonight’s Recording

Arts and crafts in the office! Ag ullmhú don taifead mór anocht 🙂

Whoooo looking forward to Day 2 of recording

Artist in residence Isabelle Kehoe!

Ahoy – the boats are getting ready!

I believe Dublin’s shops run out of blue face paint tonight! Rock the boat! Set it on fire!

Check out news on the recording project on Facebook and Twitter #AmhránDoPhádraig.

(Thank you to Jen, Caoimhe, and Róisín for the great pictures on the run up to tonight’s recording.)

I am sure that Pádraig was not a happy sailor tonight – he would have wanted to be with his friends in the Conradh. Although – in spirit, he is right there with them, singing at the top of his voice ‘let’s just sail and have some fun’. I’m sure, his friends will take plenty of pictures and videos which they will share and which I will try to post here hopefully tomorrow.

There was ‘a sign of things to come’ today when a specialist doctor did a FEES (remember: Fiberoptic endoscopic evaluation of swallowing?). Both the doctor and speech therapist were very pleased with what they saw: when they looked down from his nasal passage into his throat to check out how well he can swallow and whether there was a potential for saliva etc. to ‘leak’ down his windpipe, they were quite pleased. (There is an interesting and not too graphic video on youtube that shows how swallowing works.) So pleased were they that it was decided to extend the use of the speech valve to 2-3 hours, twice a day. It looks like that he is on the way to get rid of the tracheostomy, although it will still take some time (and nobody was prepared to tell us how much time). – All his ‘vital signs’ were also really good today, again. So, all in all, it was a good day. By now, you will have seen the article in The Journal of today:

Today’s Music Tip Länderspiel, Ich bin ich (2012). Funny name for a rock group:) – Haven’t made a break through yet it seems, judging by the number of clicks on youtube, but it’s not bad, not bad at all….
What’s hot FEES
What’s cold Fees
The German word/phrase/verse of the day “Das ist mir völlig Wurst” – German soccer player Mertesacker answering the question of a reporter on why the German game was so slow to take off in the first half of the match against Algeria. It’s worth watching the short clip with his interview!!!