The honour of the political leader is the exclusive personal responsibility for what he does … The official is expected to renounce personal responsibility.
Max Weber, Politics as a Vocation, 1919
Young lives, not nursing homes — deliver Teach An Saol.
Teach An Saol has all but disappeared: the HSE’s new “Teach na Cumas” plan ignores the original rights-based proposal with Social, Therapy, Respite & Temporary Supported Living hubs. Families gave years of work and pro bono design — now all that remains is space for current services in a shared building. When did political promises to keep young people with severe ABI out of nursing homes become optional?
Please stay with me.
I would like to share with you a review of and important news about the call of families affected by a severe Acquired Brain Injury (sABI) for an integrated service in the “House of Life”, Teach An Saol. A call we developed into a proposal submitted to the HSE on their request. A call supported by politicians across the parties. A call that echoes the aspirations of the Irish Government to keep young people out of nursing homes and claims their right to live a healthy, fulfilled life with dignity and respect.
I will also share with you the response we just received from the Irish Health Service Executive to this powerful call for a National Centre for Life and Living with severe Acquired Brain Injury — a centre integrating Therapy, Social, Respite, and Temporary Supported Living hubs. This response arrived only last week, after years of dedicated and tireless work by so many on behalf of those left behind for far too long. It offers new, dedicated space for the current operations of the An Saol Foundation — but, regrettably, makes no mention of Teach An Saol, neither in name nor in concept.
Teach An Saol, the An Saol Foundation’s National Centre for Life and Living with a severe Acquired Brain Injury, with Social, Therapy, Respite and Transitional Living Hubs, as well as nationwide Satellite Centres, is a development in response to the request of the HSE Clinical Lead for Disability and the 2023 HSE Review and Recommendations of the international independent expert panel.
It was presented at a Teach An Saol Working Group Meeting in June 2023, organised by the Minister for Disability, Anne Rabbitte, at the An Saol Foundation in Santry, Dublin, and widely supported at that meeting. The meeting was attended by the Minister and her aides, local and national HSE representatives, a Senator and a TD, as well as by representatives of the An Saol Foundation. At that meeting, the Minister was so enthusiastic about the project that she promised to finance Teach An Saol if the An Saol Foundation secured a site for it.
Within weeks, Dublin City Council made a site available to the An Saol Foundation under the condition that it would secure funding for the building from the Government and the HSE.
The HSE told the An Saol Foundation on 09/01/24 that a Full Capital Submission would have to be completed by 30/01/2024. A few days later, on 18/01/24, the An Saol Foundation was told that this full capital submission would ”be finished tomorrow”. When it transpired, a week later on 24/01/24, that this had not happened, the An Saol Foundation was told not to worry. “The project will still be up for prioritisation in 2024 with all other competing projects for a funding allocation in 2025.”
The proposal was prepared with the assistance of and with input from the Teach An Saol Planning Group. The initial planning group was significantly expanded in early 2024 and has been meeting weekly since to prepare the submission of the application for planning permission for Teach An Saol. Ireland’s biggest names in engineering, planning, architecture, and the legal field have recently prepared detailed answers to the request by Dublin City Council (DCC) for further information on that application and will submit them soon to DCC, hopefully leading to the granting of planning permission.
The record of the Irish Parliament, Dáil Éireann, the Irish Senate, Seanad Éireann, and the Joint Committee of the Houses of Parliament, the Oireachtas, show the overwhelming support of the representatives of the Irish People for Teach An Saol. This is well documented in the Oireachtas records and on the An Saol Foundation’s website. These Oireachtas members include Mary Fitzpatrick, Paul McAuliffe, Aubrey McCarthy, Niamh Smyth, Dessie Ellis, Cian O’Callaghan, and many more. DCC Council Members, such as Gayle Ralph, have worked tirelessly for Teach An Saol.
Over the past months, it transpired that the site, made available by Dublin City Council, under conditions, to the An Saol Foundation for Teach An Saol, was going into the ownership of the HSE. Rather than providing the funding to the An Saol Foundation to build Teach An Saol, the HSE decided that it will build and own the building designed by the An Saol Foundation’s Working Group pro bono – a contribution by Irish companies to the An Saol Foundation worth probably in the region of €500,000.
More recently, and following year-long consultations and close to half a dozen revision cycles requested by the HSE, the HSE decided that the building design was too sizeable for our purposes and that another HSE service would have to be co-located in Teach An Saol.
Last week, the excellent news came that the HSE was finally processing the first official step in the capital grant application.
With it came a big surprise.
The HSE now proposes Teach na Cumas, the National Centre for Disability Inclusion and Neuro-Rehabilitation, a HSE-owned regional (sic!) hub co-locating three organisations, among them the An Saol Foundation, under long-term lease agreements.
It has to be very much welcomed that the HSE has finally decided to offer permanent space to the An Saol Foundation in a brand new, purpose-built facility at a nominal rate. Following years of stalling, of apparent in-action, no real formal progress along the HSE bureaucracy, this is a step in the right direction.
While there are many positive aspects to this plan it, however, regrettably has little got to do with the project proposed by the An Saol Foundation responding to a request by the HSE and emphatically supported by those directly affected by a sABI and their families, members of the Oireachtas, Dublin City Council, prominent Irish companies, and, last but not least, by the HSE itself.
On 28th June this year, Paul McAuliffe of the Oireachtas Joint Committee on Disability questioned the HSE about their support for the An Saol Foundation’s Teach An Saol Project. Bernard Gloster, CEO, complimented the An Saol Foundation on their excellent work and said that he would be more than happy to meet to advance the Teach An Saol project.
Regrettably, in the HSE’s current proposal, there is no mention of Teach An Saol, there is no mention that it will be build in two phases, and the only mention of respite and supported short-term living in the proposal was left in it most likely through oversight.
That leaves the question: Who is in charge of giving the go-ahead for this new, very different project, rather than to Teach An Saol, a development that all agree is desperately needed; that all agree is being delivered very effectively and efficiently by the An Saol Foundation; and that is being offered on a silver platter to the civil servants to execute?
Just a few weeks ago, I met a 19-year old teenager and his family in the National Rehabilitation Hospital (NRH) on a Sunday. It was his last day in the NRH. The following day, he was discharged to a nursing home in Wexford.
Seriously: how can this still be allowed to happen? How can those responsible sleep at night? Why are they not held to account? This is, literally, stomach turning. Just stop and think about it. A 19-year old teenager being shipped off to a nursing home because there is nothing better for him available?
Except there is. Or, at least there could be.
My family were once in that situation when the first question we were asked was, “Which nursing home is he (Pádraig) going to go to?“. For the last 10 years, I have been working with families who have suffered almost unbearable pain, some of them were torn apart, because of the unsustainable and in-humane practice of placing young people in inappropriate care instead of supporting them appropriately to live their lives with their injuries.
Today, if you suffer a severe Acquired Brain Injury (sABI) in Ireland, you and your family will still not only have learn to live with the obvious, very dramatic, changes in your abilities and circumstances. You will also be deprived of your right to a life where you are enabled to look after your body, mind, and soul: your wellbeing.
Teach An Saol offers a real opportunity to change this situation.
This is not a question of finance. This is a question of political will and focussed execution.
Letting this opportunity pass would be a tragedy. Allowing the takeover of the work done by and for the An Saol Foundation’s Teach An Saol, and just build another HSE building where the An Saol Foundation would be one of three tenants raises many difficult questions.
The most important and pressing of these question is:
Who is Charge?
Max Weber, widely regarded as one of the founding figures of modern social science, had the answer, just over a hundred years ago.
Finally, and paraphrasing Dylan Thomas, here is a promise:
We will not go gentle into that good night. But rage, rage against the dying of the light.
Note: The section “Young lives, not nursing homes — deliver Teach An Saol.” was added on Monday, 22 September 2025.