imagesPádraig has been very tired, very sleepy, exhausted these days. He hasn’t really eaten, he hasn’t been in his wheelchair any day of this week, and he hasn’t been very responsive at all. Last Monday, doctors double the dose of drug no.1 they’re giving him, which could be part of the reason he is so hard to get in touch with.

Another reason is that his heart rate has been quite a bit higher than it used to be for a long time. He is also receiving only very gentle physio therapy so that chances his injuries could cause him pain are kept to a minimum. Today we heart that Pádraig had been on a tilt table yesterday that allows therapists to move him up into almost a standing position. He managed a brilliant personal best (PB) of almost 30 minutes in close to 90 degrees. All of which is brilliant news!

One doctor from outside the clinic today told us that ‘shit happens’ and I would agree. Life is unpredictable, never the way you expect it to be, hard to take at times. The important thing is to focus on the positive. In Pádraig’s case, he has been making really good progress over the past months. There have been a considerable amount of setbacks, near death experience, incredible fear and desperation – but, all in all, the most incredible thing that happened has been his coming back, time and time again. The last few days have just bee an glitch. We’ll be back to normal, to the road of discovery in no time!